Why I’m Doing Ks for Kids
I’m doing Ks for Kids – and here’s why it means the world to me.
This
year, my little brother Ryan would have turned 40. But we lost him when he was
just 11 years old.
Ryan
had a rare genetic condition called Hunters
Syndrome. It’s a disorder that affects how the body breaks down
certain complex sugars. Over time, those sugars build up in the cells, causing
damage throughout the body – especially to the brain, heart, bones, and other
vital organs. It’s progressive, it’s cruel, and back then, there was no
treatment.
Ryan
suffered a lot during his short life. And yet, he was so full of love,
mischief, and warmth. He was my little brother — and losing him changed our
family forever.
Today,
thanks to research funded by causes like Jeans for Genes, there’s real hope.
There are treatments now that can slow the progression of conditions like
Hunters Syndrome. Kids diagnosed today may suffer less, live longer, and have a
chance at more of the life Ryan didn’t get. That progress is only possible
because people keep caring, keep donating, and keep walking these Ks.
So
I’m walking for Ryan. I’m running for every family facing the unimaginable. And
I’m running for the future — so that kids born with rare genetic conditions
have a better chance.
Please
donate if you can. Every step I take is for Ryan — and every dollar brings us
closer to a future with fewer goodbyes.
💙 Thank you for
supporting something so close to my heart.
I’m doing Ks for Kids – and here’s why it means the world to me.
This
year, my little brother Ryan would have turned 40. But we lost him when he was
just 11 years old.
Ryan
had a rare genetic condition called Hunters
Syndrome. It’s a disorder that affects how the body breaks down
certain complex sugars. Over time, those sugars build up in the cells, causing
damage throughout the body – especially to the brain, heart, bones, and other
vital organs. It’s progressive, it’s cruel, and back then, there was no
treatment.
Ryan
suffered a lot during his short life. And yet, he was so full of love,
mischief, and warmth. He was my little brother — and losing him changed our
family forever.
Today,
thanks to research funded by causes like Jeans for Genes, there’s real hope.
There are treatments now that can slow the progression of conditions like
Hunters Syndrome. Kids diagnosed today may suffer less, live longer, and have a
chance at more of the life Ryan didn’t get. That progress is only possible
because people keep caring, keep donating, and keep walking these Ks.
So
I’m walking for Ryan. I’m running for every family facing the unimaginable. And
I’m running for the future — so that kids born with rare genetic conditions
have a better chance.
Please
donate if you can. Every step I take is for Ryan — and every dollar brings us
closer to a future with fewer goodbyes.
💙 Thank you for
supporting something so close to my heart.
"As agreed + 100 for smashing it"