Team Amelia

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Amelia’s Story: One in a million

Team Amelia is raising money for the incredible work being done at Children’s Medical Research Institute. Every donation will help kids like Alessia live a long and healthy life. Read more about her story below.

When Amelia was born, her parents knew something wasn’t right. 

She struggled to breathe. There was a hole in her heart. Her blood sugar levels and platelet count were dangerously low. 

Doctors knew something was wrong — but no one knew what. 

After months of uncertainty, genetic testing finally gave them an answer: Amelia had Kabuki Syndrome, a rare genetic condition that affects development, mobility, and life expectancy. 

Since then, Amelia has shown remarkable strength. She’s had intensive physio and occupational therapy, wears leg braces, and battles painful symptoms like brittle bones and frequent knee dislocations. 

But there is hope. 

Thanks to research by scientists like Dr Mark Graham at Children’s Medical Research Institute, new discoveries are being made that could transform the future for children with Kabuki Syndrome. 

Medical research is giving families answers, and children like Amelia a chance at a brighter future.

Donate now to help fund the research giving kids like Amelia the chance to live longer, healthier lives.

Raised so far

With your help, we have raised...

$15,260

You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!

Biggest Donor

Floraville Public School

$555

Thank you so much to our biggest supporter, Floraville Public School, for donating an incredible $555 to help fund vital research into curing children’s genetic diseases.

Our Impact

So far this year, we've helped fund...

305

Hours of research

Every $50 raised funds an hour of vital research.

Thank you to our donors

$340

Newcaslte Disc Golf Club

1 week ago

$23

Aditya Ghante Anantha Padmanabha

1 week ago

$23

Josh Daley

1 week ago

$200

Jhch

1 week ago

$500

Good One

You're awesome Amelia!

1 week ago

$5

Anonymous

1 week ago

$520

Newcastle Disc Golf

2 weeks ago

$12

Simon Smith

2 weeks ago

$12

Michael I

2 weeks ago

$12

Michael I

2 weeks ago

$49

Tillie Smith

2 weeks ago

$23

Ian Whittaker

2 weeks ago

$25

Mat Craig

2 weeks ago

$23

Jonathan Jonas

2 weeks ago

$17

Michael I

2 weeks ago

$44

Caitlin & Heath

You’re an absolute inspiration Amelia and family. Love Heath, Caitlin, Zahlia and Giselle xx

2 weeks ago

$70

Cypfs

2 weeks ago

$23

Bernadette Roberts

Hi Amelia Our little people at Little Cookies Early Learning Centre would like to donate to you in helping you with your treatment needs.

2 weeks ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$53

Fiona Bastian

2 weeks ago

$92

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$92

The Disability Trust Snowy Monaro

2 weeks ago

$12

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$12

Anonymous

2 weeks ago

$23

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$23

Kathryn Mateer

Go Amelia

2 weeks ago

$33

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$33

Jordan Harrison

What a great cause! So good to meet little Amelia today :)

2 weeks ago

$92

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$92

Elizabeth Mclaughlin

2 weeks ago

$57

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$57

Paula La Rosa

2 weeks ago

$51

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$51

Bec Ryan

Yayyy Team Amelia, great work 🫶🏾 We love you, from Olive and the Ryan Family x

2 weeks ago

$100

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$100

Cricklade Bowling Club

2 weeks ago

$100

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$100

Grandad Sarjent

2 weeks ago

$100

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$100

Nan Helyer

2 weeks ago

$6

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$6

Annabelle

Loved all the Double Denim on show today ☺️

2 weeks ago

$57

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$57

Jade H

2 weeks ago

$23

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$23

Anonymous

2 weeks ago

$23

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$23

Renee Smith

2 weeks ago

$23

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$23

Jess Gilbert

You looked fab darlin!

2 weeks ago

$33

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$33

Shaye O’connor

Go Amelia, you’re a superstar!!

2 weeks ago

$33

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$33

Samantha Stewart

2 weeks ago

$33

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$33

Anonymous

2 weeks ago

$23

Paulette Hamilton

2 weeks ago

$23

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$6

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$6

Anonymous

2 weeks ago

$110

Nanny Campbell

With love

2 weeks ago

$110

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$57

Karley Barnett

2 weeks ago

$57

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$86

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$86

Juanita

For you and everyone like you beautiful Amelia.

