Stacy Buttigieg

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My Activity Tracking

2
kms

My target 6 kms

Why I’m doing Jeans for Genes

As many of you already know, in December 2022 our daughter Everleigh was diagnosed with a rare genetic mutation - WOREE Syndrome. 


WWOX - related epileptic encephalopathy syndrome is a neurodevelopment disorder characterised by uncontrolled seizures, severe developmental delay, vision impairment and abnormally low muscle tone. Children have poor or no neck control, few to no voluntary movements and they are not able to sit upright unassisted. While also having significant feeding issue and a high risk of aspirating fluids. 


The diagnoses itself is debilitating, Everleigh will never be able to voluntarily move, crawl, or eat unassisted and devastatingly having a shortened life. 


There is no cure for WOREE Syndrome, only treatment to help manage some of the symptoms. Hopefully one day, this will include gene therapy. 


WOREE Syndrome is so rare, there are less than 150 cases documented world wide. 


I care about the 1 in 20 Aussie kids who face a birth defect or genetic disease. That’s one in every classroom, maybe someone you know or love. Every day, many of these kids wake up to pills, injections, hospital visits (or worse). They never get the chance to run around and just be kids. If they can endure that, and keep smiling, then the least I can do is fight alongside them. That’s why I’m doing Jeans for Genes and raising money for Children’s Medical Research Institute. I want to give these kids better treatments and maybe even a cure.

I’ve signed up to do my own thing, so I can raise awareness and start the conversation—we need to do all we can to help save more kids’ lives. Can you help by sharing this message with the people you know and asking them to donate too? I (and millions of Aussie kids) thank you for it!

So, the research you and I support today may one day help someone we know, someone in our family.

There’s lots of work to do, but there is also lots of hope.

Join me. Share this message. Donate. Thank You!

My Impact

So far this year I helped provide...

123

Hours of research

For every $55 raised, one hour of research is funded

My Team Members

Jean-ius Club
Member

Renee Moles

Raised so far:

$91

Jean-ius Club
Member

Anna Pitman

Raised so far:

$2,031

Jean-ius Club
Member

Rhi Harby

Raised so far:

$50

Jean-ius Club
Member

james Reti

Raised so far:

$5,286

Jean-ius Club
Member

Nicole Heffernan

Raised so far:

$239

Jean-ius Club
Member

Chantel Heldt

Raised so far:

$1,051

Jean-ius Club
Member

Jeans for Genes Cupcakes

Raised so far:

$704

Jean-ius Club
Member

Momoko Combs

Jean-ius Club
Member

Stacy Buttigieg

Raised so far:

$6,762

Jean-ius Club
Member

Hannah Pierce

Raised so far:

$1,356

Jean-ius Club
Member

Emily Goodhew

Jean-ius Club
Member

Cristina Darbyshire

Raised so far:

$674

Jean-ius Club
Member

Jessica Blight

Raised so far:

$21

Jean-ius Club
Member

Hayley McCrisken

Jean-ius Club
Member

Olivia Day

Jean-ius Club
Member

Alana Martinovich

Jean-ius Club
Member

Michael Leith

Raised so far:

$784

Jean-ius Club
Member

Lea Happes

Raised so far:

$156

Jean-ius Club
Member

Lia Tapper

Raised so far:

$1,520

Jean-ius Club
Member

Morag Leith

Raised so far:

$1,636

Jean-ius Club
Member

Faye Denty

Raised so far:

$3,000

Jean-ius Club
Member

Adrian Cois

Raised so far:

$264

Jean-ius Club
Member

Samantha Cole

Raised so far:

$541

Jean-ius Club
Member

Maddie Cois

Raised so far:

$188

Jean-ius Club
Member

Paige Holmes

Raised so far:

$481

Jean-ius Club
Member

Zoe Munce

Raised so far:

$241

Jean-ius Club
Member

Shaylee Munce

Raised so far:

$133

Jean-ius Club
Member

Mel and Lou

Raised so far:

$678

Jean-ius Club
Member

Vickie Lewis

Raised so far:

$1,076

Jean-ius Club
Member

Lani Jackson

Raised so far:

$500

Jean-ius Club
Member

Renee Stobaus

Raised so far:

$310

Jean-ius Club
Member

Armitage Medical Centre

Raised so far:

$112

Jean-ius Club
Member

Katie Fubbs

Raised so far:

$704

Jean-ius Club
Member

Lee Stewart

Raised so far:

$320

Thank you to our Sponsors

$56

Lauren Mullan

What an awesome mum you are to your beautiful girl!

2 weeks ago

$91

Lucy Lam

1 month ago

$208

Precise Massage

We are eternally grateful for the time and effort you gave the clinic whilst being a truly inspirational mum to Everleigh. Keeping you in our thoughts and prayers and wishing you all the best.

1 month ago

$91

Kalinda Green

1 month ago

$11

Lizzie

Amazing effort ! I bet your calves are burning!

1 month ago

$56

Regan

1 month ago

$26

Emily Taylor

1 month ago

$50

F45 Kardinya Money Tin

1 month ago

$56

Danni Astbury

Sending lots of love and strength to you and your family Stacy xxx

1 month ago

$21

Nicky Stott

You are the strongest and bravest mumma I know!

