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I’m fundraising in support of my daughter, Frankie Jane.

Why I’m Supporting Jeans for Genes

Did you know that 1 in 20 Aussie kids are born with a genetic disease or birth defect? That’s one in every classroom!

This year, I’m taking part in Jeans for Genes to help fund the incredible scientists at Children’s Medical Research Institute, who are working today to change lives tomorrow.

Your donation will help keep labs running, research advancing, and hope alive for kids who need it most.

Together, we can make a difference.

Join me. Share this message. Donate. Thank you!

Latest updates

05 Aug 2026 by Amanda Constable-Hardy

TARGET UPDATE

Hello! I am raising the bar.... Thursday the 6th of August is DOUBLE DONATION day, meaning every dollar donated, is matched!

Jeans for Genes Double Donation Day

So I have increased our target and will be re sharing our story to try and increase the support!

21 Jul 2026 by Amanda Constable-Hardy

THANK YOU!

We reached our page goal to raise $750! I didn't think we would touch the sides!!

Thank you to those for your generosity! These donations are not just for Frankie, but all those babies, children's, adults and their loved ones who lives with genetic disorders.

We have raised money to support research

Thank you

I wonder how much more we can raise!!!

17 Jul 2026 by Amanda Constable-Hardy

Why this is important to us

💙 Jeans for Genes Day — Frankie’s Story

Every year, Jeans for Genes Day raises money to support research into childhood genetic conditions. This year, I’m sharing Frankie’s story — because genetics isn’t just science for us. It’s our everyday life, every appointment, every milestone, every challenge, and every triumph.

👶 Frankie’s Diagnosis

Frankie was born with rare chromosomal deletions on chromosome 11. These deletions remove multiple genes that are essential for growth, neurological development, sensory function, muscle tone, and cell regulation.

Her condition isn’t a single syndrome with a neat name. It’s a complex, multi‑gene disorder that affects her in unique ways. There are no other children worldwide with the same genetic profile, which means there is no roadmap — only research, monitoring, and hope.

🌈 How Her Genetics Affect Her Life

👁️ Vision Differences

Frankie has structural differences in both eyes that affect how she sees the world. She requires ongoing ophthalmology monitoring to protect her vision and support her development.

👂 Hearing Concerns

She has underdevelopment of the nerve responsible for hearing on her right side. This affects how she processes sound and contributes to her communication challenges.

🧠 Cranial Nerve VII & VIII Hypoplasia

Frankie has underdevelopment of two cranial nerves on the right side — nerves that control:

- facial movement

- feeding and swallowing

- hearing

- balance

These differences help to explain her facial asymmetry, feeding difficulties, sensory regulation challenges, and hearing issues.

🍽️ Complex Feeding Issues

Feeding has never been simple for Frankie. Because of her cranial nerve differences and muscle tone challenges, she works harder to chew, swallow, and coordinate eating safely. Mealtimes involve strategies, supports, and constant monitoring.

🗣️ Communication Delays

Frankie does not speak very many words. Her neurological and sensory differences make communication harder, but she expresses herself in her own ways — through gestures, sounds, facial expressions, and her incredible determination to sign language which we are all learning, to support her in communicating her wants and needs.

🧬 Cancer Predisposition

Some of the genes missing in Frankie’s deletions are involved in cell growth regulation. Because of this, she has a higher lifetime risk of certain cancers and will require ongoing monitoring throughout her life, which starts sooner than we would like to imagine.

This is one of the hardest parts of her diagnosis — knowing that vigilance will always be part of her future.

🧩 Development & Regulation

Her condition affects:

- muscle tone

- coordination

- sensory processing

- sleep

- emotional regulation

- learning

- growth

She works harder than most children her age, and she does it with extraordinary resilience.

👨‍👩‍👧 How It Affects Us as a Family

Having a child with a rare genetic condition means living in a world of:

- specialists

- therapies

- medical uncertainty

- advocacy

- research articles

- early intervention

- constant appointments

- fighting for recognition in systems that don’t understand rare disorders

But it also means celebrating every milestone — because we know how hard she works for each one. Frankie has taught us strength, patience, and the power of community.

💙 Why Donating Matters

Your donation to Jeans for Genes helps fund research that:

- Finds answers for rare, multi‑gene conditions like Frankie’s

- Improves diagnostics, so families get clarity sooner

- Develops treatments that can change children’s futures

- Supports genetic counselling, helping families navigate complex results

- Builds hope for kids who deserve every chance to thrive

Research is the reason families like ours get answers — and the reason future families will get even better ones.

👖 Join Us

If you can, please donate or share our page. Awareness is powerful, and research is life‑changing.

👉 Frankie’s Jeans for Genes page:

Donate on our link

Thank you for supporting our girl and every child living with a genetic condition. 💙

Latest donations

$ 117.43

Monica Swan donated at today

"Love and hugs to all"

$ 163.43

Dynon Family donated at today

"Research is so important in the search for answers, treatment and hopeful cure for precious children who deserve to live their lives without pain and fear of not fitting in."

$ 39.93

Sarah Hillier donated at today

$ 117.43

Matched Gift donated at 1 days ago

"Your donation has been doubled by our sponsors!"

$ 117.43

Dominic Ashfield donated at 1 days ago

$ 20

Matched Gift donated at 1 days ago

"Your donation has been doubled by our sponsors!"

$ 20

Anonymous donated at 1 days ago

$ 60.04

James Barns donated at 2 days ago

$ 60.04

Matched Gift donated at 2 days ago

"Your donation has been doubled by our sponsors!"

$ 60.04

Matched Gift donated at 2 days ago

"Your donation has been doubled by our sponsors!"

