I’m fundraising in support of my daughter, Evie.
Why I’m Supporting Jeans for Genes
Approx 3 1/2 years ago my daughter was diagnosed with a rare genetic disease called Alpha 1 Antitrypsyn Deficiency which affect liver and lungs. Currently my daughter is liver affected but with the correct diet and life style we have it under control this is something she will live with for her whole life and in the future could be lung affected. There is not a lot of to no research or understanding of Alpha 1 in Australia and due to misdiagnoses people are unable to be treated correctly for this disease.
Did you know that
1 in 20 Aussie kids are born with a genetic disease or birth defect? That’s one in every classroom!
This year, I’m taking part in
Jeans for Genes to help fund the incredible scientists at
Children’s Medical Research Institute, who are working today to change lives tomorrow.
Your donation will help keep labs running, research advancing, and hope alive for kids who need it most.
Together, we can make a difference.
Join me. Share this message. Donate. Thank you!
Approx 3 1/2 years ago my daughter was diagnosed with a rare genetic disease called Alpha 1 Antitrypsyn Deficiency which affect liver and lungs. Currently my daughter is liver affected but with the correct diet and life style we have it under control this is something she will live with for her whole life and in the future could be lung affected. There is not a lot of to no research or understanding of Alpha 1 in Australia and due to misdiagnoses people are unable to be treated correctly for this disease.
Did you know that 1 in 20 Aussie kids are born with a genetic disease or birth defect? That’s one in every classroom!
This year, I’m taking part in Jeans for Genes to help fund the incredible scientists at Children’s Medical Research Institute, who are working today to change lives tomorrow.
Your donation will help keep labs running, research advancing, and hope alive for kids who need it most.
Together, we can make a difference.
Join me. Share this message. Donate. Thank you!
