CMRI Mudgee Committee

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Keeping up with Kalarny...

We are so chuffed to see one of our very own superstars in the national Jeans for Genes campaign!!

Kalarny was diagnosed with SMA Type 1 shortly after birth and is beating the odds left right and centre thanks to the first ever FDA approved drug for SMA, Spinraza.

According to reporting by the ABC, β€˜SMA is the leading genetic cause of infant death in Australia, but breakthrough treatments can now improve symptoms and slow the progression of the illness if it is diagnosed early.

For some parents, that has been a difficult and devastating process, but now, a two-year pilot program will see more than 200,000 babies born in NSW and the ACT tested for the condition as soon as they are born, with SMA added to the newborn heel prick test.

Professor Ian Alexander, head of the Gene Therapy Research Unit at the Children's Medical Research Institute, said once the cells were lost, they were lost forever.

"The key with newborn screening is it allows you to detect the condition before the child develops symptoms, and intervene ... so that the child has lost no or minimal function," he said.


There are also exciting new gene therapy treatments being trialled for SMA.

Forty-five patients across the world including some from Australia are being recruited for the international study. A previous small trial of gene therapy found it helped all 15 children who were treated.

"In that trial, there were infants walking and talking that would have otherwise succumbed to the disease," Professor Alexander said.’

This is why the CMRI Mudgee Committee will never stop working to raise awareness and funds for CMRI.

Thank you to our Sponsors

$4.76k

Mudgee Community

$4.76k

Matched Giver

Your donation has been doubled

$3k

Ross Granata

$2.87k

Logan

$2.87k

Byrnes Jewellers

$2.87k

Mkr Choppers Pty Ltd

$2.87k

Matched Giver

Your donation has been doubled

$2.87k

Mudgee Newsagency

$2.85k

Leven Smash Repairs & Aas

$2.85k

Fam Connect

$2.85k

Petries Mitre 10

$2.85k

Nortons Business Advisors

$2.85k

Mary Lester

In loving memory of Mary Lester, from all the family xx

$1.47k

Ap

$1.31k

Gina Fitzgerald

$1.31k

Matched Giver

Your donation has been doubled

$1,000

Word Of Mouth Speech Pathology

$1,000

Mcdonald Lawson Carter

Congratulations Mudgee CMRI, a well worthy cause close to our hearts.

$1,000

Matched Giver

Your donation has been doubled

$630

Myff Clarke

$536

Mudgee High School

Money raised by students at Mudgee High School

$520

A1 Earthworx Mining & Civil Pty Ltd

Very happy to be able to donate to such a wonderful charity to help children.

$520

Matched Giver

Your donation has been doubled

$520

Jack&roy

“Nothing in this world is guaranteed, but unstoppable is she who fights for what she wants and what she believes” - we love you and are so proud of you! Keep up the amazing work!

$520

Stanmore 4wd

Awesome effort to everyone x

$520

Matched Giver

Your donation has been doubled

$500

Krysties

Love your work - inspirational

$500

Matched Giver

Your donation has been doubled

$500

The Property Shop Mudgee

An incredible initiative raising funds and awareness for the kids - congratulations to the Mudgee Committee!

$500

Matched Giver

Your donation has been doubled

$500

Double R

$500

Melissa Tym

$400

Sarah Christianson

$376

Myff Clarke

$369

Ak Constructions

$326

Peta Newsome

$325

Anonymous

$317

Mudgee Corner Store

From the team at Mudgee Corner Store

$301

Annie Hales Sievers

Great cause and great Hoodies x

$286

Gulgong Public School

Proudly fundraised on 05.08.2022 from Gulgong Public School students and staff.

$274

Sam Mcmaster

$273

Double R Mudgee

$273

Matched Giver

Your donation has been doubled

$270

Anonymous

$264

Matched Giver

Your donation has been doubled

$264

Vacsafe

Well done team Mudgee you guys are awesome!!!

$264

Matched Giver

Your donation has been doubled

$264

Mudgee Home Improvements

From the MHI team!! Great work!!

