Keeping up with Kalarny...
We are so chuffed to see one of our very own superstars in the national Jeans for Genes campaign!!
Kalarny was diagnosed with SMA Type 1 shortly after birth and is beating the odds left right and centre thanks to the first ever FDA approved drug for SMA, Spinraza.
According to reporting by the ABC, ‘SMA is the leading genetic cause of infant death in Australia, but breakthrough treatments can now improve symptoms and slow the progression of the illness if it is diagnosed early.
For some parents, that has been a difficult and devastating process, but now, a two-year pilot program will see more than 200,000 babies born in NSW and the ACT tested for the condition as soon as they are born, with SMA added to the newborn heel prick test.
Professor Ian Alexander, head of the Gene Therapy Research Unit at the Children's Medical Research Institute, said once the cells were lost, they were lost forever.
"The key with newborn screening is it allows you to detect the condition before the child develops symptoms, and intervene ... so that the child has lost no or minimal function," he said.
There are also exciting new gene therapy treatments being trialled for SMA.
Forty-five patients across the world including some from Australia are being recruited for the international study. A previous small trial of gene therapy found it helped all 15 children who were treated.
"In that trial, there were infants walking and talking that would have otherwise succumbed to the disease," Professor Alexander said.’
This is why the CMRI Mudgee Committee will never stop working to raise awareness and funds for CMRI.
Thank you to our Sponsors
$4.76k
Mudgee Community
$4.76k
Matched Giver
Your donation has been doubled
$3k
Ross Granata
$2.87k
Logan
$2.87k
Byrnes Jewellers
$2.87k
Mkr Choppers Pty Ltd
$2.87k
Matched Giver
Your donation has been doubled
$2.87k
Mudgee Newsagency
$2.85k
Leven Smash Repairs & Aas
$2.85k
Fam Connect
$2.85k
Petries Mitre 10
$2.85k
Nortons Business Advisors
$2.85k
Mary Lester
In loving memory of Mary Lester, from all the family xx
$1.47k
Ap
$1.31k
Gina Fitzgerald
$1.31k
Matched Giver
Your donation has been doubled
$1,000
Word Of Mouth Speech Pathology
$1,000
Mcdonald Lawson Carter
Congratulations Mudgee CMRI, a well worthy cause close to our hearts.
$1,000
Matched Giver
Your donation has been doubled
$630
Myff Clarke
$536
Mudgee High School
Money raised by students at Mudgee High School
$520
A1 Earthworx Mining & Civil Pty Ltd
Very happy to be able to donate to such a wonderful charity to help children.
$520
Matched Giver
Your donation has been doubled
$520
Jack&roy
“Nothing in this world is guaranteed, but unstoppable is she who fights for what she wants and what she believes” - we love you and are so proud of you! Keep up the amazing work!
$520
Stanmore 4wd
Awesome effort to everyone x
$520
Matched Giver
Your donation has been doubled
$500
Krysties
Love your work - inspirational
$500
Matched Giver
Your donation has been doubled
$500
The Property Shop Mudgee
An incredible initiative raising funds and awareness for the kids - congratulations to the Mudgee Committee!
$500
Matched Giver
Your donation has been doubled
$500
Double R
$500
Melissa Tym
$400
Sarah Christianson
$376
Myff Clarke
$369
Ak Constructions
$326
Peta Newsome
$325
Anonymous
$317
Mudgee Corner Store
From the team at Mudgee Corner Store
$301
Annie Hales Sievers
Great cause and great Hoodies x
$286
Gulgong Public School
Proudly fundraised on 05.08.2022 from Gulgong Public School students and staff.
$274
Sam Mcmaster
$273
Double R Mudgee
$273
Matched Giver
Your donation has been doubled
$270
Anonymous
$264
Matched Giver
Your donation has been doubled
$264
Vacsafe
Well done team Mudgee you guys are awesome!!!
$264
Matched Giver
Your donation has been doubled
$264
Mudgee Home Improvements
From the MHI team!! Great work!!
