I’m fundraising in support of my friend, Adeline.
Why I’m skipping
This August, I’m skipping for someone very special — and I’d love your support 💛
I’ve had the privilege of knowing Adeline since 2023, and she has been such an important part of my life since. Getting to know her and her incredible family has changed me in ways I didn’t expect. She shows strength in ways most of us will never have to, and even on her hardest days, there’s something about her that leaves a lasting impact on everyone around her.
Adeline lives with CDKL5 Deficiency Disorder (CDD), a rare and severe condition that causes relentless seizures and profound disability. She began having seizures at just two weeks old, and now at six years old, seizure-free days are incredibly rare.
Because of this, Adeline isn’t able to do the things many of us don’t even think twice about — sitting, standing, walking, talking, or seeing the world around her. She relies on support for every aspect of her daily life, and these things we take for granted are a dream for her.
Right now, there is no cure. But there is hope.
Gene therapy research is progressing, and while a treatment could still be years away, it will only happen if research continues to be funded. Fundraising isn’t just helpful, it’s essential, and it’s what drives the science forward, supporting families like Adeline’s, and bringing real possibilities closer to reality.
That’s why this matters so much.
This August, our team and I are committing to 100 skips every single day — because she can’t. It’s a small act, but it represents something much bigger: raising awareness, funding critical research, and fighting for a future where children like Adeline have more opportunities, more independence, and more life.
If you’re able to donate or even just share this, you’re making a real difference. No contribution is too small — every bit helps move us forward 🫶🏻
Raised so far
With your help, I have raised...
$107
You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!
Biggest Donor
Anna-Mieke O’Neill
$60
Thank you so much to my biggest supporter, Anna-Mieke O’Neill, for donating an incredible $60 to help fund vital research into curing children’s genetic diseases.
My Impact
So far this year, I've helped fund...
2
Hours of research
Every $50 raised funds an hour of vital research.
Thank you to our donors
$60
Anna-mieke O’neill
Good on you Ailbe it’s a great cause !
23 hours ago
$24
Matched Donation
2 days ago
$24
Ailbe Bourke
2 days ago
"Good on you Ailbe it’s a great cause !"