$264

Matched Giver

Your donation has been doubled

$264

Sarah Inglis

$264

Robert Stein Winery

$264

Three Tails Brewery

Brilliant work...well done!

$264

Matched Giver

Your donation has been doubled

$264

Kruger Carpets Mudgee

Great work Kate Rogers & the whole Mudgee CMRI Team πŸ‘πŸ‘ Cheers from the Kruger Girls πŸ‘ŒπŸ‘Œ

$250

Caitlin & Tim

$250

Matched Giver

Your donation has been doubled

$241

Lsr & Aas

$241

Matched Giver

Your donation has been doubled

$214

Stride Health

Donations from our J4G cake stall.

$214

Matched Giver

Your donation has been doubled

$211

Chandelle Newbigging

Great work Guys

$211

Ultimate Care Skin And Body Centre

Keep up the good work

$211

Matched Giver

Your donation has been doubled

$211

Mcfarland Family

$211

Matched Giver

Your donation has been doubled

$211

Eq Minds

$211

Matched Giver

Your donation has been doubled

$211

Lhs Mining Maintenance (hayley And Luke Xx)

$211

Matched Giver

Your donation has been doubled

$211

Property

$211

Matched Giver

Your donation has been doubled

$211

Cade Kitchen & Bar

Keep up the Great work

$211

Dick Hooper

$211

Matched Giver

Your donation has been doubled

$211

Peter And Jill Grieve

What a fantastic charity. Thank you Mudgee CMRI committee, it is a very worthy cause and we are proud to support it.

$211

Ben Curtis

Well done CMRI Mudgee - huge effort!

$206

Tina Tilney

$206

Hayley Smith

$206

Matched Giver

Your donation has been doubled

$200

Pearl & Adam Swords

We have incredible community!! πŸ™Œ CMRI committee and all involved - you’re inspirational πŸ’™πŸ’™

$200

Matched Giver

Your donation has been doubled

$200

Myff Clarke

$200

Matched Giver

Your donation has been doubled

$190

Alby & Esthers

Blue Muffin donation

$190

Matched Giver

Your donation has been doubled

$190

Puggles Child Care Centre

$174

Anonymous

$158

Alby & Esthers

$158

Matched Giver

Your donation has been doubled

$158

K And Co Hair Lounge

$158

Matched Giver

Your donation has been doubled

$151

Kate Rogers

Funds from collection of merchandise around town (mudgee)

$151

Matched Giver

Your donation has been doubled

$150

Chloe Smith

$150

Matched Giver

Your donation has been doubled

$137

Gemma Parker

$137

Kelly Warner

$137

Matched Giver

Your donation has been doubled

$137

Renee Bond

Well done team 1 x 8 @ Gorjus 1 x 6 @ Gorjus Will get a size 4 from you Summer.

$137

Tracy Drewe

$137

Matched Giver

Your donation has been doubled

$137

Prior And Hall Recruitment

Keep up the great work CMRI. Loving the hoodies too!

$137

Grace Quinn

$137

Matched Giver

Your donation has been doubled

$132

Michelle Carter

Great work team!

$132

Matched Giver

Your donation has been doubled

$131

Coles

Coles cake stall

$130

Alexandra Reynolds

$127

Stride Health

To all our amazing kids, you brighten our day every week ♥️

$127

St Matthews Mudgee

St Matthews Merchandise

$125

Word Of Mouth Speech Pathology

$124

Jayne Single

$123

Mudgee Hospital

$123

Matched Giver

Your donation has been doubled

$117

Amy Brady

$117

Matched Giver

Your donation has been doubled

$116

Merridy Keightley

$116

Matched Giver

Your donation has been doubled

$115

Anne Cumberland

$110

Donna Land

$110

Jeans For Genes

Your donation has been doubled

$110

Renee Martin

$110

Jeans For Genes

Your donation has been doubled

$110

Lesley Robertson

$110

Beth, Don, Douglas & Cambell

Well done Mudgee team, and a special hug for Charlie Banjo x

$110

Matched Giver

Your donation has been doubled

$110

Emma Burns

Amazing work!

