Team Amelia

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Amelia’s Story: One in a million

Team Amelia is raising money for the incredible work being done at Children’s Medical Research Institute. Every donation will help kids like Alessia live a long and healthy life. Read more about her story below.

When Amelia was born, her parents knew something wasn’t right. 

She struggled to breathe. There was a hole in her heart. Her blood sugar levels and platelet count were dangerously low. 

Doctors knew something was wrong — but no one knew what. 

After months of uncertainty, genetic testing finally gave them an answer: Amelia had Kabuki Syndrome, a rare genetic condition that affects development, mobility, and life expectancy. 

Since then, Amelia has shown remarkable strength. She’s had intensive physio and occupational therapy, wears leg braces, and battles painful symptoms like brittle bones and frequent knee dislocations. 

But there is hope. 

Thanks to research by scientists like Dr Mark Graham at Children’s Medical Research Institute, new discoveries are being made that could transform the future for children with Kabuki Syndrome. 

Medical research is giving families answers, and children like Amelia a chance at a brighter future.

Donate now to help fund the research giving kids like Amelia the chance to live longer, healthier lives.

Raised so far

With your help, we have raised...

$2,638

You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!

Biggest Donor

Floraville Public School

$555

Thank you so much to our biggest supporter, Floraville Public School, for donating an incredible $555 to help fund vital research into curing children’s genetic diseases.

Our Impact

So far this year, we've helped fund...

53

Hours of research

Every $50 raised funds an hour of vital research.

Thank you to our donors

$23

Anonymous

17 minutes ago

$12

William Sands

3 hours ago

$23

Anonymous

5 hours ago

$10

Jill Johnston

1 day ago

$6

Alex Mccloy

1 day ago

$54

Marjorie Campbell

2 days ago

$54

Anonymous

Amelia rules

2 days ago

$54

Yana Bull

You are incredible Amelia, and so is your family! Keep kicking goals, much love 💕

3 days ago

$5

Anonymous

3 days ago

$23

Anonymous

4 days ago

$53

Ben Bourke

4 days ago

$12

Abigail Darcy

4 days ago

$20

Vicki Bennie

4 days ago

$57

Graham Cameron

4 days ago

$6

Anonymous

Go Amelia

4 days ago

$23

Anonymous

6 days ago

$555

Floraville Public School

From the students at Floraville Public School who donated a gold coin at today's fundraiser. We thank you all.

1 week ago

$6

Olivia Mccracken

On behalf of Noah, Isla and Benji

1 week ago

$23

Tarnia Richards

1 week ago

$33

Lee-ellen Robinson

1 week ago

$12

Anonymous

1 week ago

$5

Jennifer Miller

1 week ago

$12

Nash Anderson

1 week ago

$33

Spencer Tierney

1 week ago

$12

Profili Family

1 week ago

$12

Carly Craig

1 week ago

$12

Renae De Vries

Donation on behalf of Sofia de Vries (yr 5) and Harrison de Vries (yr 3)

1 week ago

$12

Liam Woodley Harris

1 week ago

$12

Sharni Shaw

1 week ago

$32

Alexandra H

1 week ago

$33

Nick Audet

2 weeks ago

$23

Karen Bennett

2 weeks ago

$23

Tayla Davis

4 weeks ago

$33

Neil Singh

4 weeks ago

$92

Erin Anderson

Go Amelia! We’re so proud of you 💪🏼

4 weeks ago

$110

Jonathan Jonas

1 month ago

$54

Joshua Gresham

1 month ago

$23

Sheridan Workman

1 month ago

$54

Carly Craig

You are so brave Amelia, with love from your friend Cohen

1 month ago

$54

Katie And Grace Willott

Amelia, you are amazing 💕✨⭐️

1 month ago

$106

Erica Helyer

1 month ago

$530

Anonymous

2 months ago

$57

Lee-anne Mccabe

2 months ago

$23

Mattingly Pamela

2 months ago

$110

Donna Robertson

Super proud of what you have achieved Amelia. You are one STRONG young lady 💜

2 months ago

$110

Scott Whelan

2 months ago