Login
Login

Stacy Buttigieg

100 Skips a Day

Please Help Me
Reach My Goal

Raised

$4,044

My Goal

$5,000

Select amount to donate

$30
$50
$100
$200
$
Donate

All payments are secure & encrypted

My Skipping Progress

Total Skips

700 Skips

Goal

3,100 Skips

22.58064516129% Complete
I'm doing 100 Skips a Day in Memory of Everleigh June 💛
It’s that time of year again! Time to pull the skipping ropes out 🏃🏻‍♀️

As many of you will be aware, our beautiful daughter Everleigh lost her battle with WOREE Syndrome in November last year, just before her 3rd birthday. 

Everleigh was diagnosed with WOREE Syndrome on the 23rd December 2022, nearly 12 months after her birth. Everleigh started having seizures within the first 24 hours of her life, which she would come to endure everyday for the rest of her life - there were no breaks! These catastrophic seizures would strip everything from her, until her little body was unable to cope anymore. 

Children affected by WOREE Syndrome display the following, but not limited to, symptoms in varying severity: refractory epilepsy, profound global developmental delays, severe cognitive impairment - they will never walk, talk, eat independently, toilet independently or live out any typical tasks on their own. Impacting every aspect of their lives and requiring 24:7 care. 

Most children with WOREE Syndrome will not live through to adulthood with an average life expectancy of just 2-4 years old. 

At present THERE IS NO CURE! 

This year we are skipping in honour of her. To help raise much needed funds for research into childhood genetic diseases. With the hope that one day, no child will have their childhood cut short and no family will have to endure the pain of losing a child. 

It's for a really important reason: I want to help the 1 in 20 kids facing a birth defect or genetic disease! 

Every dollar raised from my challenge goes to Children’s Medical Research Institute and helps find treatments and cures that will save children’s lives. Your support will change the future for children living with genetic diseases!

Will you support my challenge? Please donate to my fundraiser now!

Thank you to our Sponsors

$23

Melissa Hatzi

1 day ago

$33

Abby & Matilda

1 day ago

$54

Deb Jones

1 day ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$58

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$58

Josh Mableson

1 day ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$54

Khrystel Santos

1 day ago

$106

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$106

Ash Jones

Great cause, hope this helps

1 day ago

$33

Matched Gift

Your donation has been doubled by our sponsors!

1 day ago

$33

Pat Buttigieg

Great stuff Stacy. Everleigh will always be with us ❤️

1 day ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

2 days ago

$54

Sandie Mcardell

2 days ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

2 days ago

$53

Sam Cole

2 days ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

2 days ago

$54

Rachel And Damon Wallace

In memory of Everleigh, such a fighter, in the hope research money can help future children and families.

2 days ago

$104

Matched Gift

Your donation has been doubled by our sponsors!

2 days ago

$104

Karen Greenwood

🙏

2 days ago

$155

Matched Gift

Your donation has been doubled by our sponsors!

2 days ago

$155

Sandy Williamson

Love Uncle Sandy & Aunty Bells 💙

2 days ago

$53

Zahra Thoman

2 days ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

2 days ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

2 days ago

$54

Kirstyn Hush

2 days ago

$264

Matched Gift

Your donation has been doubled by our sponsors!

2 days ago

$264

Anonymous

2 days ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

2 days ago

$50

Andrea Montgomery

Thank you Stacy.

2 days ago

$211

Matched Gift

Your donation has been doubled by our sponsors!

2 days ago

$211

Anonymous

Proud of you Stacca!

2 days ago

$12

Haley Hovingh

2 days ago

$12

Matched Gift

Your donation has been doubled by our sponsors!

2 days ago

$106

Matched Gift

Your donation has been doubled by our sponsors!

2 days ago

$106

Ruth Buttigieg

Love you! Everleigh would be soooo proud of your dedication and commitment 🥰 as i am

2 days ago

$33

Matched Gift

Your donation has been doubled by our sponsors!

2 days ago

$33

Jordie Hall

Love Jordie xx

2 days ago

$12

Matched Gift

Your donation has been doubled by our sponsors!

2 days ago

$12

Anonymous

2 days ago

$106

Matched Gift

Your donation has been doubled by our sponsors!

2 days ago

$106

Anonymous

Missing our girl every day 💕

2 days ago

$54

Sarah Parks

Love Brin 🫶🏼

2 days ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

2 days ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

2 days ago

$50

Nicole Cherubino

For all our rare disease babes - may tomorrow families get the answers sooner!

2 days ago

$32

Shea Tombrink

I think of your family often 💞 Let's find a cure!!!

4 days ago

$158

Anonymous

Keep up Good work

5 days ago

$12

Elspeth Thornton

6 days ago

$54

Julian & Zoe

6 days ago

$33

Natalie Gardner

In honour of big girl Ev 🩷 your mummy & daddy are such an inspiration in this world x

6 days ago

$50

Teghan Russell

Amazing work skipping, making Everleigh proud 💜

6 days ago

$30

Ashton Herdman

💚💚💚💚

1 week ago

$50

Chris & Anne Doidge

In loving memory of Everleigh xxx

1 week ago

$54

Millie Jones

Missing reading you stories and your infectious smile. I hope you are dancing in the clouds big girl! Love ya always 🤍

3 weeks ago

$54

Stacy Buttigieg

1 month ago