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Why I’m doing Jeans for Genes

When young parents Sarah and Carmelo learned their child had a genetic condition, they feared for his future – but when they discovered what medical research is doing about it, they gained new hope.

Sarah and Carmelo were first time parents when Joseph was born. He didn’t feed or sleep well but his parents didn’t worry too much until they got a call about his newborn screening results.

“When you get a phone call from the paediatrician saying, ‘your son is testing very high for cystic fibrosis’ the first thing you do is Google it,’’ Carmelo said. “And when you type in ‘what is cystic fibrosis’, and it says you have a life expectancy of around 25 years… The first thing I did was burst into tears and threw up.’’

But medication exists to treat patients with cystic fibrosis, and luckily for Joseph, he has only ever been hospitalised once. He does require daily treatment and must avoid high risk environments.

Hope has grown even more as the family heard about CMRI’s research on gene therapy for CF. This could mean that one day a simple injection could provide a cure.

“We're the lucky ones, I guess. There are other kids that are way more sick,” Carmelo said. “And when we went to the Jeans for Genes research facility and learned about gene therapy – it’s amazing to think that not only could it help Joseph and kids with cystic fibrosis, but a lot of other genetic diseases.

“When you donate to Jeans for Genes you are not just curing one disease – you could be curing many.’’

Join me. Share this message. Donate. Thank You!

Latest updates

19 Jun 2024 by Sarah Cisca

Meet Joseph

Latest donations

$ 55.92

Carlo & Betty Di Pasqua donated at 4 months ago

"Joseph, you are such an inspiration. May God bless you always x"

$ 37.98

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 37.98

Anonymous donated at 4 months ago

"❤️"

$ 1.5k

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 1.5k

Salter Brother’s Stephen Cossetto donated at 4 months ago

$ 158.25

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 158.25

Cathy And Louis Salvagio donated at 4 months ago

"You are doing a fabulous job Joseph! You are a gorgeous boy."

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Vito Salvagio donated at 4 months ago

"Great work to you Joseph and the family xx"

$ 90.73

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 90.73

Lauren Tavener donated at 4 months ago

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Kellie Chapman donated at 4 months ago

"Sending butterflies your way"

$ 21.10

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 21.10

Danielle Dixon donated at 4 months ago

"Thank you so much! An incredible day and cause!"

$ 109.72

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 109.72

Liana Duarte Mascaro donated at 4 months ago

"Thank you so much! Happy to support 💛💛"

$ 5.42k

St Joseph's Catholic Primary School Enfield donated at 4 months ago

$ 5.42k

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Lucas Nogueira donated at 4 months ago

$ 316.50

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 316.50

Siena Frino donated at 4 months ago

"So proud of my big cousin."

$ 200

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 200

Giannis Motor Mechanic donated at 4 months ago

$ 104

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 104

Cutrupi Family donated at 4 months ago

"We’re so proud of you Joseph! Keep up the awesome work Melo and Sarah! We love you all x"

$ 105.50

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 105.50

Pronprohm Thai Restaurant donated at 4 months ago

"We love you Joseph"

$ 86

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 86

Alex & Jess donated at 4 months ago

"Proud of you Joseph 💙"

$ 520

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 520

Robinson Y Gabriela donated at 4 months ago

"TQM amigo. Together forever 🥰"

$ 1.52k

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 1.52k

Carmelo, Sarah & Cristian Cisca donated at 4 months ago

"To our very own superhero! We are so proud of you! The more awareness we raise, the more research is done and the closer we are to finding a cure. We love you so much! Love Dad, Mum and Cristian"

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Pauline, Silas & The Boys donated at 4 months ago

"Sarah & Melo the unconditional support you show for Joseph is amazing and his strength and resilience is a true testament to how you have raised him. Keep doing what you doing and we’ll all keep praying for a cure. 😘"

$ 319.50

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 319.50

Luca donated at 4 months ago

$ 31.65

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 31.65

Tegan Kanard donated at 4 months ago

"Thank you for being so brave, beautiful Cisco family!!"

