💙 Why I’m Doing Ks for Kids 💙

Before Wesley, I never really thought about rare diseases.

Now they’re part of our everyday life.

Hospital appointments. Specialists. Therapies. Blood tests. Scans. Waiting rooms. Waiting for results. Waiting for answers. Wondering what tomorrow might bring.

Wes lives with a rare genetic condition, and while he faces challenges every day, he does it with a smile that reminds me just how brave he is.

As his mum, the hardest part isn’t the appointments or the uncertainty.

It’s knowing I can’t fix it.

It’s watching your child go through things no child should have to go through and wishing, with everything you have, that you could take it all away.

Families like ours become researchers, advocates, nurses and therapists. We learn medical words we never expected to know. We celebrate milestones others might not even notice. We fight every single day to give our children the best life possible while hoping that one day medicine catches up with what our children need.

That’s why I’m running 60 kilometres this August.

Not because I love running.

Not because I have spare time.

But because every single kilometre is for Wes.

I’m running for the breakthroughs that haven’t happened yet.

For the families who are still searching for answers.

For the children who deserve more treatment options, more understanding, and more hope.

Research changes lives. It gives families a reason to believe that tomorrow can be different from today.

If my legs are sore, if I want to stop, or if the kilometres feel hard, I’ll remind myself why I started.

Because compared to what Wesley faces, 60 kilometres is nothing.

Every step is for him. 💙