1 month ago

$32

Anonymous

1 month ago

$55

Sam & Amy Perkin

❤️❤️

1 month ago

$11

Nicole Hush

1 month ago

$211

James

1 month ago

$56

Shawn Heil

Your an incredible mum to Everleigh. She has the best supper in you and your family! Thanking of you always 🧡

1 month ago

$110

Julie Bolton

1 month ago

$91

Anonymous

1 month ago

$62

Kirstyn Hush

1 month ago

$158

Yogi And Emma Melvin

Have loved your posts each day and your support for your cause 😘

1 month ago

$53

Sandy Williamson

Get it stacca! Proud of you Love Sandy and bells

1 month ago

$56

Alysha Hardy

1 month ago

$32

Anonymous

1 month ago

$53

Rachel Miller

🤍🤍🤍

1 month ago

$208

Mcfadden Kids

Love you guys

1 month ago

$91

Little Olive Leaf Cafe

Coin tin

1 month ago

$108

Fiona Lewis

Love & support to you all 🩷Xx

1 month ago

$56

Toni Williamson

Amazing effort Stacy❤️

1 month ago

$55

Lucy Bleechmore

1 month ago

$53

Anonymous

Amazing stuff you and Ange are doing Stace! Everleigh is so lucky to have folks like you!

1 month ago

$55

Rach G

1 month ago

$21

Janine Spencer

1 month ago

$21

Nicole Hush

1 month ago

$600

Little Olive Leaf

1 month ago

$55

Nicola Proud

1 month ago

$21

Rachael Ferreira

💕

1 month ago

$104

Michelle Rebola

Hey Stacey and Angelo, sending you guys so much love and hugs to you all. Sending Everleigh so much love and healing xox So much love from Chelle and JD xox ❤️

1 month ago

$208

Anonymous

1 month ago

$21

Anonymous

Nice skipping at the Olive leaf cafe All the best with your fundraiser

1 month ago

$56

Jorge Quezada

1 month ago

$11

Anonymous

1 month ago

$32

Dean & Kelloe

1 month ago

$16

Anonymous

1 month ago

$55

Anonymous

1 month ago

$27

Hannah's House Morning Tea

Thanks for making our morning tea extra fun by letting us join your skipping challenge. Go Stacy, Everleigh, Sarah and Brinley.

1 month ago

$50

Happy Dots

1 month ago

$56

Jo And Brett Doncon

Great cause Stacey x

1 month ago

$56

Anonymous

1 month ago

$26

Megan And Oskie

Go June bug ! You’re an incredible mum

1 month ago

$56

Belinda

Fig

1 month ago

$21

Anonymous

1 month ago

$56

Sarah Overington

1 month ago

$89

Cheryl And Grayden Lang

2 months ago

$55

Jeans For Genes

Your donation has been doubled

2 months ago

$55

Amanda Maguire

2 months ago

$56

Jeans For Genes

Your donation has been doubled

2 months ago

$56

Brandon Hush

Go stacca

2 months ago

$31

Jeans For Genes

Your donation has been doubled

2 months ago

$31

Caris & Ziad

2 months ago

$110

Jeans For Genes

Your donation has been doubled

2 months ago

$110

Steph, Adrian, Sienna & Ava Ricciardello

2 months ago

$26

Jeans For Genes

Your donation has been doubled

2 months ago

$26

Number Two

To the woman I look up to. You inspire me every day xx

2 months ago

$52

Jeans For Genes

Your donation has been doubled

2 months ago

$52

Kirstyn Hush

2 months ago

$89

Jeans For Genes

Your donation has been doubled

2 months ago

$89

Tori Rowden

2 months ago

$260

Jeans For Genes

Your donation has been doubled

2 months ago

$260

Anonymous

2 months ago

$16

Jeans For Genes

Your donation has been doubled

2 months ago

$16

Jordyn Farrelly

Go Girls!!! ✨

2 months ago

$56

Jeans For Genes

Your donation has been doubled

2 months ago

$56

Stacy Buttigieg

2 months ago

$21

Teghan Russell

Go Stace 💪🏽

2 months ago

$21

Jeans For Genes

Your donation has been doubled

2 months ago

$15

Jeans For Genes

Your donation has been doubled

2 months ago

$15

Ashton Herdman

Great work Stacy & Everleigh 👏👏

2 months ago

$91

Jeans For Genes

Your donation has been doubled

2 months ago

$91

Ruth Buttigieg

So proud of you 🥰

2 months ago

$110

Jeans For Genes

Your donation has been doubled

2 months ago

$110

Tom

👍👍😃

2 months ago

$16

Georgia Braund

Go Stace & Everleigh!

2 months ago

$53

Bronnie

2 months ago

$21

Anonymous

2 months ago

$21

Mel Knox

2 months ago

$32

Rachel Wallace

2 months ago

$21

Courtney Skinner

Sending you all our love and support ❤️

2 months ago

$21

Courtney Withnell

2 months ago

$55

Kamillah, Glynn & Zahra

2 months ago

$21

Maddison Whitham

Proud of you x

2 months ago

$30

Anonymous

2 months ago

$110

Nicole Orton

Sending you lots of love and good luck with reaching your goal.

2 months ago

$11

Caitlin Parker

2 months ago

$56

Pat Buttigieg

Much admiration for you both in trying to get answers and help such a worthy cause. Not to mention the love and devotion you show daily

2 months ago

$91

Fleur Mather

2 months ago

$50

Katelyn Heil

2 months ago

$56

Rebecca Roissetter

With love, Always 💕 xx

2 months ago

$42

Anne And Chris Doidge

Well done Stacey and hope you raise lots of $$

2 months ago

$21

Chloe Corsini

Wish I could donate more! If you guys ever need a helping hand please reach out.

2 months ago

$21

Mel & Caleb Ware

2 months ago

$56

Tara

Proud of you ♥️

2 months ago

$56

Helen Sands

Well bone Stacy

2 months ago