Stacy Buttigieg

100 Skips a Day

My Skipping Progress

Total Skips

2,800 Skips

Goal

3,100 Skips

90.322580645161% Complete
I'm doing 100 Skips a Day in Memory of Everleigh June πŸ’›
It’s that time of year again! Time to pull the skipping ropes out πŸƒπŸ»β€β™€οΈ

As many of you will be aware, our beautiful daughter Everleigh lost her battle with WOREE Syndrome in November last year, just before her 3rd birthday.Β 

Everleigh was diagnosed with WOREE Syndrome on the 23rd December 2022, nearly 12 months after her birth. Everleigh started having seizures within the first 24 hours of her life, which she would come to endure everyday for the rest of her life - there were no breaks! These catastrophic seizures would strip everything from her, until her little body was unable to cope anymore.Β 

Children affected by WOREE Syndrome display the following, but not limited to, symptoms in varying severity: refractory epilepsy, profound global developmental delays, severe cognitive impairment - they will never walk, talk, eat independently, toilet independently or live out any typical tasks on their own. Impacting every aspect of their lives and requiring 24:7 care.Β 

Most children with WOREE Syndrome will not live through to adulthood with an average life expectancy of just 2-4 years old.Β 

At present THERE IS NO CURE!Β 

This year we are skipping in honour of her. To help raise much needed funds for research into childhood genetic diseases. With the hope that one day, no child will have their childhood cut short and no family will have to endure the pain of losing a child.Β 

It's for a really important reason: I want to help the 1 in 20 kids facing a birth defect or genetic disease!Β 

Every dollar raised from my challenge goes to Children’s Medical Research Institute and helps find treatments and cures that will save children’s lives. Your support will change the future for children living with genetic diseases!

Will you support my challenge? Please donate to my fundraiser now!

Thank you to our Sponsors

$54

Suzie Brans

50 minutes ago

$12

Mel Ware

14 hours ago

$106

Tiffany De Lafontaine

17 hours ago

$12

Darrell Newsham

1 day ago

$106

Nicole Orton

Everleigh would be so proud of her Mama πŸ’›

2 days ago

$54

Michelle Mitchell

Our thoughts are always with you guys.

5 days ago

$20

Ally Tucker

5 days ago

$20

Lynette

6 days ago

$50

Joe

1 week ago

$32

Tahana Piper

1 week ago

$20

Ros Farrington

1 week ago

$106

Roscoe Librizzi

Great work Buttigieg’s

1 week ago

$20

Anonymous

1 week ago

$23

Chiedza Musara

1 week ago

$54

Cat Grewal

Go Stacy! Thinking of you, Everleigh and your family all the way in Ireland

1 week ago

$33

Logan Smith

1 week ago

$54

Jaeosha La Rosa

Go big girl Ev, we love you <3

1 week ago

$33

Laura Carter

1 week ago

$23

Emily Vilé

Go Stacy!!

1 week ago

$54

Toni Williamson

Hope you win, my fingers are crossed 🀞 ❀️

1 week ago

$54

Drumkeen Construction

πŸŠπŸ’œβœ¨

1 week ago

$33

Helen Sands

Well done Stacy.

1 week ago

$12

Margot Fleay

1 week ago

$54

Tropiano Family

1 week ago

$50

Sallyann Vuletic

You constantly leave me in awe superwoman! Everleigh was truly blessed that you and Angelo are her parents.

1 week ago

$106

Sue Gatt

Wishing you all the best on reaching your goal Stacey and for keeping your daughters legacy alive πŸ’™

1 week ago

$33

Kellie Fazioli

1 week ago

$54

Caitlin Connolly

1 week ago

$28

Georgia Braund

Go girl, for you, for Everleigh and for all those who can’t!

2 weeks ago

$30

Andrea Bear

2 weeks ago

$106

Brandon Hush

2 weeks ago

$211

Mimi Packer

2 weeks ago

$54

Sarah And Mitchell Overington

2 weeks ago

$23

Melissa Hatzi

3 weeks ago

$33

Abby & Matilda

3 weeks ago

$54

Deb Jones

3 weeks ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$58

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$58

Josh Mableson

3 weeks ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$54

Khrystel Santos

3 weeks ago

$106

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$106

Ash Jones

Great cause, hope this helps

3 weeks ago

$33

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$33

Pat Buttigieg

Great stuff Stacy. Everleigh will always be with us ❀️

3 weeks ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$54

Sandie Mcardell

3 weeks ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$53

Sam Cole

3 weeks ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$54

Rachel And Damon Wallace

In memory of Everleigh, such a fighter, in the hope research money can help future children and families.

3 weeks ago

$104

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$104

Karen Greenwood

πŸ™

3 weeks ago

$155

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$155

Sandy Williamson

Love Uncle Sandy & Aunty Bells πŸ’™

3 weeks ago

$53

Zahra Thoman

3 weeks ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$54

Kirstyn Hush

3 weeks ago

$264

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$264

Anonymous

3 weeks ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$50

Andrea Montgomery

Thank you Stacy.

3 weeks ago

$211

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$211

Anonymous

Proud of you Stacca!

3 weeks ago

$12

Haley Hovingh

3 weeks ago

$12

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$106

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$106

Ruth Buttigieg

Love you! Everleigh would be soooo proud of your dedication and commitment πŸ₯° as i am

3 weeks ago

$33

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$33

Jordie Hall

Love Jordie xx

3 weeks ago

$12

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$12

Anonymous

3 weeks ago

$106

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$106

Anonymous

Missing our girl every day πŸ’•

3 weeks ago

$54

Sarah Parks

Love Brin 🫢🏼

3 weeks ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

3 weeks ago

$50

Nicole Cherubino

For all our rare disease babes - may tomorrow families get the answers sooner!

3 weeks ago

$32

Shea Tombrink

I think of your family often πŸ’ž Let's find a cure!!!

3 weeks ago

$158

Anonymous

Keep up Good work

3 weeks ago

$12

Elspeth Thornton

3 weeks ago

$54

Julian & Zoe

3 weeks ago

$33

Natalie Gardner

In honour of big girl Ev 🩷 your mummy & daddy are such an inspiration in this world x

3 weeks ago

$50

Teghan Russell

Amazing work skipping, making Everleigh proud πŸ’œ

3 weeks ago

$30

Ashton Herdman

πŸ’šπŸ’šπŸ’šπŸ’š

4 weeks ago

$50

Chris & Anne Doidge

In loving memory of Everleigh xxx

4 weeks ago

$54

Millie Jones

Missing reading you stories and your infectious smile. I hope you are dancing in the clouds big girl! Love ya always 🀍

1 month ago

$54

Stacy Buttigieg

2 months ago