Why I’m Doing Ks for Kids
Did you know that
1 in 20 Aussie kids are born with a genetic disease or birth defect? That’s one in every classroom!
This August, I’m taking on the
Ks for Kids challenge - walking or running to raise funds for
Children’s Medical Research Institute, supporting scientists who are working today to find cures for tomorrow.
Your donation will help keep labs running, research advancing, and hope alive for kids who need it most.
Every step I take is for them and for kids like my beautiful daughter Sofia, who was diagnosed with Cystic Fibrosis at 6 weeks old.
After an abnormal newborn screening result, further testing confirmed that Sofia has cystic fibrosis (CF) – a life-shortening genetic disease that affects the lungs, digestive system and many other organs.
Nothing prepares you to hear those words about your baby.
Sofia is the most beautiful and happy little girl who’s smile lights up the room. Looking at her, most people would never know she has a serious medical condition. But behind every smile is a daily routine that helps keep her healthy.
Every day begins and ends with treatments. Before every single feed she needs pancreatic enzyme capsules because her pancreas can’t digest food properly on its own. She takes specialised vitamins, daily physiotherapy to help keep her lungs clear, and we attend regular hospital appointments, throat swabs and monitoring to detect infections as early as possible.
As parents, we think about things many families never have to. A simple cold can become much more serious for a child with CF. We have to be careful about infections, constantly monitor her growth, and make decisions every day with her health in mind.
The good news is that cystic fibrosis research has changed dramatically over the past decade. New treatments are allowing many people with CF to live longer and healthier lives than ever before. Even more exciting are the incredible advances in gene therapy, mRNA medicines, gene editing and other research that could transform the future for children like Sofia.
That’s why we’re fundraising for Jeans for Genes.
Every dollar raised helps support life-changing medical research that gives families like ours hope. Hope that better treatments will arrive sooner. Hope that every child born with CF will have the chance to grow up healthy, chase their dreams, and live a long, full life.
If you’ve ever wondered whether your donation can make a difference, it can.
From the bottom of our hearts, thank you for standing with Sofia, our family, and every person living with cystic fibrosis. Together, we’re helping create a future where no child’s life is limited by this disease.
Your donation will help me go the distance and fund vital research 🙏❤️
Help fund and find a cure for CF! 🫶🏻🫁
Did you know that 1 in 20 Aussie kids are born with a genetic disease or birth defect? That’s one in every classroom!
This August, I’m taking on the Ks for Kids challenge - walking or running to raise funds for Children’s Medical Research Institute, supporting scientists who are working today to find cures for tomorrow.
Your donation will help keep labs running, research advancing, and hope alive for kids who need it most.
Every step I take is for them and for kids like my beautiful daughter Sofia, who was diagnosed with Cystic Fibrosis at 6 weeks old.
After an abnormal newborn screening result, further testing confirmed that Sofia has cystic fibrosis (CF) – a life-shortening genetic disease that affects the lungs, digestive system and many other organs.
Nothing prepares you to hear those words about your baby.
Sofia is the most beautiful and happy little girl who’s smile lights up the room. Looking at her, most people would never know she has a serious medical condition. But behind every smile is a daily routine that helps keep her healthy.
Every day begins and ends with treatments. Before every single feed she needs pancreatic enzyme capsules because her pancreas can’t digest food properly on its own. She takes specialised vitamins, daily physiotherapy to help keep her lungs clear, and we attend regular hospital appointments, throat swabs and monitoring to detect infections as early as possible.
As parents, we think about things many families never have to. A simple cold can become much more serious for a child with CF. We have to be careful about infections, constantly monitor her growth, and make decisions every day with her health in mind.
The good news is that cystic fibrosis research has changed dramatically over the past decade. New treatments are allowing many people with CF to live longer and healthier lives than ever before. Even more exciting are the incredible advances in gene therapy, mRNA medicines, gene editing and other research that could transform the future for children like Sofia.
That’s why we’re fundraising for Jeans for Genes.
Every dollar raised helps support life-changing medical research that gives families like ours hope. Hope that better treatments will arrive sooner. Hope that every child born with CF will have the chance to grow up healthy, chase their dreams, and live a long, full life.
If you’ve ever wondered whether your donation can make a difference, it can.
From the bottom of our hearts, thank you for standing with Sofia, our family, and every person living with cystic fibrosis. Together, we’re helping create a future where no child’s life is limited by this disease.
Your donation will help me go the distance and fund vital research 🙏❤️
Help fund and find a cure for CF! 🫶🏻🫁
"Every dollar raised brings hope! For a beautiful and bright future for your precious Sofia and every child & family navigating CF. Strength & success to you and the fundraising ❤️"