Iām fundraising in recognition of my daughter, Maddie .
Why Iām Supporting Jeans for Genes
My daughter Maddie who is 6 years old was diagnosed with KCNQ2-DEE, a rare non-inherited genetic condition that causes seizures, developmental delay, problems with speech and motor planning struggles. She is the most determined person I know š„¹. Currently there are approximately 800 people in the world with this condition and that is why I am spreading awareness for this condition.Ā
Ā Did you know that 1 in 20 Aussie kids are born with a genetic disease or birth defect? Thatās one in every classroom!
This year, Iām taking part in Jeans for Genes to help fund the incredible scientists at Childrenās Medical Research Institute, who are working today to change lives tomorrow.
Your donation will help keep labs running, research advancing, and hope alive for kids who need it most.
Together, we can make a difference.
Join me. Share this message. Donate. Thank you!
My daughter Maddie who is 6 years old was diagnosed with KCNQ2-DEE, a rare non-inherited genetic condition that causes seizures, developmental delay, problems with speech and motor planning struggles. She is the most determined person I know š„¹. Currently there are approximately 800 people in the world with this condition and that is why I am spreading awareness for this condition.Ā
Ā Did you know that 1 in 20 Aussie kids are born with a genetic disease or birth defect? Thatās one in every classroom!
This year, Iām taking part in Jeans for Genes to help fund the incredible scientists at Childrenās Medical Research Institute, who are working today to change lives tomorrow.
Your donation will help keep labs running, research advancing, and hope alive for kids who need it most.
Together, we can make a difference.
Join me. Share this message. Donate. Thank you!
