I’m skipping to support fundraising for gene research that may one day help cure genetic conditions like CDKL5 deficiency disorder, which my beautiful friend Anna’s daughter, Adeline has.
Adeline had her first seizure at 2 weeks old. At 5 weeks old she was diagnosed with epilepsy with the cause unknown. Originally, the neurology team were hopeful Adeline would grow out of her seizures but at 11 months old her genetic results returned a result of CDKL5 Deficiency Disorder (CDD).
This is one of the most severe forms of epilepsy and has a devastating prognosis. The CDKL5 gene provides instructions for making proteins that are essential for normal brain and neuron development. It is one of the 'learning genes' and when it doesn't work properly, children suffer severe disability and retractable seizures, despite medication.
At just 6 years old, Adeline has endured more than most people could ever conceive of. And yet, through her parents' tireless advocacy and fundraising, she has already made a profound impact not just on her family and friends, but on families everywhere raising children with genetic conditions.
Every dollar raised in her name helps fund the gene research that may one day offer Adeline, and children like her, the chance at a cure. Please consider joining me in this commitment. Your donation adds to that hope and possibility of a better future for kids with genetic conditions, and becomes part of Adeline's living legacy ❤️
Raised so far
With your help, I have raised...
$3,397
You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!
Biggest Donor
Renee and fam
$117
Thank you so much to my biggest supporter, Renee and fam, for donating an incredible $117 to help fund vital research into curing children’s genetic diseases.
My Impact
So far this year, I've helped fund...
67
Hours of research
Every $50 raised funds an hour of vital research.
My Team Members
Renee Moles
Raised so far:
$124
Anna Pitman
Raised so far:
$5,660
james Reti
Raised so far:
$4,041
Chantel Heldt
Raised so far:
$702
Hannah Pierce
Raised so far:
$3,453
Michael Leith
Raised so far:
$2,561
Zoe Munce
Raised so far:
$361
Shaylee Munce
Raised so far:
$790
Vickie Lewis
Raised so far:
$1,279
Airlie Eastwood
Raised so far:
$680
Zoe Alvey
Raised so far:
$69
Allyce Wright
Raised so far:
$267
Mya James
Raised so far:
$383
Megan Fenwick
Raised so far:
$400
Angela Leta Kaye
Raised so far:
$1,085
Jarrad Raddon
Raised so far:
$1,491
Brittany Campo
kyle rodd
Raised so far:
$2,780
Olivia Ashworth
Raised so far:
$731
Luke Jackson
Raised so far:
$375
Ryleyy.a Alexander
Raised so far:
$271
Ailbe Bourke
Raised so far:
$174
Mizpah King
Raised so far:
$244
Maddie Swift
Raised so far:
$3,989
Melissa Goffredo
Raised so far:
$1,220
Karlie Johnston
Raised so far:
$375
Kristen Parrotte
Raised so far:
$40
Melissa Fletcher
Raised so far:
$220
Nicole and Indi Moutinho
Raised so far:
$720
Sally Ross
Raised so far:
$553
Joel Swift
Raised so far:
$817
Sharon Cois
Raised so far:
$2,344
Gabriela Raddon
Raised so far:
$3,397
Caralin Petersen
Raised so far:
$880
Leah Coutinho
Ronald Cordova
Raised so far:
$61
Matt Renshaw
Raised so far:
$385
Marijana Ravlich
Raised so far:
$3,923
Aimee Calkin
Raised so far:
$895
Tanika Berardis
Matteo Pugnaloni
Thank you to our donors
$61
Chris And Erica
Amazing work lovely- so sorry to hear about your friend, and hopeful that research will bring answers!
$35
Steph Turner
$35
Helen Evans
Get it girl
$24
Amy Climo
$107
Rebecca Hudson
$61
Anita Muller
$40
Elizabeth Carlino
What a great cause gabbie! Happy to support and good luck skipping each day!
$107
Shaylee Hohapata
$40
Nicole Pillinger
$29
Matched Gift
Your donation has been doubled by our sponsors!
$29
Sian White
$24
Matched Gift
Your donation has been doubled by our sponsors!
$24
Gamble Family
$117
Matched Gift
Your donation has been doubled by our sponsors!
$117
Renee And Fam
Yass tia Gaby <3
$40
Matched Gift
Your donation has been doubled by our sponsors!
$40
Kat Retallack
Can’t wait for the bloopers reel
$24
Matched Gift
Your donation has been doubled by our sponsors!
$24
Anonymous
Amo
$12
Anonymous
$12
Matched Gift
Your donation has been doubled by our sponsors!
$24
Matched Gift
Your donation has been doubled by our sponsors!
$24
Natasha Calley
$34
Brooke Hunter
You are amazing my friend! ♥️💫
$34
Matched Gift
Your donation has been doubled by our sponsors!
$25
Gina Goodrich
$25
Matched Gift
Your donation has been doubled by our sponsors!
$61
Matched Gift
Your donation has been doubled by our sponsors!
$61
Verity
$40
Matched Gift
Your donation has been doubled by our sponsors!
$40
Monique De Boer
💝👍
$61
Matched Gift
Your donation has been doubled by our sponsors!
$61
Stephanie Hawdon
Love from Ethan and Steph xx
$61
Matched Gift
Your donation has been doubled by our sponsors!
$61
Kim Eaton
$117
Matched Gift
Your donation has been doubled by our sponsors!
$117
Brendan White
Great cause Gabby!
$56
Matched Gift
Your donation has been doubled by our sponsors!
$56
Catherine & Brent Stein
Amazing work Gab xx
$61
Matched Gift
Your donation has been doubled by our sponsors!
$61
Claire Ciesla
$40
Matched Gift
Your donation has been doubled by our sponsors!
$40
Michelle Van Doorn
$56
Matched Gift
Your donation has been doubled by our sponsors!
$56
Javier Gonzales
$24
Matched Gift
Your donation has been doubled by our sponsors!
$24
Nat Watson
Best wishes to the family of the little fighter!
$117
Amy, Sam, Hazel & Luca
Keep up the amazing work doing your sexy skipping for a good cause - you’re an inspiration!
$117
Matched Gift
Your donation has been doubled by our sponsors!
$61
Matched Gift
Your donation has been doubled by our sponsors!
$61
Vilma Palacios
$56
Matched Gift
Your donation has been doubled by our sponsors!
$56
Kate Sawyer
Well done Gaby, a dollar for every skip (with matching yay!)! Bet your little bubba is going to wonder what mum is doing!
$117
Matched Gift
Your donation has been doubled by our sponsors!
$117
Cathy And Hugo Gonzales
Dear Gaby. Your Tio Hugo and Tia Cathy love you so much and are so proud of you. Your big heart, kindness and supportive nature for those you love is felt deeply especially for this worthy cause.
$61
Matched Gift
Your donation has been doubled by our sponsors!
$61
Hazlitt And Palacios's
$75
Matched Gift
Your donation has been doubled by our sponsors!
$75
Clare & Michiel Gonzales
$40
Abbie
$55
"Amazing work lovely- so sorry to hear about your friend, and hopeful that research will bring answers!"