I’m fundraising in support of my friend.
97 km
of 200 km
So far I’ve completed 97 Ks for Kids this August
Why I’m Doing Ks for Kids
For Aurelia and Elle and fam!
Aurelia has a very rare genetic syndrome, SATB2 associated syndrome. Which affects her in so many ways.
Professor Leszek Lisowski leads the Translational Vectorology and Gene Therapy team at the Children's Medical Research Institute (CMRI), which is the organization behind the iconic Jeans for Genes fundraising campaign.
His work is focused on developing cutting-edge gene therapy tools to cure over 6,000 genetic diseases that affect children, including SATB2 associated syndrome. Instead of simply treating symptoms, Dr. Lisowski's team is designing custom delivery vehicles (like engineered viral vectors) to replace flawed genes or correct errors at the DNA level.
This research is super important, it will help so so many families and is particularly close to our hearts! Please donate if you can ❤️
For Aurelia and Elle and fam!
Aurelia has a very rare genetic syndrome, SATB2 associated syndrome. Which affects her in so many ways.
Professor Leszek Lisowski leads the Translational Vectorology and Gene Therapy team at the Children's Medical Research Institute (CMRI), which is the organization behind the iconic Jeans for Genes fundraising campaign.
His work is focused on developing cutting-edge gene therapy tools to cure over 6,000 genetic diseases that affect children, including SATB2 associated syndrome. Instead of simply treating symptoms, Dr. Lisowski's team is designing custom delivery vehicles (like engineered viral vectors) to replace flawed genes or correct errors at the DNA level.
This research is super important, it will help so so many families and is particularly close to our hearts! Please donate if you can ❤️