$264
Matched Giver
Your donation has been doubled
$264
Sarah Inglis
$264
Robert Stein Winery
$264
Three Tails Brewery
Brilliant work...well done!
$264
Matched Giver
Your donation has been doubled
$264
Kruger Carpets Mudgee
Great work Kate Rogers & the whole Mudgee CMRI Team 👏👏 Cheers from the Kruger Girls 👌👌
$250
Caitlin & Tim
$250
Matched Giver
Your donation has been doubled
$241
Lsr & Aas
$241
Matched Giver
Your donation has been doubled
$214
Stride Health
Donations from our J4G cake stall.
$214
Matched Giver
Your donation has been doubled
$211
Chandelle Newbigging
Great work Guys
$211
Ultimate Care Skin And Body Centre
Keep up the good work
$211
Matched Giver
Your donation has been doubled
$211
Mcfarland Family
$211
Matched Giver
Your donation has been doubled
$211
Eq Minds
$211
Matched Giver
Your donation has been doubled
$211
Lhs Mining Maintenance (hayley And Luke Xx)
$211
Matched Giver
Your donation has been doubled
$211
Property
$211
Matched Giver
Your donation has been doubled
$211
Cade Kitchen & Bar
Keep up the Great work
$211
Dick Hooper
$211
Matched Giver
Your donation has been doubled
$211
Peter And Jill Grieve
What a fantastic charity. Thank you Mudgee CMRI committee, it is a very worthy cause and we are proud to support it.
$211
Ben Curtis
Well done CMRI Mudgee - huge effort!
$206
Tina Tilney
$206
Hayley Smith
$206
Matched Giver
Your donation has been doubled
$200
Pearl & Adam Swords
We have incredible community!! 🙌 CMRI committee and all involved - you’re inspirational 💙💙
$200
Matched Giver
Your donation has been doubled
$200
Myff Clarke
$200
Matched Giver
Your donation has been doubled
$190
Alby & Esthers
Blue Muffin donation
$190
Matched Giver
Your donation has been doubled
$190
Puggles Child Care Centre
$174
Anonymous
$158
Alby & Esthers
$158
Matched Giver
Your donation has been doubled
$158
K And Co Hair Lounge
$158
Matched Giver
Your donation has been doubled
$151
Kate Rogers
Funds from collection of merchandise around town (mudgee)
$151
Matched Giver
Your donation has been doubled
$150
Chloe Smith
$150
Matched Giver
Your donation has been doubled
$137
Gemma Parker
$137
Kelly Warner
$137
Matched Giver
Your donation has been doubled
$137
Renee Bond
Well done team 1 x 8 @ Gorjus 1 x 6 @ Gorjus Will get a size 4 from you Summer.
$137
Tracy Drewe
$137
Matched Giver
Your donation has been doubled
$137
Prior And Hall Recruitment
Keep up the great work CMRI. Loving the hoodies too!
$137
Grace Quinn
$137
Matched Giver
Your donation has been doubled
$132
Michelle Carter
Great work team!
$132
Matched Giver
Your donation has been doubled
$131
Coles
Coles cake stall
$130
Alexandra Reynolds
$127
Stride Health
To all our amazing kids, you brighten our day every week ♥️
$127
St Matthews Mudgee
St Matthews Merchandise
$125
Word Of Mouth Speech Pathology
$124
Jayne Single
$123
Mudgee Hospital
$123
Matched Giver
Your donation has been doubled
$117
Amy Brady
$117
Matched Giver
Your donation has been doubled
$116
Merridy Keightley
$116
Matched Giver
Your donation has been doubled
$115
Anne Cumberland
$110
Donna Land
$110
Jeans For Genes
Your donation has been doubled
$110
Renee Martin
$110
Jeans For Genes
Your donation has been doubled
$110
Lesley Robertson
$110
Beth, Don, Douglas & Cambell
Well done Mudgee team, and a special hug for Charlie Banjo x
$110
Matched Giver
Your donation has been doubled
$110
Emma Burns
Amazing work!
