I’m fundraising in support of my son, Henry.
He is 1 of ~100 people in the world who has this specific condition, so it’s extremely rare.
The gene variation triggered a mitochondrial condition, which has affected the development of the white matter of his brain, and is the cause of his development delay. His brain is continually creating new neuro pathways to acquire new skills which is both really cool and extremely challenging to navigate his unique path in life.
Join me. Share this message. Donate. Thank You!
Raised so far
With your help, I have raised...
$919
You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!
Biggest Donor
Amanda Barry
$250
Thank you so much to my biggest supporter, Amanda Barry, for donating an incredible $250 to help fund vital research into curing children’s genetic diseases.
My Impact
So far this year, I've helped fund...
18
Hours of research
Every $50 raised funds an hour of vital research.
Thank you to our donors
$55
Matched Gift
Your donation has been doubled by our sponsors!
$55
Angela Perrin
Hope this skips you a bit closer to your fundraising goal!
$250
Matched Gift
Your donation has been doubled by our sponsors!
$250
Amanda Barry
Go Team Iddles, amazing work & a great cause x
$24
Louise F
$50
Sarah Mcveigh
Proud of you! You got this, go girl x
$60
Amanda Temperly
With loads of live…
$55
Danielle Close
You inspire me in so many ways Shon, we love you team Iddles
$60
Matched Donation
$60
"Your donation has been doubled by our sponsors!"