Emma’jane Cook

My son Kaden was born with a rare genetic condition called Opitz-Kaveggia syndrome, and we had no idea anything was wrong until he arrived. It was a shock finding out that there was an underlying genetic explanation for the challenges we were seeing, and it took time, testing, and support to finally understand what we were dealing with. Organisations like Jeans for Genes Australia play an important role in funding the research and genetic testing that helps families like ours get answers, so conditions like Kaden’s can be identified, understood, and better supported in the future.