2 weeks ago

$6

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$6

Anonymous

2 weeks ago

$12

Finn And Grace Sibert

2 weeks ago

$12

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$6

Jade Boland

2 weeks ago

$6

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$92

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$92

Rebecca Dyson

2 weeks ago

$28

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$28

Melissa Murdoch

2 weeks ago

$17

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$17

Andrea Dapena

2 weeks ago

$13

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$13

Anonymous

2 weeks ago

$33

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$33

Tiffony Dillon

2 weeks ago

$252

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$252

Anonymous

2 weeks ago

$10

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$10

Anonymous

2 weeks ago

$28

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$28

Anonymous

2 weeks ago

$57

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$57

Nicole G

2 weeks ago

$23

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$23

Casey Wilson

2 weeks ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$54

Jo Dixon

Go your superstars keep working hard to find the answers and solutions so great kids like Amelia can reach their stars

2 weeks ago

$200

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$200

P&e Helyer

2 weeks ago

$12

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$12

Lomani Chivell

2 weeks ago

$57

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$57

Kate Obre

2 weeks ago

$23

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$23

Kim Hughes

2 weeks ago

$30

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$30

Brigid

2 weeks ago

$25

Liz Taggart

2 weeks ago

$25

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$33

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$33

Samantha Skarratts

2 weeks ago

$23

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$23

Lauren Oyston

2 weeks ago

$23

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$23

Kayla Perri

2 weeks ago

$6

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$6

Anonymous

2 weeks ago

$16

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$110

Jo

2 weeks ago

$16

The Disability Trust

2 weeks ago

$110

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$12

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$12

Taya

2 weeks ago

$57

Anonymous

Love you Meely

2 weeks ago

$57

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$57

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$57

Rachael Lee

2 weeks ago

$361

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$361

Susanna

Hope our donations help Amelia

2 weeks ago

$432

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$432

Floraville Public School

A huge thank you to our amazing school community for the fantastic fundraising efforts during today’s Jeans for Genes Day.

2 weeks ago

$6

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$6

Anonymous

2 weeks ago

$57

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$57

Pamela Lekkas

2 weeks ago

$12

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$12

Carly

2 weeks ago

$6

Anonymous

2 weeks ago

$6

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$86

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$86

Suzanne R

2 weeks ago

$15

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$15

Laura Tracey

2 weeks ago

$40

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$40

Emma Bryden

2 weeks ago

$12

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$12

Tina R

2 weeks ago

$44

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$44

Tdt Hunter

2 weeks ago

$23

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$23

Courtney Lewis

2 weeks ago

$23

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$23

Emma Cummings

2 weeks ago

$11

Lisa Phillips

2 weeks ago

$11

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$23

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$23

Candice Perrin

2 weeks ago

$78

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$78

Michal Brunt

2 weeks ago

$23

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$23

Anonymous

2 weeks ago

$57

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$57

Bec C

2 weeks ago

$12

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$12

Anonymous

2 weeks ago

$211

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$211

Siobhan Bouris

2 weeks ago

$6

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$6

Anonymous

2 weeks ago

$6

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$6

Clayton Smith

2 weeks ago

$23

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$23

Anonymous

2 weeks ago

$6

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$6

Anonymous

2 weeks ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$50

Anonymous

You're amazing Amelia.

2 weeks ago

$17

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$17

Anonymous

2 weeks ago

$12

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$12

Natalie Menzies

2 weeks ago

$33

Annalese Thomas

2 weeks ago

$33

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$12

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$12

Janelle Booth

2 weeks ago

$23

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$23

Anonymous

2 weeks ago

$12

Anonymous

2 weeks ago

$12

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$22

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$22

Paris Ditton

2 weeks ago

$6

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$6

Amy Coller

2 weeks ago

$400

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$400

Anonymous

Look at you go Amelia! You are making a difference girl! You should be so proud of yourself!

