Abbey O'Brien

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My Activity Tracking

104
kms

My target 100 kms

I’m fundraising in memory of someone.

104 km

of 100 km

So far I’ve completed 104 Ks for Kids this August

Why I’m Doing Ks for Kids

This August I’m running and walking 100 km for Jeans for Genes.

I’m doing it in memory a special little boy who left us too soon, Nikolai. Niko passed away in May 2026 at just 6 months old.  After his passing, his diagnosis was confirmed as NEMO deficiency, an extraordinarily rare genetic condition with only a handful of cases reported worldwide.

As well as for Niko - Both of my children have a rare genetic condition that affects their kidney health, making this cause even more personal. Rare diseases affect real children, real families, and every donation helps support research, diagnosis, and hope for the future.

🩵💛

Latest updates

13 Aug 2026 by Abbey O'Brien

Strava isn't linking to my page.

But I have proof of the runs /walks 🫶🏻 Just been adding manually

My Impact

So far this year I helped provide...

1

Hours of research

For every $50 raised, one hour of research is funded

Biggest Donor

Jean-ius Donor

$24

Thank you so much to my biggest supporter, Anonymous, for donating an incredible $24 to help fund vital research into curing children’s genetic diseases.

My Achievements

Raised so far

With your help, I have raised...

$49

You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!

Biggest Donor

Anonymous

$25

Thank you so much to my biggest supporter, Anonymous, for donating an incredible $25 to help fund vital research into curing children’s genetic diseases.

My Impact

So far this year, I've helped fund...

0

Hours of research

Every $50 raised funds an hour of vital research.

Thank you to our donors

$24

Anonymous

3 weeks ago

$25

Anonymous

1 month ago