$110
Matched Giver
Your donation has been doubled
$110
Tania Milovanovic - Thermomix Consultant
Keep up the great work, so pleased to support a local organisation 💙
$110
Jan O'brien
$110
Barbie
Sending love
$110
Ian Colley
$110
Christine Shearman
Great work guys!!
$110
Matched Giver
Your donation has been doubled
$110
Liz Loneragan
Go Team Mudgee!!
$110
Matched Giver
Your donation has been doubled
$110
Jayne Single
$110
Edmunds Interiors
$110
Matched Giver
Your donation has been doubled
$110
Jenny & Des
Congratulations team
$110
Leanne Stewart
To our little Supergirl Mia xx
$110
Mitchell Jones
Go team!
$110
Matched Giver
Your donation has been doubled
$110
Jan & Paul
$110
Matched Giver
Your donation has been doubled
$110
Paige Loneragan
$110
Matched Giver
Your donation has been doubled
$110
Lykera Parker
2x tickets
$110
Smk And Co Kitchens And Bathrooms
Amazing work Mudgee!!
$110
Matched Giver
Your donation has been doubled
$110
Matched Giver
Your donation has been doubled
$107
Funk Fitness
$106
Jen Ramien
$106
Matched Giver
Your donation has been doubled
$106
Charmaine Hurrell
Love small town support for a big cause
$106
Matched Giver
Your donation has been doubled
$106
Anonymous
$106
Ben Reynolds
$106
Matched Giver
Your donation has been doubled
$106
Sarah Cunningham
Such a beautiful cause. X
$106
Matched Giver
Your donation has been doubled
$106
Annie Hales Siever
Thanks for all your hard work
$106
Matched Giver
Your donation has been doubled
$106
Anonymous
$106
Rachel Green
Absolutely bloody amazing job guys
$106
Matched Giver
Your donation has been doubled
$106
Matched Giver
Your donation has been doubled
$106
Regan Air Conditioning
$106
Jenna Blewitt
$106
Matched Giver
Your donation has been doubled
$106
Matched Giver
Your donation has been doubled
$106
Cherie Edwards
$106
Matched Giver
Your donation has been doubled
$106
Rachel & Richard Brown
$106
Nicole Heighway
$106
Matched Giver
Your donation has been doubled
$104
Melinda Shearman
$104
Matched Giver
Your donation has been doubled
$104
Centre For Executive Development (ced)
Amazing cause and committee 🙌💙
$104
Matched Giver
Your donation has been doubled
$104
Peter Harvey
$104
Matched Giver
Your donation has been doubled
$100
Neree Suttor
$100
Matched Giver
Your donation has been doubled
$100
Nicole Louise Mcinnes
$100
Laura Smede
Xl shirt Xl jumper
$100
Natural Build
Well done team
$100
Matched Giver
Your donation has been doubled
$100
Anonymous
$100
Matched Giver
Your donation has been doubled
$95
Kate Williamson
$95
Renee Martin
Size M Hoodie $65 Size 10 green shirt $25
$91
Oliver Rogers
My mum has been a committee member at Mudgee for a few years now - I wanted to support her and the rest of the Mudgee Committee’s efforts xx
$91
Matched Giver
Your donation has been doubled
$91
St Matthews Catholic School
$91
Helen Dziura
$91
Matched Giver
Your donation has been doubled
$91
Prior And Hall Recruitment
$91
Lynelle Howland
$91
Julie Tito
$35
$91
Kat Booth
$30 T-shirt
$91
Anonymous
$91
Sally Callander
F45 shirt
$91
Kristen Organ
$91
Ap
$90
Oz Choppers
$90
Matched Giver
Your donation has been doubled
$90
Jemma Williams
$88
Stride Health
Cake stall & merch box funds
$86
Kimberley Mason
$84
Debra Campbell
$84
Matched Giver
Your donation has been doubled
$80
Petries Mitre 10
$79
Sheridan Byrne
$79
Matched Giver
Your donation has been doubled
$79
Bill Dowdy
Level Plumbing
$79
Matched Giver
Your donation has been doubled
$75
Lucy Mcnamara
$75
Matched Giver
Your donation has been doubled
$74
Squeakers
$74
Katrina Curry
$74
Matched Giver
Your donation has been doubled
$74
Liz Shady
$74
Matched Giver
Your donation has been doubled
$70
Beauty Reclaimed
$69
Donna Doherty
$69
Aimee Maguire
$69
Anonymous
Hoodie -xl
$69
Arun Pragasam
$69
Anonymous
$69
Matched Giver
Your donation has been doubled
$69
Jane Roberts
$69
Megan Gossage
$69
Linda Foote
$69
Anonymous
$69
Matched Giver
Your donation has been doubled
$69
Anonymous
$69
Michelle Brydon
$69
Nicky Stevens
Great work team!!