$ 520

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 520

Uncle Mickey donated at 4 months ago

"Joseph our superhero"

$ 158.25

Carmelina donated at 4 months ago

"Shine bright little man.. let's find a cure ♥️♥️"

$ 158.25

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 105.50

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 105.50

Anna & Vince Pip donated at 4 months ago

"Good work Joseph keep it up Love you 🥰🥰🥰🥰"

$ 500

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 500

Gina & Angelo D’aquino donated at 4 months ago

"We are very proud of you Joseph, you are a special and wonderful boy and we love you very much. Lots of love Zia Gina & Angelo D’Aquino"

$ 1,000

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 1,000

Epi Electrical Team (pipio Family) donated at 4 months ago

"You’re a champion Joseph. Stay strong"

$ 520

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 520

Ivory Estate Agents donated at 4 months ago

"to Joseph and all children going through a rough time, just know your are not alone and we will fight with you and find a cure for cystic fibrosis'."

$ 1.02k

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 1.02k

Barista Vs Chef donated at 4 months ago

"We love you so much Joseph keep defying the odds and being a role model not only to your brother and cousins but for all kids 💙 Lots of love Carmelo, Massimo, Livia BVC team"

$ 316.50

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 316.50

Magda Pizzolato donated at 4 months ago

"Well done Joseph you truly are a beautiful boy so proud of you. Lots of love from The Pizzo’s"

$ 1.52k

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 1.52k

Rebecca Newbury donated at 4 months ago

"For our beautiful super hero we love you beyond measure and are so proud to be part of your beautiful life love Eddie Bec Robinson and Gabriela The Ahumadas"

$ 52.75

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 52.75

Amy D’angola donated at 4 months ago

"❤️"

$ 1.02k

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 1.02k

Joe & Nancy Cisca donated at 4 months ago

"Joseph, our superhero. Real heroes don’t wear capes…So proud of you and your Mum & Dad. Nonno & Nonna Love you to infinity and beyond xxx"

$ 20

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 20

Monaco Family (luisa And Anthony's Friends) donated at 4 months ago

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Kyra donated at 4 months ago

$ 86

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 86

Anonymous donated at 4 months ago

$ 109.72

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 109.72

Emmanuel & Elijah T donated at 4 months ago

"We’re so proud of you our buddy Joseph!"

$ 10.55

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 10.55

Anonymous donated at 4 months ago

$ 5.28

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 5.28

Anonymous donated at 4 months ago

$ 52.75

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 52.75

Iain Laughland donated at 4 months ago

"Go Joseph!! 👍👍"

$ 50

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 50

Mel De Groot donated at 4 months ago

$ 10.55

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 10.55

Sarah Ryken donated at 4 months ago

$ 1.02k

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 1.02k

L & A Alloggia Family donated at 4 months ago

"Joseph you are a strong boy and we love you xx"

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Alexander Wong donated at 4 months ago

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Sarah Jones donated at 4 months ago

$ 31.65

Maria Kotronakis donated at 4 months ago

$ 31.65

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Anonymous donated at 4 months ago

$ 10.55

Erin L donated at 4 months ago

$ 55.92

Jenny Crane Crane donated at 4 months ago

$ 10.55

Jesse Gee donated at 4 months ago

$ 55.92

Anonymous donated at 4 months ago

$ 10.55

Bridget When donated at 4 months ago

$ 26.38

Anonymous donated at 4 months ago

$ 21.10

Emile Carre donated at 4 months ago

$ 5.28

Anonymous donated at 4 months ago

$ 5.28

Angelina Ferro donated at 4 months ago

$ 5.28

Anonymous donated at 4 months ago

$ 21.10

Beau Booth donated at 4 months ago

"Stay strong little man 💙"

$ 21.10

Sam G donated at 4 months ago

$ 211

Fred’s Bagels & Bread (bishara) donated at 4 months ago

"It was lovely to hear your story Carmello and Sarah . Joseph you are a champion and a star and you are an inspiration to all of us . We need more people to donate to this great cause for gene therapy . love from Your Fred’s Bagels family"

$ 110.78

Brenton Barker donated at 4 months ago

"Real hero’s!"

