Why We’re Supporting Jeans for Genes
This year, Kind Early Learning is proudly fundraising for Jeans for Genes in support of one of our very own Kind children, Zara.
Zara lives with Loeys-Dietz Syndrome (LDS), a rare genetic condition that affects the body’s connective tissue and can impact the heart and blood vessels, bones, joints, immune system and development. Every child with LDS can be affected differently, and there is still so much researchers are learning about this condition.
When Zara was born, her family were faced with the heartbreaking news that she may not live beyond three years old and could experience significant developmental challenges. Zara has exceeded those early expectations, showing incredible strength and resilience, but she continues to face ongoing health and life challenges.
Through their journey, Zara’s family have met many other families whose lives have been changed overnight by a rare genetic diagnosis. The reality is that for many of these conditions, there is still so much we don’t know. With greater research and understanding comes the potential to discover new treatments, improve care and give children like Zara the opportunity to thrive.
As research and understanding of Loeys-Dietz Syndrome has progressed, so too has the outlook for Zara’s future. 💙
Jeans for Genes is an incredible opportunity to support families living with rare genetic conditions, while also supporting the researchers and medical professionals working tirelessly to change their futures.
We are so proud to stand alongside Zara and her family and help raise funds towards a future where every child with a rare genetic condition has the opportunity to live, grow and thrive.
Join us. Share this message. Donate. Thank you!
This year, Kind Early Learning is proudly fundraising for Jeans for Genes in support of one of our very own Kind children, Zara.
Zara lives with Loeys-Dietz Syndrome (LDS), a rare genetic condition that affects the body’s connective tissue and can impact the heart and blood vessels, bones, joints, immune system and development. Every child with LDS can be affected differently, and there is still so much researchers are learning about this condition.
When Zara was born, her family were faced with the heartbreaking news that she may not live beyond three years old and could experience significant developmental challenges. Zara has exceeded those early expectations, showing incredible strength and resilience, but she continues to face ongoing health and life challenges.
Through their journey, Zara’s family have met many other families whose lives have been changed overnight by a rare genetic diagnosis. The reality is that for many of these conditions, there is still so much we don’t know. With greater research and understanding comes the potential to discover new treatments, improve care and give children like Zara the opportunity to thrive.
As research and understanding of Loeys-Dietz Syndrome has progressed, so too has the outlook for Zara’s future. 💙
Jeans for Genes is an incredible opportunity to support families living with rare genetic conditions, while also supporting the researchers and medical professionals working tirelessly to change their futures.
We are so proud to stand alongside Zara and her family and help raise funds towards a future where every child with a rare genetic condition has the opportunity to live, grow and thrive.
Join us. Share this message. Donate. Thank you!
