I’m fundraising in honour of my daughter, Addison.
So far I have completed 0 skips in
August for kids with genetic diseases
Total Skips
0 Skips
Goal
3,100 Skips
I'm skipping to help all families, like us, impacted by genetic conditions
I’ve signed up to do 100 skips a day throughout August to raise money for Jeans for Gene's. It's been a while since I've done a fundraiser in Addison’s memory, and I could do with the exercise 😂
I'm doing this for 2 reasons.
Reason 1 - As some of you know, Addison passed away from a mitochondrial genetic condition. For a few years after she passed, we did testing with an incredible geneticist, and we have always held out hope that further testing would give us a more definitive answer. Unfortunately there just hasn't been one yet. We still fundraise in the hope other couples can get an answer, even if we don't. We are sure the research that has been completed, will one day help a family going through the same as we did.
We will forever have a part of our hearts missing.
Reason 2 - I have an incredible woman in my life who has a rare condition and has had to face the reality of being not fully understood by Drs or specialists, until you find the right one. She is strong and amazing and I can only hope to be half the woman she is.
Thank You!