Isabella O'Mally

Share my page

I’m fundraising in celebration of my son, Reggie.

Why I’m Supporting Jeans for Genes

In 2025, our son Reggie was born with Spinal Muscular Atrophy (SMA). A genetic condition that causes progressive muscle weakness. While it was a daunting diagnosis, we were incredibly fortunate that treatment was available. Thanks to advances in medical science, Reggie received gene therapy — a life-changing treatment that has given him the chance to thrive.

Today, at 9 months old, he is the happiest little boy, cruising around and keeping up with his two older brothers. Watching him grow, play, and smile every day is something we will never take for granted.

Our family is so thankful for the support we received during the toughest time in our lives, which is why we are proud to support Jenes for Genes Day — helping raise awareness and funds for families affected by genetic conditions, and supporting the research that gives children like Reggie hope for the future.

.................................................................................................

Did you know that 1 in 20 Aussie kids are born with a genetic disease or birth defect? That’s one in every classroom!

This year, I’m taking part in Jeans for Genes to help fund the incredible scientists at Children’s Medical Research Institute, who are working today to change lives tomorrow.

Your donation will help keep labs running, research advancing, and hope alive for kids who need it most.

Together, we can make a difference.

Join me. Share this message. Donate. Thank you!

Funds raised over the years

Biggest Donor

Jean-ius Donor

$117

Thank you so much to my biggest supporter, Graham Robinson, for donating an incredible $117 to help fund vital research into curing children’s genetic diseases.

Raised so far

With your help, I have raised...

$829

You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!

Biggest Donor

Graham Robinson

$117

Thank you so much to my biggest supporter, Graham Robinson, for donating an incredible $117 to help fund vital research into curing children’s genetic diseases.

My Impact

So far this year, I've helped fund...

17

Hours of research

Every $50 raised funds an hour of vital research.

Thank you to my donors

$55

Paula Serwach

8 hours ago

$39

Madie Bastick

šŸ’›šŸ’›šŸ’›

9 hours ago

$25

Alex Pb

Go Reggie!

11 hours ago

$117

Graham Robinson

16 hours ago

$51

Facebook Donation

1 day ago

$115

Siobhan Gleeson

1 day ago

$20

Meidelynn Ooi

1 day ago

$100

Nic And Carmel

For beautiful Reggie 🩵

1 day ago

$114

Adelle O'mally

1 day ago

$60

Sarah Mcinnes

1 day ago

$39

Anonymous

1 day ago

$55

Anonymous

1 day ago

$39

Jade O’mally

Reggie is the best!!

1 day ago