Did you know that 1 in 20 Aussie kids are born with a genetic disease or birth defect? That’s one in every classroom!
This year, we’re taking part in Jeans for Genes to help fund the incredible scientists at Children’s Medical Research Institute, who are working today to find cures for tomorrow.
Your donation will help keep labs running, research advancing, and hope alive for kids who need it most.
Together, we can make a difference.
Join us. Share this message. Donate. Thank you!
TFE3 - Associated Neurodevelopmental Disorder is a very rare metabolic genetic mutation which causes intellectual disability, mobility issues, hypotonia, GI issues, seizures and in some pigmentary mosaicism.
There are currently around 60 diagnosed children, worldwide.Â
My son Remy is living with this condition and he is the first child in Australia to be diagnosed.Â
There is very little research in regards to this disorder, as it is newly recognised.Â
Help me gather the attention we desperately need.Â
The links attached have more information.
https://give.rarevillage.org/campaign/765978/donate
https://tfe3.org/
Thank you so much to my biggest supporter, Jeremy Scutchings, for donating an incredible $107 to help fund vital research into curing children’s genetic diseases.
With your help, I have raised...
You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!
Thank you so much to my biggest supporter, West End Lotto Community, for donating an incredible $136 to help fund vital research into curing children’s genetic diseases.
So far this year, I've helped fund...
Every $50 raised funds an hour of vital research.
$136
Your donation has been doubled by our sponsors!
$136
$107
Your donation has been doubled by our sponsors!
$107
$29
Your donation has been doubled by our sponsors!
$29
$24
Your donation has been doubled by our sponsors!
$24
$65
Your donation has been doubled by our sponsors!
$65
$78
Your donation has been doubled by our sponsors!
$78
$39
$20
$24
$39
"Your donation has been doubled by our sponsors!"