I’m fundraising in honour of my dad.
Why I’m skipping
I’ve signed up to do 100 skips a day throughout August to raise money for Children’s Medical Research Institute and help save more kids’ lives. Can you help by sharing this message with the people you know and asking them to donate too?I have a genetic condition called EEC syndrome, a form of Ectodermal Dysplasia. It has many complicated impacts on my body and means I've already had more than 20 surgeries. My Dad has the same condition, and my family is part of a national network of people with Ectodermal Dysplasia called ozED (www.ozed.org.au).
There is very little research focused on Ectodermal Dysplasia, so I am doing this to raise money for research.
I care about the 1 in 20 Aussie kids who face a birth defect or genetic disease, like ectodermal dysplasia and cancer. Most people don’t know that cancer is caused by changes in genes—but almost everyone will be touched by it. So, the research you and I support today may one day help someone we know, someone in our family.
There’s lots of work to do, but there is also lots of hope.
Join me. Share this message. Donate. Thank You!
There’s lots of work to do, but there is also lots of hope.
Join me. Share this message. Donate. Thank You!
Raised so far
With your help, I have raised...
$115
You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!
Biggest Donor
Nana
$60
Thank you so much to my biggest supporter, Nana, for donating an incredible $60 to help fund vital research into curing children’s genetic diseases.
My Impact
So far this year, I've helped fund...
2
Hours of research
Every $50 raised funds an hour of vital research.
Thank you to our donors
$55
Sarah
2 hours ago
$60
Nana
Well done sweetie- good on you
1 day ago