$69
Matched Giver
Your donation has been doubled
$69
Claire Harries
MPS hoodie large.
$69
Megan Greig
Kids Hoodie
$69
Rosie Gibbs
So happy to purchase a hoodie as a birthday present for a friend and support Jeans for Genes at the same time!
$69
Annie Sievers
Beyond impressed by this committee and our community.
$69
Naomi Turner
$69
Karen Denyer
$69
Matched Giver
Your donation has been doubled
$69
Ashlee Parker
$69
Matched Giver
Your donation has been doubled
$69
Matthew Best
👍👍
$69
Matched Giver
Your donation has been doubled
$69
Roslyn Roser
$69
Mel Robbins
$69
Jilly Roberts
$69
Matched Giver
Your donation has been doubled
$69
Linda Clarke
$69
Anonymous
$69
Matched Giver
Your donation has been doubled
$69
Amy Lee
AMAZING job guys
$69
Michelle Brydon
$69
Brooke Pretty
$69
Matched Giver
Your donation has been doubled
$69
Anonymous
Mudgee Preschool - hoodie
$69
Anonymous
$65
Anonymous
$65
Matched Giver
Your donation has been doubled
$65
Chris Schneider
$65
Sarah Christianson
$65
Ben Newsome
$65
Ciara O'farrell
$65
Becky Purcell
$65
Matched Giver
Your donation has been doubled
$65
Fiona Foote
Kids jumper
$65
Boyd Pattison
$65
Matched Giver
Your donation has been doubled
$65
Myff Clarke
$63
Paige
$63
Andrew Palmer
$63
Matched Giver
Your donation has been doubled
$63
Harni Kearns
$63
Lou Mclean
Bake sale & 200 club
$63
Matched Giver
Your donation has been doubled
$63
Amy Tracy-inglis
$63
Matched Giver
Your donation has been doubled
$63
Bettina James
$63
Jess Mcfarlane
Way to go Mudgee!
$63
Matched Giver
Your donation has been doubled
$60
Kate Shoemark
For our friend Bug
$58
Rachel Green
$58
Matched Giver
Your donation has been doubled
$58
Anna Baker
$56
Dallas Rheinberger’
Well done and hope you raise much more needed funds!
$56
Matched Giver
Your donation has been doubled
$56
Kate Day
$56
Cam & D Whiteside
💙👖💙
$56
Matched Giver
Your donation has been doubled
$56
Anonymous
2 yellow size 8
$56
Rebecca Miles
$56
Matched Giver
Your donation has been doubled
$56
Coral
$56
Matched Giver
Your donation has been doubled
$56
Emma Whiteley
Amazing job Mudgee community! Such an important cause ❤️
$56
Matched Giver
Your donation has been doubled
$56
Andy Banks
$56
Matched Giver
Your donation has been doubled
$56
Naomi Louise Hair
Great work team 👏🏼👏🏼
$56
Edith D
$56
Matched Giver
Your donation has been doubled
$56
Alayna Gleeson
$56
Matched Giver
Your donation has been doubled
$56
Mudgee Xray Crew
Go Team Mudgee!!
