I’m fundraising in honour of my daughter, Mila.
Why I’m skipping
In April this year my seven year old daughter was given the diagnosis of Leukodystrophy, after Mila experienced sudden bilateral sensorineural hearing loss. Leukodystrophies are a rare, progressive genetic disorder that affects the central nervous system, by damaging the myelin or white brain matter.
Our story is just one story explaining why this cause is so important
Shocked to be thrown into the journey and world of so many unknowns is an understatement.
We are, ourselves currently in the middle throes of genomic testing to hopefully find which type of Leukodystropy she has so we can plan for her future.
There is no cure but with continuing research treatment is evolving which is why I have signed up to do 100 skips a day throughout August to raise money for Children’s Medical Research Institute and help save more kids’ lives as it has now become a personal importance. Can you help by sharing this message with the people you know and asking them to donate too?
Our story is just one story explaining why this cause is so important
Maybe you can join me on this journey
Join me. Share this message. Donate. Thank You!
Raised so far
With your help, I have raised...
$0
You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!
Biggest Donor
$0
Thank you so much to my biggest supporter, , for donating an incredible $0 to help fund vital research into curing children’s genetic diseases.
My Impact
So far this year, I've helped fund...
0
Hours of research
Every $50 raised funds an hour of vital research.