$ 60.04

Alexandra Lee donated at 2 days ago

$ 28.81

Matched Gift donated at 2 days ago

"Your donation has been doubled by our sponsors!"

$ 28.81

Kimley Vacher donated at 2 days ago

"You met your goal! Now lets go over it. :)"

$ 39.93

Matched Gift donated at 2 days ago

"Your donation has been doubled by our sponsors!"

$ 39.93

Michelle Dijksman donated at 2 days ago

$ 117.43

Matched Gift donated at 2 days ago

"Your donation has been doubled by our sponsors!"

$ 117.43

Danielle Horn donated at 2 days ago

$ 23.81

Matched Gift donated at 2 days ago

"Your donation has been doubled by our sponsors!"

$ 23.81

Rowena Troth donated at 2 days ago

$ 23.81

Matched Gift donated at 2 days ago

"Your donation has been doubled by our sponsors!"

$ 23.81

Dragana Milojevic donated at 2 days ago

$ 23.81

Matched Gift donated at 2 days ago

"Your donation has been doubled by our sponsors!"

$ 23.81

Casey Grocke donated at 2 days ago

$ 61.36

Matched Gift donated at 2 days ago

"Your donation has been doubled by our sponsors!"

$ 61.36

Sue Mitchell donated at 2 days ago

$ 11.92

Matched Gift donated at 2 days ago

"Your donation has been doubled by our sponsors!"

$ 11.92

Sarah Scholten donated at 2 days ago

$ 61.36

Matched Gift donated at 2 days ago

"Your donation has been doubled by our sponsors!"

$ 61.36

Leann Selfe donated at 2 days ago

$ 23.81

Tuyen Kieu donated at 2 days ago

$ 23.81

Matched Gift donated at 2 days ago

"Your donation has been doubled by our sponsors!"

$ 11.92

Matched Gift donated at 2 days ago

"Your donation has been doubled by our sponsors!"

$ 11.92

Anonymous donated at 2 days ago

$ 55.95

Matched Gift donated at 2 days ago

"Your donation has been doubled by our sponsors!"

$ 55.95

Kerry Clarke donated at 2 days ago

"Good luck and thank you for sharing your and Frankie's story. xx"

$ 106.75

Matched Gift donated at 2 days ago

"Your donation has been doubled by our sponsors!"

$ 106.75

Leanne Charman donated at 2 days ago

"Dearest Frankie, love GRANNY"

$ 61.36

Con D donated at 2 days ago

"Well done Amanda, keep going."

$ 61.36

Matched Gift donated at 2 days ago

"Your donation has been doubled by our sponsors!"

$ 215

Mister Shade donated at 2 weeks ago

"Best wishes to Frankie Mister Shade & Team"

$ 39.32

Kylie donated at 2 weeks ago

$ 39.32

Rhiannon donated at 3 weeks ago

$ 101.42

Facebook Donation donated at 3 weeks ago

$ 23.50

Sheridan Travis donated at 3 weeks ago

$ 60.13

Megan Lynch donated at 3 weeks ago

$ 65.39

Kate Simpson donated at 3 weeks ago

$ 54.84

Anonymous donated at 3 weeks ago

$ 55

Laura Scarborough donated at 3 weeks ago

$ 55.13

Matched Donation donated at 1 month ago

$ 55.13

Amanda Constable-hardy donated at 1 month ago

Funds raised over the years

Biggest Donor

Jean-ius Donor

$215

Thank you so much to my biggest supporter, Mister Shade, for donating an incredible $215 to help fund vital research into curing children’s genetic diseases.

Raised so far

With your help, I have raised...

$2,904

You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!

Biggest Donor

Mister Shade

$215

Thank you so much to my biggest supporter, Mister Shade, for donating an incredible $215 to help fund vital research into curing children’s genetic diseases.

My Impact

So far this year, I've helped fund...

58

Hours of research

Every $50 raised funds an hour of vital research.

My Team Members

Jean-ius Club

Member

Baking for genes

Raised so far:

$2,904

Jean-ius Club

Member

Team Frankie Q11

Raised so far:

$46

Kimley Vacher

You met your goal! Now lets go over it. :)

1 month ago

Baking for genes

Please Help MeReach My Goal

Raised

$2,904

My Goal

$2,000

Select amount to donate

I’m fundraising in support of my daughter, Frankie Jane.

Why I’m Supporting Jeans for Genes

Latest updates

TARGET UPDATE

THANK YOU!

Why this is important to us

Latest donations

Funds raised over the years

Biggest Donor

Jean-ius Donor

$215

My Team

$2,904.05

$46.04

Raised so far

$2,904

Biggest Donor

Mister Shade

$215

My Impact

58

Hours of research

My Team Members

Jean-ius Club

Baking for genes

Raised so far:

$2,904

Jean-ius Club

Team Frankie Q11

Raised so far:

$46

Thank you to my donors

Monica Swan

Dynon Family

Sarah Hillier

Matched Gift

Dominic Ashfield

Matched Gift

Anonymous

James Barns

Matched Gift

Matched Gift

Alexandra Lee

Matched Gift

Kimley Vacher

Matched Gift

Michelle Dijksman

Matched Gift

Danielle Horn

Matched Gift

Rowena Troth

Matched Gift

Dragana Milojevic

Matched Gift

Casey Grocke

Matched Gift

Sue Mitchell

Matched Gift

Sarah Scholten

Matched Gift

Leann Selfe

Tuyen Kieu

Matched Gift

Matched Gift

Anonymous

Matched Gift

Kerry Clarke

Matched Gift

Leanne Charman

Con D

Matched Gift

Mister Shade

Kylie

Please Help Me
Reach My Goal