$56
Matched Giver
Your donation has been doubled
$56
Ashlee Kenny
$56
Matched Giver
Your donation has been doubled
$56
Anonymous
$56
Sheri
$56
Matched Giver
Your donation has been doubled
$56
Lucy And Hunter
$56
Paige Loneragan
$56
Matched Giver
Your donation has been doubled
$56
Renee
$56
Neree Suttor
$56
Emily Blacka
$56
Trina Karstrom
Go team Mudgee! Great fundraising efforts!
$56
Deborah Grover
This is a worthy fundraiser. I've always supported Jeans for Genes Day as my son was born with Trisomy 21 or Down Syndrome as it's usually known. All research that helps our kids lead full and healthy lives is a good thing.
$56
Damian, Issy + Olle Kearns
How good is our village?! 💙
$56
Katie Mclean
2x F45 tshirts
$56
Matched Giver
Your donation has been doubled
$56
Anonymous
$56
Anonymous
$56
Matched Giver
Your donation has been doubled
$56
Chelsea Williams
$56
Kate Day
Well done team. X
$56
Anonymous
$56
Matched Giver
Your donation has been doubled
$56
Matched Giver
Your donation has been doubled
$56
Kamara &matt
$56
Matched Giver
Your donation has been doubled
$56
Jason Rheinberger
Keep up the good work guys
$56
Sam Kost
$56
Matched Giver
Your donation has been doubled
$56
Sarah Christian
$56
Matched Giver
Your donation has been doubled
$56
Adam Sutherland
Great effort!!
$56
Matched Giver
Your donation has been doubled
$56
Steph Crowe
$56
Matched Giver
Your donation has been doubled
$54
Anonymous
$54
Kate Rogers
$54
Robbie Holdaway
$53
Rosemarie Amos
$53
Matched Giver
Your donation has been doubled
$53
Julie Canham
$53
Sarah Christianson
$53
Matched Giver
Your donation has been doubled
$53
Margot
$53
Elizabeth Kennedy
$53
Matched Giver
Your donation has been doubled
$53
Samantha Cecchini
The whole town is behind you. Great effort Mudgee.
$53
Matched Giver
Your donation has been doubled
$53
Edie And Charlotte Croake
$53
Matched Giver
Your donation has been doubled
$53
Anonymous
$53
Matched Giver
Your donation has been doubled
$53
Anonymous
$53
Matched Giver
Your donation has been doubled
$53
Matched Giver
Your donation has been doubled
$53
Hailey Argus
$53
Karen Cutrupi
$53
Jess Martens
$53
Matched Giver
Your donation has been doubled
$53
Matched Giver
Your donation has been doubled
$53
Matched Giver
Your donation has been doubled
$53
Jacova Woolsey
$53
Jodi Davison
Doin’ it for the Mudgee kids
$53
Matched Giver
Your donation has been doubled
$53
Matched Giver
Your donation has been doubled
$53
Anonymous
Well done
$53
Tianna Best
$53
Matched Giver
Your donation has been doubled
$53
Jane Roberts
Go team mudgee committee and village!!!
$53
Matched Giver
Your donation has been doubled
$53
Amy Claypole
$53
Tash Davis
Awesome work team. So proud of our community!!!!!
