I’m fundraising in honour of my son, Benjamin.
14 km
of 60 km
So far I’ve completed 14 Ks for Kids this August
Why I’m Doing Ks for Kids
On the 30/4/2026 Hayden and I welcomed our beautiful baby boy Benjamin to our little family. An hour after birth he had a seizure, we were then rushed to Nepean hospital for further observation then ultimately transferred to Westmead children's hospital. Benji continued to have constant complex seizures along side myoclonic jerks confirmed by multiple EEGS. He was diagnosed with a rare genetic condition (he is the 4th person to have it), it is not detectable in the NIPT test and did not come from Hayden nor I. Benjamin will likely have significant global developmental delays. It is currently unclear if Benji will be able to roll over, sit up, crawl or walk, other people with this genetic condition have not been able so. Unfortunately this condition is life limiting, with our doctors thinking we will hopefully be able to get over a year with our beautiful boy.
So many children are born with scary life altering genetic conditions everyday, the more we learn about them through scientific research the closer we can get to understanding and treating said conditions.
We are thankful for all the tremendous support that has been shown to our family in this difficult time. Benjamin is so unbelievably loved, not only by his family but the community that surrounds him.
Hayden and I are doing the genes for genes walk this August to raise funds for genetic research. In honor of our beautiful Benjamin ❤️
On the 30/4/2026 Hayden and I welcomed our beautiful baby boy Benjamin to our little family. An hour after birth he had a seizure, we were then rushed to Nepean hospital for further observation then ultimately transferred to Westmead children's hospital. Benji continued to have constant complex seizures along side myoclonic jerks confirmed by multiple EEGS. He was diagnosed with a rare genetic condition (he is the 4th person to have it), it is not detectable in the NIPT test and did not come from Hayden nor I. Benjamin will likely have significant global developmental delays. It is currently unclear if Benji will be able to roll over, sit up, crawl or walk, other people with this genetic condition have not been able so. Unfortunately this condition is life limiting, with our doctors thinking we will hopefully be able to get over a year with our beautiful boy.
So many children are born with scary life altering genetic conditions everyday, the more we learn about them through scientific research the closer we can get to understanding and treating said conditions.
We are thankful for all the tremendous support that has been shown to our family in this difficult time. Benjamin is so unbelievably loved, not only by his family but the community that surrounds him.
Hayden and I are doing the genes for genes walk this August to raise funds for genetic research. In honor of our beautiful Benjamin ❤️
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