Hannah Wedd

This August, I’m taking on the challenge of completing 100 skips every day to raise money for the Children’s Medical Research Institute and help fund life-changing medical research.

This cause is incredibly close to my heart because my daughter, Penny, lives with a rare genetic condition called Kabuki syndrome. Kabuki syndrome affects approximately 1 in every 31,000 people, meaning very few families truly understand the challenges that come with it.

Penny’s journey has been filled with countless specialist appointments, hospital visits, tests, and ongoing investigations. Like so many families living with rare genetic conditions, we’ve relied on medical research to help provide answers, guide her care, and give us hope for the future.

Research changes lives. It gives families like ours hope that one day there will be earlier diagnoses, better treatments, and improved outcomes—not only for children with Kabuki syndrome but for all children living with rare genetic diseases and childhood cancers.

Around 1 in 20 Australian children are affected by a birth defect or genetic condition. Every breakthrough starts with research, and every donation helps make that research possible.

If you’re able, I’d be so grateful if you could support me by making a donation or simply sharing this post. Together, we can help create a brighter future for children like Penny and so many others.

Thank you so much for your kindness and support. 💙