2 weeks ago

$6

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$6

Courtney Marsh

2 weeks ago

$17

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$5

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$17

Anonymous

2 weeks ago

$5

Anonymous

2 weeks ago

$6

Anonymous

2 weeks ago

$6

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$12

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$12

Lauren Cooke

2 weeks ago

$33

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$33

Taytae :)

💛💛💛

2 weeks ago

$6

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$6

Grace Roulston

2 weeks ago

$12

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$12

Lena Vestad Hansen

2 weeks ago

$23

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$23

Anonymous

2 weeks ago

$16

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$16

Claudia C

2 weeks ago

$200

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$200

Michael Helyer

2 weeks ago

$100

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$100

Anonymous

2 weeks ago

$23

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$23

Nicole Matthews

2 weeks ago

$6

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$6

Claudia Lowe

2 weeks ago

$25

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$25

Ria Quayle

2 weeks ago

$28

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$28

Karen Greentree

2 weeks ago

$17

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$17

Anonymous

2 weeks ago

$23

Anonymous

2 weeks ago

$10

Anonymous

2 weeks ago

$12

Susan Darby

2 weeks ago

$6

Liz Jennion

2 weeks ago

$23

Humphrey Mwenda

2 weeks ago

$23

Anonymous

Great support for worthy cause

2 weeks ago

$12

David Marshall

2 weeks ago

$12

Anonymous

2 weeks ago

$10

Ashleigh Fitzgerald

2 weeks ago

$54

Gerhard Bernauer

2 weeks ago

$23

Anonymous

2 weeks ago

$10

Kath Linsley

2 weeks ago

$30

Alison Peck

2 weeks ago

$23

Anonymous

2 weeks ago

$12

William Sands

2 weeks ago

$23

Anonymous

2 weeks ago

$10

Jill Johnston

3 weeks ago

$6

Alex Mccloy

3 weeks ago

$54

Marjorie Campbell

3 weeks ago

$54

Anonymous

Amelia rules

3 weeks ago

$54

Yana Bull

You are incredible Amelia, and so is your family! Keep kicking goals, much love 💕

3 weeks ago

$5

Anonymous

3 weeks ago

$23

Anonymous

3 weeks ago

$53

Ben Bourke

3 weeks ago

$12

Abigail Darcy

3 weeks ago

$20

Vicki Bennie

3 weeks ago

$57

Graham Cameron

3 weeks ago

$6

Anonymous

Go Amelia

3 weeks ago

$23

Anonymous

3 weeks ago

$555

Floraville Public School

From the students at Floraville Public School who donated a gold coin at today's fundraiser. We thank you all.

3 weeks ago

$6

Olivia Mccracken

On behalf of Noah, Isla and Benji

3 weeks ago

$23

Tarnia Richards

3 weeks ago

$33

Lee-ellen Robinson

3 weeks ago

$12

Anonymous

3 weeks ago

$5

Jennifer Miller

3 weeks ago

$12

Nash Anderson

3 weeks ago

$33

Spencer Tierney

3 weeks ago

$12

Profili Family

3 weeks ago

$12

Carly Craig

4 weeks ago

$12

Renae De Vries

Donation on behalf of Sofia de Vries (yr 5) and Harrison de Vries (yr 3)

4 weeks ago

$12

Liam Woodley Harris

4 weeks ago

$12

Sharni Shaw

4 weeks ago

$32

Alexandra H

1 month ago

$33

Nick Audet

1 month ago

$23

Karen Bennett

1 month ago

$23

Tayla Davis

1 month ago

$33

Neil Singh

1 month ago

$92

Erin Anderson

Go Amelia! We’re so proud of you 💪🏼

1 month ago

$110

Jonathan Jonas

1 month ago

$54

Joshua Gresham

1 month ago

$23

Sheridan Workman

2 months ago

$54

Carly Craig

You are so brave Amelia, with love from your friend Cohen

2 months ago

$54

Katie And Grace Willott

Amelia, you are amazing 💕✨⭐️

2 months ago

$106

Erica Helyer

2 months ago

$530

Anonymous

2 months ago

$57

Lee-anne Mccabe

2 months ago

$23

Mattingly Pamela

2 months ago

$110

Donna Robertson

Super proud of what you have achieved Amelia. You are one STRONG young lady 💜

2 months ago

$110

Scott Whelan

2 months ago