I’m fundraising in memory of Everleigh June .
Why I’m skipping
I’ve signed up to do 100 skips a day throughout August to raise money for Children’s Medical Research Institute in Honour of our beautiful Everleigh June. Everleigh was born with a rare genetic condition called WOREE Syndrome, with roughly only 200 cases documented worldwide.
WOREE Syndrome is a severe and relentless seizure disorder, Everleigh would experience 30-50 seizures every day. She was NGT dependant for all food & hydration. Required oxygen therapy, frequent suctioning, multiple medications daily including rescue medications and assistance with all aspects of her life as she was non-mobile and non-verbal.
Our biggest hope it that one day we can find a cure and stop any more suffering.
Everleigh put up the strongest fight, until 5 weeks before her 3rd birthday in 2024. Now every year we skip in her honour and raise funds, in the hope that one day we can find a cure and that no other children will have their childhood cut short.
Can you help by sharing this message with the people you know and asking them to donate too?
I care about the 1 in 20 Aussie kids who face a birth defect or genetic disease. So, the research you and I support today may one day help someone we know, someone in our family, someone like Everleigh.
There’s lots of work to do, but there is also lots of hope.
Join me. Share this message. Donate. Thank You!
I care about the 1 in 20 Aussie kids who face a birth defect or genetic disease. So, the research you and I support today may one day help someone we know, someone in our family, someone like Everleigh.
There’s lots of work to do, but there is also lots of hope.
Join me. Share this message. Donate. Thank You!
Raised so far
With your help, I have raised...
$120
You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!
Biggest Donor
Kayleigh Corbett
$60
Thank you so much to my biggest supporter, Kayleigh Corbett, for donating an incredible $60 to help fund vital research into curing children’s genetic diseases.
My Impact
So far this year, I've helped fund...
2
Hours of research
Every $50 raised funds an hour of vital research.
Thank you to our donors
$60
Matched Donation
2 days ago
$60
Kayleigh Corbett
2 days ago
