Stacy Buttigieg

100 Skips a Day

My Skipping Progress

Total Skips

3,100 Skips

Goal

3,100 Skips

100% Complete
I'm doing 100 Skips a Day in Memory of Everleigh June πŸ’›
It’s that time of year again! Time to pull the skipping ropes out πŸƒπŸ»β€β™€οΈ

As many of you will be aware, our beautiful daughter Everleigh lost her battle with WOREE Syndrome in November last year, just before her 3rd birthday.Β 

Everleigh was diagnosed with WOREE Syndrome on the 23rd December 2022, nearly 12 months after her birth. Everleigh started having seizures within the first 24 hours of her life, which she would come to endure everyday for the rest of her life - there were no breaks! These catastrophic seizures would strip everything from her, until her little body was unable to cope anymore.Β 

Children affected by WOREE Syndrome display the following, but not limited to, symptoms in varying severity: refractory epilepsy, profound global developmental delays, severe cognitive impairment - they will never walk, talk, eat independently, toilet independently or live out any typical tasks on their own. Impacting every aspect of their lives and requiring 24:7 care.Β 

Most children with WOREE Syndrome will not live through to adulthood with an average life expectancy of just 2-4 years old.Β 

At present THERE IS NO CURE!Β 

This year we are skipping in honour of her. To help raise much needed funds for research into childhood genetic diseases. With the hope that one day, no child will have their childhood cut short and no family will have to endure the pain of losing a child.Β 

It's for a really important reason: I want to help the 1 in 20 kids facing a birth defect or genetic disease!Β 

Every dollar raised from my challenge goes to Children’s Medical Research Institute and helps find treatments and cures that will save children’s lives. Your support will change the future for children living with genetic diseases!

Will you support my challenge? Please donate to my fundraiser now!

Thank you to our Sponsors

$15

Elizabeth Altmann

2 weeks ago

$23

Pete Martin

2 weeks ago

$54

Graham Peggs

Sent with love and admiration

2 weeks ago

$33

Aunty Sass And Cousin Morgan

In memory of Cousin Everleigh

2 weeks ago

$54

Bec Payne

2 weeks ago

$561

Cafe Money Tins

2 weeks ago

$211

Midland Hiab & Haulage Pty Ltd

Well done Stacy!

2 weeks ago

$1.33k

Little Olive Leaf

2 weeks ago

$20

Mel & Elijah Knox

2 weeks ago

$23

Claire & Deon

What a wonderful way to remember and honour your beautiful girl πŸ’™

2 weeks ago

$12

Aurelne Elynne Lee

2 weeks ago

$12

Iggy&sha

Great work Stacy!

2 weeks ago

$33

Belinda Walker

2 weeks ago

$54

Suzie Brans

2 weeks ago

$12

Mel Ware

2 weeks ago

$106

Tiffany De Lafontaine

2 weeks ago

$12

Darrell Newsham

2 weeks ago

$106

Nicole Orton

Everleigh would be so proud of her Mama πŸ’›

2 weeks ago

$54

Michelle Mitchell

Our thoughts are always with you guys.

3 weeks ago

$20

Ally Tucker

3 weeks ago

$20

Lynette

3 weeks ago

$50

Joe

3 weeks ago

$32

Tahana Piper

3 weeks ago

$20

Ros Farrington

3 weeks ago

$106

Roscoe Librizzi

Great work Buttigieg’s

3 weeks ago

$20

Anonymous

3 weeks ago

$23

Chiedza Musara

3 weeks ago

$54

Cat Grewal

Go Stacy! Thinking of you, Everleigh and your family all the way in Ireland

3 weeks ago

$33

Logan Smith

3 weeks ago

$54

Jaeosha La Rosa

Go big girl Ev, we love you <3

3 weeks ago

$33

Laura Carter

3 weeks ago

$23

Emily Vilé

Go Stacy!!

3 weeks ago

$54

Toni Williamson

Hope you win, my fingers are crossed 🀞 ❀️

3 weeks ago

$54

Drumkeen Construction

πŸŠπŸ’œβœ¨

3 weeks ago

$33

Helen Sands

Well done Stacy.

4 weeks ago

$12

Margot Fleay

4 weeks ago

$54

Tropiano Family

4 weeks ago

$50

Sallyann Vuletic

You constantly leave me in awe superwoman! Everleigh was truly blessed that you and Angelo are her parents.

4 weeks ago

$106

Sue Gatt

Wishing you all the best on reaching your goal Stacey and for keeping your daughters legacy alive πŸ’™

4 weeks ago

$33

Kellie Fazioli

4 weeks ago

$54

Caitlin Connolly

4 weeks ago

$28

Georgia Braund

Go girl, for you, for Everleigh and for all those who can’t!

1 month ago

$30

Andrea Bear

1 month ago

$106

Brandon Hush

1 month ago

$211

Mimi Packer

1 month ago

$54

Sarah And Mitchell Overington

1 month ago

$23

Melissa Hatzi

1 month ago

$33

Abby & Matilda

1 month ago

$54

Deb Jones

1 month ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$58

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$58

Josh Mableson

1 month ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$54

Khrystel Santos

1 month ago

$106

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$106

Ash Jones

Great cause, hope this helps

1 month ago

$33

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$33

Pat Buttigieg

Great stuff Stacy. Everleigh will always be with us ❀️

1 month ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$54

Sandie Mcardell

1 month ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$53

Sam Cole

1 month ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$54

Rachel And Damon Wallace

In memory of Everleigh, such a fighter, in the hope research money can help future children and families.

1 month ago

$104

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$104

Karen Greenwood

πŸ™

1 month ago

$155

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$155

Sandy Williamson

Love Uncle Sandy & Aunty Bells πŸ’™

1 month ago

$53

Zahra Thoman

1 month ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$54

Kirstyn Hush

1 month ago

$264

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$264

Anonymous

1 month ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$50

Andrea Montgomery

Thank you Stacy.

1 month ago

$211

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$211

Anonymous

Proud of you Stacca!

1 month ago

$12

Haley Hovingh

1 month ago

$12

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$106

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$106

Ruth Buttigieg

Love you! Everleigh would be soooo proud of your dedication and commitment πŸ₯° as i am

1 month ago

$33

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$33

Jordie Hall

Love Jordie xx

1 month ago

$12

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$12

Anonymous

1 month ago

$106

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$106

Anonymous

Missing our girl every day πŸ’•

1 month ago

$54

Sarah Parks

Love Brin 🫢🏼

1 month ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$50

Nicole Cherubino

For all our rare disease babes - may tomorrow families get the answers sooner!

1 month ago

$32

Shea Tombrink

I think of your family often πŸ’ž Let's find a cure!!!

1 month ago

$158

Anonymous

Keep up Good work

1 month ago

$12

Elspeth Thornton

1 month ago

$54

Julian & Zoe

1 month ago

$33

Natalie Gardner

In honour of big girl Ev 🩷 your mummy & daddy are such an inspiration in this world x

1 month ago

$50

Teghan Russell

Amazing work skipping, making Everleigh proud πŸ’œ

1 month ago

$30

Ashton Herdman

πŸ’šπŸ’šπŸ’šπŸ’š

1 month ago

$50

Chris & Anne Doidge

In loving memory of Everleigh xxx

1 month ago

$54

Millie Jones

Missing reading you stories and your infectious smile. I hope you are dancing in the clouds big girl! Love ya always 🀍

1 month ago

$54

Stacy Buttigieg

2 months ago