Did you know that
1 in 20 Aussie kids are born with a genetic disease or birth defect? That’s one in every classroom, or in my case a
1 in 4 chance of cystic fibrosis.
Which my two boys Max & Leo have been diagnosed with Cystic Fibrosis.
So for the first two years of Max’s life, he was very unwell, He was constantly catching every germ, Leading into infections. Every doctors appointment, it was just another cold And nothing could be done about it.
Two years later, we fell pregnant with baby Leo and we knew we had a one in four chance of cystic fibrosis which was all new to us, Max was negative at birth and so was Leo. But my gut was telling me something was wrong, I continued to go further to investigate if Leo carried the genes that he might pass on to his family one day. Little did I know that this had come back positive for a type of Cystic fibrosis.
I continued to get Max tested the same way as Leo and yes it came back positive for the same type of cystic fibrosis. Along with the heartbreak, it was very bittersweet as I knew there was an Underlying problem with Max.
On the 7th of May, We got a call from our CF Specialist that Max had contracted a bacterial infection called pseudomonas, Which is a bacteria that grows on the lungs and is dangerous in children with CF, This put Max in hospital for two weeks on some heavy antibiotics 24 hours every day.
This journey is very new to us, but we would do anything we can to help raise money so they and other children can have A better future. We have an amazing team at the John Hunter And it’s a massive learning curb, but we have to be strong for our boys. 🤍
Did you know that 1 in 20 Aussie kids are born with a genetic disease or birth defect? That’s one in every classroom, or in my case a 1 in 4 chance of cystic fibrosis. Which my two boys Max & Leo have been diagnosed with Cystic Fibrosis.
So for the first two years of Max’s life, he was very unwell, He was constantly catching every germ, Leading into infections. Every doctors appointment, it was just another cold And nothing could be done about it. Two years later, we fell pregnant with baby Leo and we knew we had a one in four chance of cystic fibrosis which was all new to us, Max was negative at birth and so was Leo. But my gut was telling me something was wrong, I continued to go further to investigate if Leo carried the genes that he might pass on to his family one day. Little did I know that this had come back positive for a type of Cystic fibrosis. I continued to get Max tested the same way as Leo and yes it came back positive for the same type of cystic fibrosis. Along with the heartbreak, it was very bittersweet as I knew there was an Underlying problem with Max.
On the 7th of May, We got a call from our CF Specialist that Max had contracted a bacterial infection called pseudomonas, Which is a bacteria that grows on the lungs and is dangerous in children with CF, This put Max in hospital for two weeks on some heavy antibiotics 24 hours every day.This journey is very new to us, but we would do anything we can to help raise money so they and other children can have A better future. We have an amazing team at the John Hunter And it’s a massive learning curb, but we have to be strong for our boys. 🤍
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