I’m fundraising in support of my child, Ethan the Brave! Ethan is my gorgeous little man, who was diagnosed with MPS II (Hunter Syndrome) in August 2024. Despite the enormous challenges he has faced since his diagnosis, he never stops inspiring those around him to live life to the fullest. Nothing stands in Ethan's way of living his best life and bringing a smile to the faces of everyone he meets. Ethan teaches us that no matter what challenges life throws our way, we can choose how we face each day. He approaches everything with a huge smile, unwavering determination, and a genuine can do attitude. His strength shines through in everything he does, proving that even in the face of adversity, positivity and courage can make all the difference. .
Here's just one story explaining why this cause is so important:
Harrison was a healthy, active child, until one day out of the blue, “He wasn’t quite right, and then the next day he just stopped walking, and we knew something was very wrong,” said his father, Adam.
Doctors found something wrong with his blood, and when his parents were told it could be leukaemia “everything stopped.” As terrifying as that word was for them to hear, it got worse as Harrison’s case was unique, and it took many DNA tests to determine he had acute myeloid leukaemia (AML). They were lucky to get the right treatment after the right diagnosis, but it could have gone very differently if that work had not been done.
“Medical research is so important to get any answers for any genetic condition,” said his mum, Naomi. “For Harrison, the research done prior to him getting sick is what helped save our son. Research needs to continue so the next child diagnosed with a rare form of AML or any cancer—it can help them.”
I care about the 1 in 20 Aussie kids who face a birth defect or genetic disease, like cancer. Most people don’t know that cancer is caused by changes in genes—but almost everyone will be touched by it. So, the research you and I support today may one day help someone we know, someone in our family.
There’s lots of work to do, but there is also lots of hope.
Join me. Share this message. Donate. Thank You!
Raised so far
With your help, I have raised...
$1,065
You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!
Biggest Donor
David Strudwick
$212
Thank you so much to my biggest supporter, David Strudwick, for donating an incredible $212 to help fund vital research into curing children’s genetic diseases.
My Impact
So far this year, I've helped fund...
21
Hours of research
Every $50 raised funds an hour of vital research.
My Team Members
Jen Ming
Raised so far:
$970
Lara Mann
Raised so far:
$1,065
Phillipa Nairne
Raised so far:
$298
Tonia Stewart
Raised so far:
$611
Craig Mann
Raised so far:
$524
Elke West
Raised so far:
$545
Justine Bonner
Raised so far:
$143
Neil Singh
Raised so far:
$123
Allison Dee
Raised so far:
$772
Matthew Hughes
Carolina Bugedo
Christopher Hodkinson
Raised so far:
$235
Thank you to our donors
$61
Katie & Age
$35
Pippy Mann
I'll always protect you baby brother, you're the bravest boy I know xxx
$30
Mel, Zac, Zoe, Sonny Falkner
For Ethan the brave 💪🏼🦸🏼♂️💙
$24
Michele Mann
$61
Michelle Hilly
So happy to support this great cause & Ethan the Brave!!
$56
Karen Gavrilovich
Always on this journey with you 🥰
$100
Sam Moore
We love you Ethan!
$61
Tracey Leonard
$29
Colleen Black
Love to you guys
$56
Thalia
I love this.. Good Job Mumma & that Gorgeous big smile so inspiring, kick it’s butt Buddy 💪🏼💙
$100
Ariki W
So proud of you our little buddy!
$212
David Strudwick
The Struddy Buddies are so proud to support you and cheer you on as you skip for such an important cause. We’re all behind our little mate every step of the way and hope this helps make a difference 💙
$117
Aunty Titty
For the bravest little buddy I know 🥹💕 Xxxx
$61
Matched Donation
$61