$110

Matched Giver

Your donation has been doubled

$110

Tania Milovanovic - Thermomix Consultant

Keep up the great work, so pleased to support a local organisation πŸ’™

$110

Jan O'brien

$110

Barbie

Sending love

$110

Ian Colley

$110

Christine Shearman

Great work guys!!

$110

Matched Giver

Your donation has been doubled

$110

Liz Loneragan

Go Team Mudgee!!

$110

Matched Giver

Your donation has been doubled

$110

Jayne Single

$110

Edmunds Interiors

$110

Matched Giver

Your donation has been doubled

$110

Jenny & Des

Congratulations team

$110

Leanne Stewart

To our little Supergirl Mia xx

$110

Mitchell Jones

Go team!

$110

Matched Giver

Your donation has been doubled

$110

Jan & Paul

$110

Matched Giver

Your donation has been doubled

$110

Paige Loneragan

$110

Matched Giver

Your donation has been doubled

$110

Lykera Parker

2x tickets

$110

Smk And Co Kitchens And Bathrooms

Amazing work Mudgee!!

$110

Matched Giver

Your donation has been doubled

$110

Matched Giver

Your donation has been doubled

$107

Funk Fitness

$106

Jen Ramien

$106

Matched Giver

Your donation has been doubled

$106

Charmaine Hurrell

Love small town support for a big cause

$106

Matched Giver

Your donation has been doubled

$106

Anonymous

$106

Ben Reynolds

$106

Matched Giver

Your donation has been doubled

$106

Sarah Cunningham

Such a beautiful cause. X

$106

Matched Giver

Your donation has been doubled

$106

Annie Hales Siever

Thanks for all your hard work

$106

Matched Giver

Your donation has been doubled

$106

Anonymous

$106

Rachel Green

Absolutely bloody amazing job guys

$106

Matched Giver

Your donation has been doubled

$106

Matched Giver

Your donation has been doubled

$106

Regan Air Conditioning

$106

Jenna Blewitt

$106

Matched Giver

Your donation has been doubled

$106

Matched Giver

Your donation has been doubled

$106

Cherie Edwards

$106

Matched Giver

Your donation has been doubled

$106

Rachel & Richard Brown

$106

Nicole Heighway

$106

Matched Giver

Your donation has been doubled

$104

Melinda Shearman

$104

Matched Giver

Your donation has been doubled

$104

Centre For Executive Development (ced)

Amazing cause and committee πŸ™ŒπŸ’™

$104

Matched Giver

Your donation has been doubled

$104

Peter Harvey

$104

Matched Giver

Your donation has been doubled

$100

Neree Suttor

$100

Matched Giver

Your donation has been doubled

$100

Nicole Louise Mcinnes

$100

Laura Smede

Xl shirt Xl jumper

$100

Natural Build

Well done team

$100

Matched Giver

Your donation has been doubled

$100

Anonymous

$100

Matched Giver

Your donation has been doubled

$95

Kate Williamson

$95

Renee Martin

Size M Hoodie $65 Size 10 green shirt $25

$91

Oliver Rogers

My mum has been a committee member at Mudgee for a few years now - I wanted to support her and the rest of the Mudgee Committee’s efforts xx

