Why we’re skipping
I’m taking on the Jeans for Genes Skipping Challenge for my daughter, Hiba.
Hiba was born with Isovaleric Acidaemia (IVA), a rare genetic condition that has shaped so much of her life. From a very young age, she’s faced challenges that most children never have to think about. But if there’s one thing Hiba has taught us, it’s that being different doesn’t stop you from chasing your dreams.
She discovered a love for skipping, and it’s become so much more than a sport. It’s given her confidence, strength, friendships, and the chance to show that a rare diagnosis doesn’t define what she’s capable of. Watching her grow through skipping has been one of the greatest privileges.
That’s why this challenge means so much to me. Every skip is for Hiba, and for every child living with a rare genetic condition. By raising funds for Jeans for Genes, we’re helping support the research that gives families hope, advances treatments, and works towards a future where children like Hiba have every opportunity to thrive.
Hiba skips to prove that rare is powerful. I’m skipping because she inspires me every single day.
Join us. Share this message. Donate. Thank You!
Raised so far
With your help, we have raised...
$1,780
You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!
Biggest Donor
Diyana
$217
Thank you so much to our biggest supporter, Diyana, for donating an incredible $217 to help fund vital research into curing children’s genetic diseases.
Our Impact
So far this year, we've helped fund...
36
Hours of research
Every $50 raised funds an hour of vital research.
Thank you to our Sponsors
$24
Jordan
$24
Matched Gift
Your donation has been doubled by our sponsors!
$24
Janet S
Keep smiling and shining bright Hiba.
$56
Matched Gift
Your donation has been doubled by our sponsors!
$56
Anonymous
$24
Matched Gift
Your donation has been doubled by our sponsors!
$24
Isley T
Well done Hiba!
$23
Matched Gift
Your donation has been doubled by our sponsors!
$23
Anonymous
$25
Matched Gift
Your donation has been doubled by our sponsors!
$25
Kat Reid
Well done Hiba and team for all the skipping and raising funds and awareness for such a worthwhile charity! You're an inspiration Hiba, keep up the wonderful work!
$217
Matched Gift
Your donation has been doubled by our sponsors!
$217
Diyana
So proud of you, baby girl! xo
$50
Matched Gift
Your donation has been doubled by our sponsors!
$50
Darcy
Thanks for sharing this inspiring story, Diyana. Hiba is incredible and I’m glad to support such a worthwhile cause. ❤️
$40
Matched Gift
Your donation has been doubled by our sponsors!
$40
Sarah T
$24
Matched Gift
Your donation has been doubled by our sponsors!
$24
Amanda O
Go you good thing!
$107
Matched Gift
Your donation has been doubled by our sponsors!
$107
Usman Shah
Well done. Keep it up!
$39
Matched Gift
Your donation has been doubled by our sponsors!
$39
Adina Wheeler
You got this Sista! So proud of you!! Big Love Me & G & J
$117
Matched Gift
Your donation has been doubled by our sponsors!
$117
Lucy Kopp
Thank you for promoting and spreading awareness of this worthy and important cause. Go Hiba! You've got this!
$55
Matched Gift
Your donation has been doubled by our sponsors!
$55
Penny Khan
$35
Cameron Capell
You get it queen! Xx
$60
Matched Donation
$60
Inspiring !