Both our kids are included in this statistic. Between the Ehlers Danlos Syndrome that both kids have, and L's immune deficiency and his Cardiac issues, we are well aware of the impacts of a genetic condition.
The more that can be done in the research of genetic conditions, the better families can be prepared for the impact of these genetic conditions in the future. We found out the incredibly difficult way when Scott needed open heart surgery for an undiagnosed genetic condition, Vascular EDS.
This August, I’m taking on the Ks for Kids challenge - walking or running to raise funds for Children’s Medical Research Institute, supporting scientists who are working today to find cures for tomorrow.
Your donation will help keep labs running, research advancing, and hope alive for kids who need it most.
Every step I take is for them. Your donation will help me go the distance and fund vital research!
This August, I’m taking on the Ks for Kids challenge - walking or running to raise funds for Children’s Medical Research Institute, supporting scientists who are working today to find cures for tomorrow.
Your donation will help keep labs running, research advancing, and hope alive for kids who need it most.
Every step I take is for them. Your donation will help me go the distance and fund vital research!
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