Stacy Buttigieg

100 Skips a Day 2026

I’m fundraising in memory of my daughter, Everleigh .

So far I have completed 3,100 skips in
August for kids with genetic diseases

Total Skips

3,100 Skips

Goal

3,100 Skips

Welcome to Everleigh’s Dream Team ✨
I’ve signed up to do 100 skips a day throughout August to raise money for Children’s Medical Research Institute on behalf of our beautiful daughter Everleigh.
 
Everleigh was born with a rare genetic condition called WOREE Syndrome, with roughly only 200 cases documented worldwide. 

WOREE Syndrome is a severe and relentless seizure disorder, Everleigh would experience 30-50 seizures every day. She was NGT dependant for all food & hydration. Required oxygen therapy,  frequent suctioning, multiple medications daily including rescue medications and assistance with all aspects of her life as she was non-mobile and non-verbal. 

Our biggest hope it that one day we can find a cure and stop any more suffering. 

Everleigh put up the strongest fight, until 5 weeks before her 3rd birthday in 2024. Now every year we skip in her honour and raise funds, in the hope that one day we can find a cure and that no other children will have their childhood cut short. 

Can you help by sharing this message with the people you know and asking them to donate too?

I care about the 1 in 20 Aussie kids who face a birth defect or genetic disease. So, the research you and I support today may one day help someone we know, someone in our family, someone like Everleigh. 

There’s lots of work to do, but there is also lots of hope.

Join me. Share this message. Donate. Thank You!

Raised so far

With your help, I have raised...

$8,844

You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!

Biggest Donor

Little Olive Leaf

$1,540

Thank you so much to my biggest supporter, Little Olive Leaf, for donating an incredible $1,540 to help fund vital research into curing children’s genetic diseases.

My Impact

So far this year, I've helped fund...

176

Hours of research

Every $50 raised funds an hour of vital research.

Thank you to our donors

$160

Russell Skinner

Love from the Skinner family

1 week ago

$34

Bec Payne

2 weeks ago

$56

Eileen Rigby

Love to all and our shining star, Everleigh 🌟

2 weeks ago

$320

Money Tins & Cash Donations

2 weeks ago

$163

Brandon Hush

2 weeks ago

$61

Helen Sands

2 weeks ago

$35

Cassie

2 weeks ago

$117

Tori

2 weeks ago

$61

Nicole Orton

Hi Stacy, I wanted to get you something to thank you for the barcode for Gen and thought that doing a second donation would mean way more to you. Again thank you and well done on your August skipping - huge achievement in memory of your precious Everleigh xx

2 weeks ago

$40

Shannon Walliss

2 weeks ago

$117

Karen Wheatland

Sorry I missed it yesterday x

2 weeks ago

$1.54k

Little Olive Leaf

It is our pleasure to support you in raising funds for such a wonderful and worthwhile cause. We are delighted to be able to play a small part in helping you make a difference.

2 weeks ago

$117

Dominique Chapman

Love from Dom, Aaron and Lilly ❤️

2 weeks ago

$304

Jayden Lawrence

For my favourite girl, thinking of you 🥰 Wish I was there with you

2 weeks ago

$117

Annabella Packer

Amazing day! Well done Stace!

2 weeks ago

$107

Iain And Natalie Mcallister

2 weeks ago

$107

Anna Tierney

2 weeks ago

$61

Mp

Your work in Everleigh's memory is amazing. I donate in her memory and the memory of my daughter who also had a genetic condition. Thank you.

2 weeks ago

$117

Suzie Brans

2 weeks ago

$40

Carrie Wihone

2 weeks ago

$238

Mary Poppins 🫶🏼

For my special friend 🫶🏼🐊

2 weeks ago

$107

Louise Little

We never got to meet Everleigh but the way you guys keep her memory alive makes us feel like we’ve known her our whole life 💕 it’s testament to how amazing you guys are! As we say here in Scotland “Yer some Maw and yer some Da” Lots of love 💜💜

2 weeks ago

$56

Kalon Harrison

2 weeks ago

$64

Judy

Keep up that great work your doing ❤️❤️

2 weeks ago

$61

Sam Cole

Xx

2 weeks ago

$61

Adam Penrose

I think its amazing what you guys are doing 🤍

2 weeks ago

$61

Debbie Jones

Such an amazing fundraiser, honouring little Everleigh x

3 weeks ago

$55

Luke Johnston

Great work, You got this!

3 weeks ago

$61

Tiffany Leef

3 weeks ago

$24

Mel Ware

3 weeks ago

$61

Anna Kennelly

3 weeks ago

$40

Margaret Wallace

3 weeks ago

$24

Elspeth Thornton

3 weeks ago

$31

Joe

3 weeks ago

$24

Connie

Keep up the good work ☺️

3 weeks ago

$39

Anonymous

4 weeks ago

$60

Ashton

Amazing work! 💚💚💚

4 weeks ago

$38

Jack Mcdonald

Our hearts breaks for you. Love the little olive leaf community - Jack Summar and Banks .

1 month ago

$12

Anonymous

1 month ago

$52

Maddison De Bellis

1 month ago

$29

Roxy Abshar

Go girl !You are doing amazing!

1 month ago

$107

Anonymous

1 month ago

$24

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$24

Lauren Cusack

1 month ago

$40

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$40

Andrea

I am in awe of your dedication and strength 💕

1 month ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$50

Helen Rowley

1 month ago

$61

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$61

Rachel And Adam

1 month ago

$163

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$163

Sandy And Bells

Go gettem stacca!

1 month ago

$61

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$61

Rachel Wallace

1 month ago

$45

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$45

Nicc

1 month ago

$238

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$238

Ruth Buttigieg

Evs would be sooo proud of her Mum and Dad and her village! 🥰🥰🥰

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

Sarah Simons

1 month ago

$34

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$34

Mel And Elijah Knox

We miss you beautiful Everleigh

1 month ago

$100

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$100

Sarah Squibb

Love always, from Ev’s bestie Brin x

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

Kirstyn Hush

1 month ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$50

Teghan Russell

Amazing work Stace!! 😍🩵

1 month ago

$107

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$107

Anonymous

Keep up the good work all the best from Dad

1 month ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$50

Pringle

1 month ago

$40

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$40

Sarah Overington

1 month ago

$200

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$200

Anonymous

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

Julian Zoe

1 month ago

$217

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$217

Anonymous

1 month ago

$61

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$61

Next Bite Feeding Therapy

In memory of darling Ev x

1 month ago

$55

Aimee

1 month ago

$24

Melinda Hansen

❤️❤️

1 month ago

$56

Pat Buttigieg

Love your work you guys ❤️

1 month ago

$24

Jordan Pola

1 month ago

$61

Chiedza Musara

Keep the spirit going . Changing the world , one jump at a time .

1 month ago

$35

Lauren Lawrence

Awesome work guys! ❤️

1 month ago

$40

Chris & Anne Doidge

1 month ago

$110

Zahra

We love you forever Everleigh xx

1 month ago

$40

Caitlin Connolly

1 month ago