Stacy Buttigieg

100 Skips a Day

My Skipping Progress

Total Skips

3,100 Skips

Goal

3,100 Skips

100% Complete
I'm doing 100 Skips a Day in Memory of Everleigh June πŸ’›
It’s that time of year again! Time to pull the skipping ropes out πŸƒπŸ»β€β™€οΈ

As many of you will be aware, our beautiful daughter Everleigh lost her battle with WOREE Syndrome in November last year, just before her 3rd birthday.Β 

Everleigh was diagnosed with WOREE Syndrome on the 23rd December 2022, nearly 12 months after her birth. Everleigh started having seizures within the first 24 hours of her life, which she would come to endure everyday for the rest of her life - there were no breaks! These catastrophic seizures would strip everything from her, until her little body was unable to cope anymore.Β 

Children affected by WOREE Syndrome display the following, but not limited to, symptoms in varying severity: refractory epilepsy, profound global developmental delays, severe cognitive impairment - they will never walk, talk, eat independently, toilet independently or live out any typical tasks on their own. Impacting every aspect of their lives and requiring 24:7 care.Β 

Most children with WOREE Syndrome will not live through to adulthood with an average life expectancy of just 2-4 years old.Β 

At present THERE IS NO CURE!Β 

This year we are skipping in honour of her. To help raise much needed funds for research into childhood genetic diseases. With the hope that one day, no child will have their childhood cut short and no family will have to endure the pain of losing a child.Β 

It's for a really important reason: I want to help the 1 in 20 kids facing a birth defect or genetic disease!Β 

Every dollar raised from my challenge goes to Children’s Medical Research Institute and helps find treatments and cures that will save children’s lives. Your support will change the future for children living with genetic diseases!

Will you support my challenge? Please donate to my fundraiser now!

Thank you to our Sponsors

$15

Elizabeth Altmann

1 month ago

$23

Pete Martin

1 month ago

$54

Graham Peggs

Sent with love and admiration

1 month ago

$33

Aunty Sass And Cousin Morgan

In memory of Cousin Everleigh

1 month ago

$54

Bec Payne

1 month ago

$561

Cafe Money Tins

1 month ago

$211

Midland Hiab & Haulage Pty Ltd

Well done Stacy!

1 month ago

$1.33k

Little Olive Leaf

1 month ago

$20

Mel & Elijah Knox

1 month ago

$23

Claire & Deon

What a wonderful way to remember and honour your beautiful girl πŸ’™

1 month ago

$12

Aurelne Elynne Lee

1 month ago

$12

Iggy&sha

Great work Stacy!

1 month ago

$33

Belinda Walker

1 month ago

$54

Suzie Brans

1 month ago

$12

Mel Ware

1 month ago

$106

Tiffany De Lafontaine

1 month ago

$12

Darrell Newsham

1 month ago

$106

Nicole Orton

Everleigh would be so proud of her Mama πŸ’›

1 month ago

$54

Michelle Mitchell

Our thoughts are always with you guys.

1 month ago

$20

Ally Tucker

1 month ago

$20

Lynette

1 month ago

$50

Joe

1 month ago

$32

Tahana Piper

1 month ago

$20

Ros Farrington

1 month ago

$106

Roscoe Librizzi

Great work Buttigieg’s

1 month ago

$20

Anonymous

1 month ago

$23

Chiedza Musara

1 month ago

$54

Cat Grewal

Go Stacy! Thinking of you, Everleigh and your family all the way in Ireland

1 month ago

$33

Logan Smith

1 month ago

$54

Jaeosha La Rosa

Go big girl Ev, we love you <3

1 month ago

$33

Laura Carter

1 month ago

$23

Emily Vilé

Go Stacy!!

1 month ago

$54

Toni Williamson

Hope you win, my fingers are crossed 🀞 ❀️

1 month ago

$54

Drumkeen Construction

πŸŠπŸ’œβœ¨

1 month ago

$33

Helen Sands

Well done Stacy.

1 month ago

$12

Margot Fleay

1 month ago

$54

Tropiano Family

1 month ago

$50

Sallyann Vuletic

You constantly leave me in awe superwoman! Everleigh was truly blessed that you and Angelo are her parents.

1 month ago

$106

Sue Gatt

Wishing you all the best on reaching your goal Stacey and for keeping your daughters legacy alive πŸ’™

1 month ago

$33

Kellie Fazioli

1 month ago

$54

Caitlin Connolly

1 month ago

$28

Georgia Braund

Go girl, for you, for Everleigh and for all those who can’t!

1 month ago

$30

Andrea Bear

2 months ago

$106

Brandon Hush

2 months ago

$211

Mimi Packer

2 months ago

$54

Sarah And Mitchell Overington

2 months ago

$23

Melissa Hatzi

2 months ago

$33

Abby & Matilda

2 months ago

$54

Deb Jones

2 months ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$58

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$58

Josh Mableson

2 months ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$54

Khrystel Santos

2 months ago

$106

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$106

Ash Jones

Great cause, hope this helps

2 months ago

$33

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$33

Pat Buttigieg

Great stuff Stacy. Everleigh will always be with us ❀️

2 months ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$54

Sandie Mcardell

2 months ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$53

Sam Cole

2 months ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$54

Rachel And Damon Wallace

In memory of Everleigh, such a fighter, in the hope research money can help future children and families.

2 months ago

$104

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$104

Karen Greenwood

πŸ™

2 months ago

$155

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$155

Sandy Williamson

Love Uncle Sandy & Aunty Bells πŸ’™

2 months ago

$53

Zahra Thoman

2 months ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$54

Kirstyn Hush

2 months ago

$264

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$264

Anonymous

2 months ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$50

Andrea Montgomery

Thank you Stacy.

2 months ago

$211

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$211

Anonymous

Proud of you Stacca!

2 months ago

$12

Haley Hovingh

2 months ago

$12

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$106

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$106

Ruth Buttigieg

Love you! Everleigh would be soooo proud of your dedication and commitment πŸ₯° as i am

2 months ago

$33

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$33

Jordie Hall

Love Jordie xx

2 months ago

$12

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$12

Anonymous

2 months ago

$106

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$106

Anonymous

Missing our girl every day πŸ’•

2 months ago

$54

Sarah Parks

Love Brin 🫢🏼

2 months ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$50

Nicole Cherubino

For all our rare disease babes - may tomorrow families get the answers sooner!

2 months ago

$32

Shea Tombrink

I think of your family often πŸ’ž Let's find a cure!!!

2 months ago

$158

Anonymous

Keep up Good work

2 months ago

$12

Elspeth Thornton

2 months ago

$54

Julian & Zoe

2 months ago

$33

Natalie Gardner

In honour of big girl Ev 🩷 your mummy & daddy are such an inspiration in this world x

2 months ago

$50

Teghan Russell

Amazing work skipping, making Everleigh proud πŸ’œ

2 months ago

$30

Ashton Herdman

πŸ’šπŸ’šπŸ’šπŸ’š

2 months ago

$50

Chris & Anne Doidge

In loving memory of Everleigh xxx

2 months ago

$54

Millie Jones

Missing reading you stories and your infectious smile. I hope you are dancing in the clouds big girl! Love ya always 🀍

2 months ago

$54

Stacy Buttigieg

3 months ago