Iām fundraising in support of my daughter, Bronte Green.
Why Iām Supporting Jeans for Genes
Our daughter, Bronte was born with a rare genetical disorder, Craniofrontalnasal dysplasia.
This is a rare condition characterised by the premature closure of certain bones of the skull during development which affects the shape of the head and face.Ā
Bronte has already undergone one life changing reconstructive surgery at just one year of age, with many more to come as she grows and develops over the year.Ā
We want to help raise awareness to this rare genetic condition, support our beautiful, brave Bronte and help support the amazing cause that is Jeans for Genes!
Our daughter, Bronte was born with a rare genetical disorder, Craniofrontalnasal dysplasia.
This is a rare condition characterised by the premature closure of certain bones of the skull during development which affects the shape of the head and face.Ā
Bronte has already undergone one life changing reconstructive surgery at just one year of age, with many more to come as she grows and develops over the year.Ā
We want to help raise awareness to this rare genetic condition, support our beautiful, brave Bronte and help support the amazing cause that is Jeans for Genes!
