Shon Iddles

100 Skips a Day 2026

I’m fundraising in support of my son, Henry.

So far I have completed 805 skips in
August for kids with genetic diseases

Total Skips

805 Skips

Goal

3,100 Skips

Why I’m skipping
I’ve signed up to do 100 skips a day throughout August to raise money for Children’s Medical Research Institute and raise more awareness for genetic conditions. 

Henry has an official diagnosis of Leukoencephalopathy with thalamus and brainstem involvement and high lactate (LTBL) caused by pathogenic changes in the EARS2 gene. 

He is 1 of ~100 people in the world who has this specific condition, so it’s extremely rare.

The gene variation triggered a mitochondrial condition, which has affected the development of the white matter of his brain, and is the cause of his development delay. His brain is continually creating new neuro pathways to acquire new skills which is both really cool and extremely challenging to navigate his unique path in life.


Join me. Share this message. Donate. Thank You!

Raised so far

With your help, I have raised...

$1,007

You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!

Biggest Donor

Amanda Barry

$250

Thank you so much to my biggest supporter, Amanda Barry, for donating an incredible $250 to help fund vital research into curing children’s genetic diseases.

My Impact

So far this year, I've helped fund...

20

Hours of research

Every $50 raised funds an hour of vital research.

Thank you to our donors

$88

Anonymous

1 week ago

$55

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$55

Angela Perrin

Hope this skips you a bit closer to your fundraising goal!

1 month ago

$250

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$250

Amanda Barry

Go Team Iddles, amazing work & a great cause x

1 month ago

$24

Louise F

1 month ago

$50

Sarah Mcveigh

Proud of you! You got this, go girl x

2 months ago

$60

Amanda Temperly

With loads of live…

2 months ago

$55

Danielle Close

You inspire me in so many ways Shon, we love you team Iddles

2 months ago

$60

Matched Donation

2 months ago

$60

Shon Iddles

2 months ago