In 2025, our son Reggie was born with Spinal Muscular Atrophy (SMA). A genetic condition that causes progressive muscle weakness. While it was a daunting diagnosis, we were incredibly fortunate that treatment was available. Thanks to advances in medical science, Reggie received gene therapy — a life-changing treatment that has given him the chance to thrive.
Today, at 9 months old, he is the happiest little boy, cruising around and keeping up with his two older brothers. Watching him grow, play, and smile every day is something we will never take for granted.
Our family is so thankful for the support we received during the toughest time in our lives, which is why we are proud to support Jenes for Genes Day — helping raise awareness and funds for families affected by genetic conditions, and supporting the research that gives children like Reggie hope for the future.
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Did you know that
1 in 20 Aussie kids are born with a genetic disease or birth defect? That’s one in every classroom!
This year, I’m taking part in
Jeans for Genes to help fund the incredible scientists at
Children’s Medical Research Institute, who are working today to change lives tomorrow.
Your donation will help keep labs running, research advancing, and hope alive for kids who need it most.
Together, we can make a difference.
Join me. Share this message. Donate. Thank you!
In 2025, our son Reggie was born with Spinal Muscular Atrophy (SMA). A genetic condition that causes progressive muscle weakness. While it was a daunting diagnosis, we were incredibly fortunate that treatment was available. Thanks to advances in medical science, Reggie received gene therapy — a life-changing treatment that has given him the chance to thrive.
Today, at 9 months old, he is the happiest little boy, cruising around and keeping up with his two older brothers. Watching him grow, play, and smile every day is something we will never take for granted.
Our family is so thankful for the support we received during the toughest time in our lives, which is why we are proud to support Jenes for Genes Day — helping raise awareness and funds for families affected by genetic conditions, and supporting the research that gives children like Reggie hope for the future.
.................................................................................................
Did you know that 1 in 20 Aussie kids are born with a genetic disease or birth defect? That’s one in every classroom!
This year, I’m taking part in Jeans for Genes to help fund the incredible scientists at Children’s Medical Research Institute, who are working today to change lives tomorrow.
Your donation will help keep labs running, research advancing, and hope alive for kids who need it most.
Together, we can make a difference.
Join me. Share this message. Donate. Thank you!
"Go Reggie xoxoxox"