Stacy Buttigieg

100 Skips a Day 2026

I’m fundraising in memory of my daughter, Everleigh .

So far I have completed 700 skips in
August for kids with genetic diseases

Total Skips

700 Skips

Goal

3,100 Skips

Welcome to Everleigh’s Dream Team ✨
I’ve signed up to do 100 skips a day throughout August to raise money for Children’s Medical Research Institute on behalf of our beautiful daughter Everleigh.
 
Everleigh was born with a rare genetic condition called WOREE Syndrome, with roughly only 200 cases documented worldwide. 

WOREE Syndrome is a severe and relentless seizure disorder, Everleigh would experience 30-50 seizures every day. She was NGT dependant for all food & hydration. Required oxygen therapy,  frequent suctioning, multiple medications daily including rescue medications and assistance with all aspects of her life as she was non-mobile and non-verbal. 

Our biggest hope it that one day we can find a cure and stop any more suffering. 

Everleigh put up the strongest fight, until 5 weeks before her 3rd birthday in 2024. Now every year we skip in her honour and raise funds, in the hope that one day we can find a cure and that no other children will have their childhood cut short. 

Can you help by sharing this message with the people you know and asking them to donate too?

I care about the 1 in 20 Aussie kids who face a birth defect or genetic disease. So, the research you and I support today may one day help someone we know, someone in our family, someone like Everleigh. 

There’s lots of work to do, but there is also lots of hope.

Join me. Share this message. Donate. Thank You!

Raised so far

With your help, I have raised...

$3,969

You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!

Biggest Donor

Ruth Buttigieg

$238

Thank you so much to my biggest supporter, Ruth Buttigieg, for donating an incredible $238 to help fund vital research into curing children’s genetic diseases.

My Impact

So far this year, I've helped fund...

79

Hours of research

Every $50 raised funds an hour of vital research.

Thank you to our donors

$107

Anonymous

1 hour ago

$24

Matched Gift

Your donation has been doubled by our sponsors!

6 hours ago

$24

Lauren Cusack

6 hours ago

$40

Matched Gift

Your donation has been doubled by our sponsors!

6 hours ago

$40

Andrea

I am in awe of your dedication and strength 💕

6 hours ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

13 hours ago

$50

Helen Rowley

13 hours ago

$61

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$61

Rachel And Adam

1 day ago

$163

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$163

Sandy And Bells

Go gettem stacca!

1 day ago

$61

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$61

Rachel Wallace

1 day ago

$45

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$45

Nicc

1 day ago

$238

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$238

Ruth Buttigieg

Evs would be sooo proud of her Mum and Dad and her village! 🥰🥰🥰

1 day ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$56

Sarah Simons

1 day ago

$34

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$34

Mel And Elijah Knox

We miss you beautiful Everleigh

1 day ago

$100

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$100

Sarah Squibb

Love always, from Ev’s bestie Brin x

1 day ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$56

Kirstyn Hush

1 day ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$50

Teghan Russell

Amazing work Stace!! 😍🩵

1 day ago

$107

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$107

Anonymous

Keep up the good work all the best from Dad

1 day ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$50

Pringle

1 day ago

$40

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$40

Sarah Overington

1 day ago

$200

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$200

Anonymous

1 day ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$56

Julian Zoe

1 day ago

$217

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$217

Anonymous

1 day ago

$61

Matched Gift

Your donation has been doubled by our sponsors!

2 days ago

$61

Next Bite Feeding Therapy

In memory of darling Ev x

2 days ago

$55

Aimee

3 days ago

$24

Melinda Hansen

❤️❤️

5 days ago

$56

Pat Buttigieg

Love your work you guys ❤️

5 days ago

$24

Jordan Pola

5 days ago

$61

Chiedza Musara

Keep the spirit going . Changing the world , one jump at a time .

5 days ago

$35

Lauren Lawrence

Awesome work guys! ❤️

6 days ago

$40

Chris & Anne Doidge

6 days ago

$110

Zahra

We love you forever Everleigh xx

6 days ago

$40

Caitlin Connolly

6 days ago