A message from Sam and Matt x
In April this year, we welcomed our precious little Rudy into our family. Within the same week, he was diagnosed with Spinal Muscular Atrophy (SMA), a genetic condition that affects the nerves and muscles. The weeks and months that followed have been an emotional roller coaster!
We are incredibly grateful to be under the care of the amazing medical team at WHC and that Rudy has been able to access life-changing treatment. This treatment is only possible because of years of dedicated research into SMA and other genetic conditions.
Throughout the month of August, Matt and I will be taking part in the "Ks for Kids" fundraiser by walking 100ks to raise money for Jeans for Genes and help support the vital research required for children like Rudy in the future.
If you’re looking to support, either share our fundraiser or donate to our team page.
Much love!
In April this year, we welcomed our precious little Rudy into our family. Within the same week, he was diagnosed with Spinal Muscular Atrophy (SMA), a genetic condition that affects the nerves and muscles. The weeks and months that followed have been an emotional roller coaster!
We are incredibly grateful to be under the care of the amazing medical team at WHC and that Rudy has been able to access life-changing treatment. This treatment is only possible because of years of dedicated research into SMA and other genetic conditions.
Throughout the month of August, Matt and I will be taking part in the "Ks for Kids" fundraiser by walking 100ks to raise money for Jeans for Genes and help support the vital research required for children like Rudy in the future.
If you’re looking to support, either share our fundraiser or donate to our team page.
Much love!
All the very best to little Rudy