Everleigh’s Dream Team

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Welcome to Everleigh's Dream Team!

I’ve signed up to do 100 skips a day throughout August to raise money for Children’s Medical Research Institute on behalf of our beautiful daughter Everleigh.
 
Everleigh was born with a rare genetic condition called WOREE Syndrome, with roughly only 200 cases documented worldwide. 

WOREE Syndrome is a severe and relentless seizure disorder, Everleigh would experience 30-50 seizures every day. She was NGT dependant for all food & hydration. Required oxygen therapy,  frequent suctioning, multiple medications daily including rescue medications and assistance with all aspects of her life as she was non-mobile and non-verbal. 

Our biggest hope it that one day we can find a cure and stop any more suffering. 

Everleigh put up the strongest fight, until 5 weeks before her 3rd birthday in 2024. Now every year we skip in her honour and raise funds, in the hope that one day we can find a cure and that no other children will have their childhood cut short. 

Can you help by sharing this message with the people you know and asking them to donate too?

I care about the 1 in 20 Aussie kids who face a birth defect or genetic disease. So, the research you and I support today may one day help someone we know, someone in our family, someone like Everleigh. 

There’s lots of work to do, but there is also lots of hope.

Join me. Share this message. Donate. Thank You!

Raised so far

With your help, we have raised...

$6,188

You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!

Biggest Donor

Ruth Buttigieg

$238

Thank you so much to our biggest supporter, Ruth Buttigieg, for donating an incredible $238 to help fund vital research into curing children’s genetic diseases.

Our Impact

So far this year, we've helped fund...

124

Hours of research

Every $50 raised funds an hour of vital research.

Thank you to our Sponsors

$61

Sam Cole

Xx

4 hours ago

$61

Adam Penrose

I think its amazing what you guys are doing 🤍

4 hours ago

$61

Debbie Jones

Such an amazing fundraiser, honouring little Everleigh x

1 day ago

$55

Luke Johnston

Great work, You got this!

1 day ago

$61

Tiffany Leef

1 day ago

$24

Mel Ware

2 days ago

$61

Anna Kennelly

2 days ago

$40

Margaret Wallace

3 days ago

$55

Robyn Popham

You go GF Love 💜 your commitment

4 days ago

$24

Elspeth Thornton

4 days ago

$31

Joe

5 days ago

$24

Connie

Keep up the good work ☺️

6 days ago

$20

Karli

6 days ago

$12

G

Hope you have a change of knickers and a good sports bra for all that jumping lol

1 week ago

$39

Anonymous

1 week ago

$60

Ashton

Amazing work! 💚💚💚

1 week ago

$40

Jocelyn Bennett

You’re too good 😌 lots of love

1 week ago

$40

Janine D

Good on you Tayla x

1 week ago

$24

Anna Dhue

1 week ago

$38

Jack Mcdonald

Our hearts breaks for you. Love the little olive leaf community - Jack Summar and Banks .

2 weeks ago

$61

Siobhan Barrett

2 weeks ago

$12

Anonymous

2 weeks ago

$61

Regan Stuart

2 weeks ago

$61

Kirsten Costins

2 weeks ago

$30

Mj

Keep going legend! Love ya!

2 weeks ago

$52

Maddison De Bellis

2 weeks ago

$29

Roxy Abshar

Go girl !You are doing amazing!

2 weeks ago

$12

Nioka Branch

2 weeks ago

$107

Sarah

2 weeks ago

$117

Justin Wright

2 weeks ago

$107

Anonymous

2 weeks ago

$61

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$61

Anonymous

2 weeks ago

$24

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$24

Lauren Cusack

2 weeks ago

$40

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$40

Andrea

I am in awe of your dedication and strength 💕

2 weeks ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$50

Helen Rowley

2 weeks ago

$61

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$61

Rachel And Adam

3 weeks ago

$163

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$163

Sandy And Bells

Go gettem stacca!

3 weeks ago

$24

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$24

Mary Lynch

Awesome job Kayleigh

3 weeks ago

$20

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$20

Anonymous

3 weeks ago

$20

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$20

Anonymous

3 weeks ago

$20

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$20

Anonymous

3 weeks ago

$20

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$20

Anonymous

3 weeks ago

$61

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$61

Rachel Wallace

3 weeks ago

$45

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$45

Nicc

3 weeks ago

$238

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$238

Ruth Buttigieg

Evs would be sooo proud of her Mum and Dad and her village! 🥰🥰🥰

3 weeks ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$56

Sarah Simons

3 weeks ago

$34

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$34

Mel And Elijah Knox

We miss you beautiful Everleigh

3 weeks ago

$100

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$100

Sarah Squibb

Love always, from Ev’s bestie Brin x

3 weeks ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$56

Kirstyn Hush

3 weeks ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$50

Teghan Russell

Amazing work Stace!! 😍🩵

3 weeks ago

$107

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$107

Anonymous

Keep up the good work all the best from Dad

3 weeks ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$50

Pringle

3 weeks ago

$40

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$40

Sarah Overington

3 weeks ago

$200

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$200

Anonymous

3 weeks ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$56

Julian Zoe

3 weeks ago

$217

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$217

Anonymous

3 weeks ago

$61

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$61

Next Bite Feeding Therapy

In memory of darling Ev x

3 weeks ago

$55

Aimee

3 weeks ago

$24

Melinda Hansen

❤️❤️

3 weeks ago

$117

Sandra And Scott Mcmillan

Proud to support such an important cause. Well done!

3 weeks ago

$56

Pat Buttigieg

Love your work you guys ❤️

3 weeks ago

$24

Jordan Pola

3 weeks ago

$61

Chiedza Musara

Keep the spirit going . Changing the world , one jump at a time .

3 weeks ago

$20

Mark Cowling

Well done chum. Love seeing all you do. Keep going xx

3 weeks ago

$61

Michelle Mitchell

3 weeks ago

$35

Lauren Lawrence

Awesome work guys! ❤️

3 weeks ago

$40

Chris & Anne Doidge

3 weeks ago

$34

Ash Hendriks

Nice job Chlo

3 weeks ago

$110

Zahra

We love you forever Everleigh xx

3 weeks ago

$40

Caitlin Connolly

3 weeks ago

$39

Le Wilson

1 month ago

$60

Matched Donation

1 month ago

$60

Chloe Turner

1 month ago

$60

Matched Donation

1 month ago

$60

Kayleigh Corbett

1 month ago