$91

Matched Giver

Your donation has been doubled

$91

St Matthews Catholic School

$91

Helen Dziura

$91

Matched Giver

Your donation has been doubled

$91

Prior And Hall Recruitment

$91

Lynelle Howland

$91

Julie Tito

$35

$91

Kat Booth

$30 T-shirt

$91

Anonymous

$91

Sally Callander

F45 shirt

$91

Kristen Organ

$91

Ap

$90

Oz Choppers

$90

Matched Giver

Your donation has been doubled

$90

Jemma Williams

$88

Stride Health

Cake stall & merch box funds

$86

Kimberley Mason

$84

Debra Campbell

$84

Matched Giver

Your donation has been doubled

$80

Petries Mitre 10

$79

Sheridan Byrne

$79

Matched Giver

Your donation has been doubled

$79

Bill Dowdy

Level Plumbing

$79

Matched Giver

Your donation has been doubled

$75

Lucy Mcnamara

$75

Matched Giver

Your donation has been doubled

$74

Squeakers

$74

Katrina Curry

$74

Matched Giver

Your donation has been doubled

$74

Liz Shady

$74

Matched Giver

Your donation has been doubled

$70

Beauty Reclaimed

$69

Donna Doherty

$69

Aimee Maguire

$69

Anonymous

Hoodie -xl

$69

Arun Pragasam

$69

Anonymous

$69

Matched Giver

Your donation has been doubled

$69

Jane Roberts

$69

Megan Gossage

$69

Linda Foote

$69

Anonymous

$69

Matched Giver

Your donation has been doubled

$69

Anonymous

$69

Michelle Brydon

$69

Nicky Stevens

Great work team!!

$69

Matched Giver

Your donation has been doubled

$69

Claire Harries

MPS hoodie large.

$69

Megan Greig

Kids Hoodie

$69

Rosie Gibbs

So happy to purchase a hoodie as a birthday present for a friend and support Jeans for Genes at the same time!

$69

Annie Sievers

Beyond impressed by this committee and our community.

$69

Naomi Turner

$69

Karen Denyer

$69

Matched Giver

Your donation has been doubled

$69

Ashlee Parker

$69

Matched Giver

Your donation has been doubled

$69

Matthew Best

πŸ‘πŸ‘

$69

Matched Giver

Your donation has been doubled

$69

Roslyn Roser

$69

Mel Robbins

$69

Jilly Roberts

$69

Matched Giver

Your donation has been doubled

$69

Linda Clarke

$69

Anonymous

$69

Matched Giver

Your donation has been doubled

$69

Amy Lee

AMAZING job guys

$69

Michelle Brydon

$69

Brooke Pretty

$69

Matched Giver

Your donation has been doubled

$69

Anonymous

Mudgee Preschool - hoodie

$69

Anonymous

$65

Anonymous

$65

Matched Giver

Your donation has been doubled

$65

Chris Schneider

$65

Sarah Christianson

$65

Ben Newsome

$65

Ciara O'farrell

$65

Becky Purcell

$65

Matched Giver

Your donation has been doubled

$65

Fiona Foote

Kids jumper

$65

Boyd Pattison

$65

Matched Giver

Your donation has been doubled

$65

Myff Clarke

$63

Paige

$63

Andrew Palmer

$63

Matched Giver

Your donation has been doubled

$63

Harni Kearns

$63

Lou Mclean

Bake sale & 200 club

$63

Matched Giver

Your donation has been doubled

$63

Amy Tracy-inglis

$63

Matched Giver

Your donation has been doubled

$63

Bettina James

$63

Jess Mcfarlane

Way to go Mudgee!

$63

Matched Giver

Your donation has been doubled

$60

Kate Shoemark

For our friend Bug

$58

Rachel Green

$58

Matched Giver

Your donation has been doubled

$58

Anna Baker

$56

Dallas Rheinberger’

Well done and hope you raise much more needed funds!

$56

Matched Giver

Your donation has been doubled

$56

Kate Day

$56

Cam & D Whiteside

πŸ’™πŸ‘–πŸ’™

$56

Matched Giver

Your donation has been doubled

$56

Anonymous

2 yellow size 8

$56

Rebecca Miles

$56

Matched Giver

Your donation has been doubled

$56

Coral

$56

Matched Giver

Your donation has been doubled

$56

Emma Whiteley

Amazing job Mudgee community! Such an important cause ❀️

$56

Matched Giver

Your donation has been doubled

$56

Andy Banks

$56

Matched Giver

Your donation has been doubled

$56

Naomi Louise Hair

Great work team πŸ‘πŸΌπŸ‘πŸΌ

$56

Edith D

$56

Matched Giver

Your donation has been doubled

$56

Alayna Gleeson

$56

Matched Giver

Your donation has been doubled

$56

Mudgee Xray Crew

Go Team Mudgee!!

