Stacy Buttigieg

100 Skips a Day 2026

I’m fundraising in memory of my daughter, Everleigh .

So far I have completed 3,100 skips in
August for kids with genetic diseases

Total Skips

3,100 Skips

Goal

3,100 Skips

Welcome to Everleigh’s Dream Team ✨
I’ve signed up to do 100 skips a day throughout August to raise money for Children’s Medical Research Institute on behalf of our beautiful daughter Everleigh.
 
Everleigh was born with a rare genetic condition called WOREE Syndrome, with roughly only 200 cases documented worldwide. 

WOREE Syndrome is a severe and relentless seizure disorder, Everleigh would experience 30-50 seizures every day. She was NGT dependant for all food & hydration. Required oxygen therapy,  frequent suctioning, multiple medications daily including rescue medications and assistance with all aspects of her life as she was non-mobile and non-verbal. 

Our biggest hope it that one day we can find a cure and stop any more suffering. 

Everleigh put up the strongest fight, until 5 weeks before her 3rd birthday in 2024. Now every year we skip in her honour and raise funds, in the hope that one day we can find a cure and that no other children will have their childhood cut short. 

Can you help by sharing this message with the people you know and asking them to donate too?

I care about the 1 in 20 Aussie kids who face a birth defect or genetic disease. So, the research you and I support today may one day help someone we know, someone in our family, someone like Everleigh. 

There’s lots of work to do, but there is also lots of hope.

Join me. Share this message. Donate. Thank You!

Raised so far

With your help, I have raised...

$8,961

You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!

Biggest Donor

Little Olive Leaf

$1,540

Thank you so much to my biggest supporter, Little Olive Leaf, for donating an incredible $1,540 to help fund vital research into curing children’s genetic diseases.

My Impact

So far this year, I've helped fund...

179

Hours of research

Every $50 raised funds an hour of vital research.

Thank you to our donors

$117

Janine Spencer

Always inspired by you and angelo

4 days ago

$160

Russell Skinner

Love from the Skinner family

1 month ago

$34

Bec Payne

1 month ago

$56

Eileen Rigby

Love to all and our shining star, Everleigh 🌟

1 month ago

$320

Money Tins & Cash Donations

1 month ago

$163

Brandon Hush

1 month ago

$61

Helen Sands

1 month ago

$35

Cassie

1 month ago

$117

Tori

1 month ago

$61

Nicole Orton

Hi Stacy, I wanted to get you something to thank you for the barcode for Gen and thought that doing a second donation would mean way more to you. Again thank you and well done on your August skipping - huge achievement in memory of your precious Everleigh xx

1 month ago

$40

Shannon Walliss

1 month ago

$117

Karen Wheatland

Sorry I missed it yesterday x

1 month ago

$1.54k

Little Olive Leaf

It is our pleasure to support you in raising funds for such a wonderful and worthwhile cause. We are delighted to be able to play a small part in helping you make a difference.

1 month ago

$117

Dominique Chapman

Love from Dom, Aaron and Lilly ❤️

1 month ago

$304

Jayden Lawrence

For my favourite girl, thinking of you 🥰 Wish I was there with you

1 month ago

$117

Annabella Packer

Amazing day! Well done Stace!

1 month ago

$107

Iain And Natalie Mcallister

1 month ago

$107

Anna Tierney

1 month ago

$61

Mp

Your work in Everleigh's memory is amazing. I donate in her memory and the memory of my daughter who also had a genetic condition. Thank you.

1 month ago

$117

Suzie Brans

1 month ago

$40

Carrie Wihone

1 month ago

$238

Mary Poppins 🫶🏼

For my special friend 🫶🏼🐊

1 month ago

$107

Louise Little

We never got to meet Everleigh but the way you guys keep her memory alive makes us feel like we’ve known her our whole life 💕 it’s testament to how amazing you guys are! As we say here in Scotland “Yer some Maw and yer some Da” Lots of love 💜💜

1 month ago

$56

Kalon Harrison

1 month ago

$64

Judy

Keep up that great work your doing ❤️❤️

1 month ago

$61

Sam Cole

Xx

1 month ago

$61

Adam Penrose

I think its amazing what you guys are doing 🤍

1 month ago

$61

Debbie Jones

Such an amazing fundraiser, honouring little Everleigh x

1 month ago

$55

Luke Johnston

Great work, You got this!

1 month ago

$61

Tiffany Leef

1 month ago

$24

Mel Ware

1 month ago

$61

Anna Kennelly

1 month ago

$40

Margaret Wallace

1 month ago

$24

Elspeth Thornton

1 month ago

$31

Joe

1 month ago

$24

Connie

Keep up the good work ☺️

1 month ago

$39

Anonymous

1 month ago

$60

Ashton

Amazing work! 💚💚💚

1 month ago

$38

Jack Mcdonald

Our hearts breaks for you. Love the little olive leaf community - Jack Summar and Banks .

1 month ago

$12

Anonymous

1 month ago

$52

Maddison De Bellis

1 month ago

$29

Roxy Abshar

Go girl !You are doing amazing!

1 month ago

$107

Anonymous

2 months ago

$24

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$24

Lauren Cusack

2 months ago

$40

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$40

Andrea

I am in awe of your dedication and strength 💕

2 months ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$50

Helen Rowley

2 months ago

$61

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$61

Rachel And Adam

2 months ago

$163

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$163

Sandy And Bells

Go gettem stacca!

2 months ago

$61

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$61

Rachel Wallace

2 months ago

$45

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$45

Nicc

2 months ago

$238

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$238

Ruth Buttigieg

Evs would be sooo proud of her Mum and Dad and her village! 🥰🥰🥰

2 months ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$56

Sarah Simons

2 months ago

$34

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$34

Mel And Elijah Knox

We miss you beautiful Everleigh

2 months ago

$100

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$100

Sarah Squibb

Love always, from Ev’s bestie Brin x

2 months ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$56

Kirstyn Hush

2 months ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$50

Teghan Russell

Amazing work Stace!! 😍🩵

2 months ago

$107

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$107

Anonymous

Keep up the good work all the best from Dad

2 months ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$50

Pringle

2 months ago

$40

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$40

Sarah Overington

2 months ago

$200

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$200

Anonymous

2 months ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$56

Julian Zoe

2 months ago

$217

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$217

Anonymous

2 months ago

$61

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$61

Next Bite Feeding Therapy

In memory of darling Ev x

2 months ago

$55

Aimee

2 months ago

$24

Melinda Hansen

❤️❤️

2 months ago

$56

Pat Buttigieg

Love your work you guys ❤️

2 months ago

$24

Jordan Pola

2 months ago

$61

Chiedza Musara

Keep the spirit going . Changing the world , one jump at a time .

2 months ago

$35

Lauren Lawrence

Awesome work guys! ❤️

2 months ago

$40

Chris & Anne Doidge

2 months ago

$110

Zahra

We love you forever Everleigh xx

2 months ago

$40

Caitlin Connolly

2 months ago