$53
Matched Giver
Your donation has been doubled
$53
Matched Giver
Your donation has been doubled
$53
David Sebelic
$53
Matched Giver
Your donation has been doubled
$53
Jes Cubis
Go team Mudgee 👖💙
$53
Matched Giver
Your donation has been doubled
$53
Kayeleene Marlow
Size 4y
$53
Sue Mccarten
$53
Matched Giver
Your donation has been doubled
$53
Susan Barling
$53
Cassandra Endacott
$53
Matched Giver
Your donation has been doubled
$53
Linda Lewis
$53
Matched Giver
Your donation has been doubled
$53
Robyn Griffin
$53
Matched Giver
Your donation has been doubled
$53
Bronte Bagala
$53
Matched Giver
Your donation has been doubled
$53
Isabella Harris
$53
Matched Giver
Your donation has been doubled
$53
Ben Newsome
$53
Crystal Clavel
$53
Matched Giver
Your donation has been doubled
$53
Ian Colley
F45 challenge shirt
$53
Will And Gus Reynolds
$53
Matched Giver
Your donation has been doubled
$53
Catherine Flack
100 club
$53
Matched Giver
Your donation has been doubled
$53
Lochlan Mortensen
$53
Anonymous
$53
Matched Giver
Your donation has been doubled
$53
Matched Giver
Your donation has been doubled
$53
Margo Mackenzie
$53
Shelly Leonard
$53
Matched Giver
Your donation has been doubled
$53
Matched Giver
Your donation has been doubled
$53
Amy Brady
Mudgee Kids
$53
Matched Giver
Your donation has been doubled
$53
Nadya Marshall
$53
Matched Giver
Your donation has been doubled
$53
Anonymous
$53
Matched Giver
Your donation has been doubled
$53
Sam Pattison
$53
Carina Swords
Hundreds square x 1
$53
Aaron Cubis
$53
Matched Giver
Your donation has been doubled
$51
Anonymous
$51
Anonymous
$50
Laura Power
$50
Matched Giver
Your donation has been doubled
$50
Anonymous
$50
Max Morgan
Go CMRI 2022!
$50
Matched Giver
Your donation has been doubled
$50
White Cedars Goats Milk Soap And Handcrafted Timberwork
$50
Matched Giver
Your donation has been doubled
$50
Sally Callander Law
$50
Matched Giver
Your donation has been doubled
$50
Stephanie Mcnamara
$50
Matched Giver
Your donation has been doubled
$50
Mitch, Chloe & Henry Clarke
💙
$50
Adam Williams
$50
Matched Giver
Your donation has been doubled
$50
Sarah Christianson
$50
Matched Giver
Your donation has been doubled
$47
Kate Rogers - Cmri Mudgee
More merch collection money
$42
Anonymous
$42
Julie Wilton
1x adults t-shirt and $10 donation
$42
Michelle Brydon
$42
Matched Giver
Your donation has been doubled
$40
Anonymous
Hat, 2 yo-yos, pen
$40
Matched Giver
Your donation has been doubled
$37
Samantha Pattison
$33
Jaydem Hadosn
Thanks f45 team midgee
$32
Melodi Obrien
$32
Sarah Cunningham
Such a wonderful cause.
$32
Samantha Pattison
$32
Anonymous
Shirt size m
$32
Rebecca Rossi
Size 6 t-shirt Mudgee Preschool
$32
Lisa Fowler
Shirt $30
$32
Matched Giver
Your donation has been doubled
$32
Steph Ross
Thank you 🙏🏻
$32
Charlotte + Noah Carr-doherty
$32
Cassie Mcgregor
$32
Anonymous
Good luck
$32
Anonymous
Mudgee Preschool - kids size 14 T-Shirt
$32
Matched Giver
Your donation has been doubled
$32
Stephanie Bartlett
$32
Mark Fehon
$32
Sally Bryant
$32
Thomas Roberts
Well done CMRI! Cheers Tom Roberts
$32
Matched Giver
Your donation has been doubled
$32
Danny Sullivan
Proud to support just an amazing cause.
$32
Nicole Louise Mcinnes
Mudgee Preschool
$32
Anonymous
$32
Kate Elder
Shirt F45
$32
Jessika Weatherall
$30
Lucy Birch
$30
Anonymous
$30
Debra Brown
$30
Westfund Mudgee
$30
Matched Giver
Your donation has been doubled
$30
Anonymous
$30
Jemma
Thanks x For size small jeans for genes shirt
$30
Anonymous
$30
Kiera Underwood
$30
Matched Giver
Your donation has been doubled
$30
Loft Mudgee
Hi there. This is from our in store collection box with a donation from us added in - re: Jane. With thanks!
$30
Matched Giver
Your donation has been doubled
$29
Kellie Colley
$26
Ash Bartlett
F45 Shirt
$26
Katrina Gallen
F45 shirt
$26
Bianca Williams
$26
Adam Keightley
$26
Tiano Sakaria
F45 shirt
$26
Kerri Farre
F45 shirt
$26
Lucinda Lee
F45 Shirt
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