$56

Matched Giver

Your donation has been doubled

$56

Ashlee Kenny

$56

Matched Giver

Your donation has been doubled

$56

Anonymous

$56

Sheri

$56

Matched Giver

Your donation has been doubled

$56

Lucy And Hunter

$56

Paige Loneragan

$56

Matched Giver

Your donation has been doubled

$56

Renee

$56

Neree Suttor

$56

Emily Blacka

$56

Trina Karstrom

Go team Mudgee! Great fundraising efforts!

$56

Deborah Grover

This is a worthy fundraiser. I've always supported Jeans for Genes Day as my son was born with Trisomy 21 or Down Syndrome as it's usually known. All research that helps our kids lead full and healthy lives is a good thing.

$56

Damian, Issy + Olle Kearns

How good is our village?! πŸ’™

$56

Katie Mclean

2x F45 tshirts

$56

Matched Giver

Your donation has been doubled

$56

Anonymous

$56

Anonymous

$56

Matched Giver

Your donation has been doubled

$56

Chelsea Williams

$56

Kate Day

Well done team. X

$56

Anonymous

$56

Matched Giver

Your donation has been doubled

$56

Matched Giver

Your donation has been doubled

$56

Kamara &matt

$56

Matched Giver

Your donation has been doubled

$56

Jason Rheinberger

Keep up the good work guys

$56

Sam Kost

$56

Matched Giver

Your donation has been doubled

$56

Sarah Christian

$56

Matched Giver

Your donation has been doubled

$56

Adam Sutherland

Great effort!!

$56

Matched Giver

Your donation has been doubled

$56

Steph Crowe

$56

Matched Giver

Your donation has been doubled

$54

Anonymous

$54

Kate Rogers

$54

Robbie Holdaway

$53

Rosemarie Amos

$53

Matched Giver

Your donation has been doubled

$53

Julie Canham

$53

Sarah Christianson

$53

Matched Giver

Your donation has been doubled

$53

Margot

$53

Elizabeth Kennedy

$53

Matched Giver

Your donation has been doubled

$53

Samantha Cecchini

The whole town is behind you. Great effort Mudgee.

$53

Matched Giver

Your donation has been doubled

$53

Edie And Charlotte Croake

$53

Matched Giver

Your donation has been doubled

$53

Anonymous

$53

Matched Giver

Your donation has been doubled

$53

Anonymous

$53

Matched Giver

Your donation has been doubled

$53

Matched Giver

Your donation has been doubled

$53

Hailey Argus

$53

Karen Cutrupi

$53

Jess Martens

$53

Matched Giver

Your donation has been doubled

$53

Matched Giver

Your donation has been doubled

$53

Matched Giver

Your donation has been doubled

$53

Jacova Woolsey

$53

Jodi Davison

Doin’ it for the Mudgee kids

$53

Matched Giver

Your donation has been doubled

$53

Matched Giver

Your donation has been doubled

$53

Anonymous

Well done

$53

Tianna Best

$53

Matched Giver

Your donation has been doubled

$53

Jane Roberts

Go team mudgee committee and village!!!

$53

Matched Giver

Your donation has been doubled

$53

Amy Claypole

$53

Tash Davis

Awesome work team. So proud of our community!!!!!

