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Shon Iddles

100 Skips a Day 2026

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Reach My Goal

Raised

$285

My Goal

$1,000

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I’m fundraising in support of my son, Henry.

So far I have completed 0 skips in
August for kids with genetic diseases

Total Skips

0 Skips

Goal

3,100 Skips

Why I’m skipping
I’ve signed up to do 100 skips a day throughout August to raise money for Children’s Medical Research Institute and raise more awareness for genetic conditions. 

Henry has an official diagnosis of Leukoencephalopathy with thalamus and brainstem involvement and high lactate (LTBL) caused by pathogenic changes in the EARS2 gene. 

He is 1 of ~100 people in the world who has this specific condition, so it’s extremely rare.

The gene variation triggered a mitochondrial condition, which has affected the development of the white matter of his brain, and is the cause of his development delay. His brain is continually creating new neuro pathways to acquire new skills which is both really cool and extremely challenging to navigate his unique path in life.


Join me. Share this message. Donate. Thank You!

Raised so far

With your help, I have raised...

$285

You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!

Biggest Donor

Amanda Temperly

$60

Thank you so much to my biggest supporter, Amanda Temperly, for donating an incredible $60 to help fund vital research into curing children’s genetic diseases.

My Impact

So far this year, I've helped fund...

6

Hours of research

Every $50 raised funds an hour of vital research.

My Team Members

Thank you to our donors

$50

Sarah Mcveigh

Proud of you! You got this, go girl x

1 week ago

$60

Amanda Temperly

With loads of live…

1 week ago

$55

Danielle Close

You inspire me in so many ways Shon, we love you team Iddles

1 week ago

$60

Matched Donation

1 week ago

$60

Shon Iddles

1 week ago