$53

Matched Giver

Your donation has been doubled

$53

Matched Giver

Your donation has been doubled

$53

David Sebelic

$53

Matched Giver

Your donation has been doubled

$53

Jes Cubis

Go team Mudgee πŸ‘–πŸ’™

$53

Matched Giver

Your donation has been doubled

$53

Kayeleene Marlow

Size 4y

$53

Sue Mccarten

$53

Matched Giver

Your donation has been doubled

$53

Susan Barling

$53

Cassandra Endacott

$53

Matched Giver

Your donation has been doubled

$53

Linda Lewis

$53

Matched Giver

Your donation has been doubled

$53

Robyn Griffin

$53

Matched Giver

Your donation has been doubled

$53

Bronte Bagala

$53

Matched Giver

Your donation has been doubled

$53

Isabella Harris

$53

Matched Giver

Your donation has been doubled

$53

Ben Newsome

$53

Crystal Clavel

$53

Matched Giver

Your donation has been doubled

$53

Ian Colley

F45 challenge shirt

$53

Will And Gus Reynolds

$53

Matched Giver

Your donation has been doubled

$53

Catherine Flack

100 club

$53

Matched Giver

Your donation has been doubled

$53

Lochlan Mortensen

$53

Anonymous

$53

Matched Giver

Your donation has been doubled

$53

Matched Giver

Your donation has been doubled

$53

Margo Mackenzie

$53

Shelly Leonard

$53

Matched Giver

Your donation has been doubled

$53

Matched Giver

Your donation has been doubled

$53

Amy Brady

Mudgee Kids

$53

Matched Giver

Your donation has been doubled

$53

Nadya Marshall

$53

Matched Giver

Your donation has been doubled

$53

Anonymous

$53

Matched Giver

Your donation has been doubled

$53

Sam Pattison

$53

Carina Swords

Hundreds square x 1

$53

Aaron Cubis

$53

Matched Giver

Your donation has been doubled

$51

Anonymous

$51

Anonymous

$50

Laura Power

$50

Matched Giver

Your donation has been doubled

$50

Anonymous

$50

Max Morgan

Go CMRI 2022!

$50

Matched Giver

Your donation has been doubled

$50

White Cedars Goats Milk Soap And Handcrafted Timberwork

$50

Matched Giver

Your donation has been doubled

$50

Sally Callander Law

$50

Matched Giver

Your donation has been doubled

$50

Stephanie Mcnamara

$50

Matched Giver

Your donation has been doubled

$50

Mitch, Chloe & Henry Clarke

πŸ’™

$50

Adam Williams

$50

Matched Giver

Your donation has been doubled

$50

Sarah Christianson

$50

Matched Giver

Your donation has been doubled

$47

Kate Rogers - Cmri Mudgee

More merch collection money

$42

Anonymous

$42

Julie Wilton

1x adults t-shirt and $10 donation

$42

Michelle Brydon

$42

Matched Giver

Your donation has been doubled

$40

Anonymous

Hat, 2 yo-yos, pen

$40

Matched Giver

Your donation has been doubled

$37

Samantha Pattison

$33

Jaydem Hadosn

Thanks f45 team midgee

$32

Melodi Obrien

$32

Sarah Cunningham

Such a wonderful cause.

$32

Samantha Pattison

$32

Anonymous

Shirt size m

$32

Rebecca Rossi

Size 6 t-shirt Mudgee Preschool

$32

Lisa Fowler

Shirt $30

$32

Matched Giver

Your donation has been doubled

$32

Steph Ross

Thank you πŸ™πŸ»

$32

Charlotte + Noah Carr-doherty

$32

Cassie Mcgregor

$32

Anonymous

Good luck

$32

Anonymous

Mudgee Preschool - kids size 14 T-Shirt

$32

Matched Giver

Your donation has been doubled

$32

Stephanie Bartlett

$32

Mark Fehon

$32

Sally Bryant

$32

Thomas Roberts

Well done CMRI! Cheers Tom Roberts

$32

Matched Giver

Your donation has been doubled

$32

Danny Sullivan

Proud to support just an amazing cause.

$32

Nicole Louise Mcinnes

Mudgee Preschool

$32

Anonymous

$32

Kate Elder

Shirt F45

$32

Jessika Weatherall

$30

Lucy Birch

$30

Anonymous

$30

Debra Brown

$30

Westfund Mudgee

$30

Matched Giver

Your donation has been doubled

$30

Anonymous

$30

Jemma

Thanks x For size small jeans for genes shirt

$30

Anonymous

$30

Kiera Underwood

$30

Matched Giver

Your donation has been doubled

$30

Loft Mudgee

Hi there. This is from our in store collection box with a donation from us added in - re: Jane. With thanks!

$30

Matched Giver

Your donation has been doubled

$29

Kellie Colley

$26

Ash Bartlett

F45 Shirt

$26

Katrina Gallen

F45 shirt

$26

Bianca Williams

$26

Adam Keightley

$26

Tiano Sakaria

F45 shirt

$26

Kerri Farre

F45 shirt

$26

Lucinda Lee

F45 Shirt