$ 105.50

Angela Crespin donated at 5 months ago

"Such a great cause. Thanks for sharing your beautiful boys story."

$ 109.72

Anonymous donated at 5 months ago

$ 108.16

Anonymous donated at 5 months ago

"Such an inspiring little man 💙"

$ 26.38

Jude (carri & Mel’s Friend) donated at 5 months ago

$ 55.92

Keti Naumovski donated at 5 months ago

"Thank you for sharing your story with us Joseph! So brave and so inspirational :)"

$ 109.72

Carmelo And Carri D’aquino donated at 5 months ago

"Love you Joseph, we are so proud of you. Melo, Carri, Tom, Will and Arabella. Xx"

$ 53

Claire Chin donated at 5 months ago

"It was amazing to hear about Joseph’s story today. So inspiring and reminds us how we have the opportunity to give to amazing causes."

$ 158.25

Antony Frino donated at 5 months ago

"Keep doing us proud our Super Hero Joseph"

$ 158.25

T L donated at 5 months ago

"You're a superstar Joseph! And very inspiring to hear your story Sarah and Carmelo"

$ 55.12

Vanessa donated at 5 months ago

"❤️"

$ 89.44

Mr & Mrs Elmowy donated at 6 months ago

$ 162

Dean Burrello donated at 6 months ago

$ 109.72

Luisa And Anthony Sirianni donated at 6 months ago

My Impact

So far this year I helped provide...

802

Hours of research

For every $50 raised, one hour of research is funded

Funds raised over the years

Biggest Donor

Jean-ius Donor

$5,420

Thank you so much to my biggest supporter, St Joseph's Catholic Primary School Enfield, for donating an incredible $5,420 to help fund vital research into curing children’s genetic diseases.

Thank you to our Sponsors

$56

Carlo & Betty Di Pasqua

Joseph, you are such an inspiration. May God bless you always x

4 months ago

$38

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$38

Anonymous

❤️

4 months ago

$1.5k

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$1.5k

4 months ago

$5.42k

4 months ago

$317

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$317

Siena Frino

So proud of my big cousin.

4 months ago

$200

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$200

$56

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$56

Kyra

4 months ago

$86

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$86

4 months ago

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

4 months ago

$11

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$11

4 months ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$56

Sarah Jones

4 months ago

$32

Maria Kotronakis

4 months ago

$32

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$106

Angela Crespin

Such a great cause. Thanks for sharing your beautiful boys story.

5 months ago

$110

Anonymous

5 months ago

$108

Anonymous

Such an inspiring little man 💙

5 months ago

$26

6 months ago

$162

Dean Burrello

6 months ago

$110

Luisa And Anthony Sirianni

6 months ago

Joseph's Story

Please Help MeReach My Goal

Raised

$40,108

My Goal

$25,000

Select amount to donate

Why I’m doing Jeans for Genes

Latest updates

Meet Joseph

Latest donations

My Impact

Hours of research

Funds raised over the years

Biggest Donor

Jean-ius Donor

$5,420

Thank you to our Sponsors

Carlo & Betty Di Pasqua

Matched Gift

Anonymous

Matched Gift

Salter Brother’s Stephen Cossetto

Matched Gift

Cathy And Louis Salvagio

Matched Gift

Vito Salvagio

Matched Gift

Lauren Tavener

Matched Gift

Kellie Chapman

Matched Gift

Danielle Dixon

Matched Gift

Liana Duarte Mascaro

St Joseph's Catholic Primary School Enfield

Matched Gift

Matched Gift

Lucas Nogueira

Matched Gift

Siena Frino

Matched Gift

Giannis Motor Mechanic

Matched Gift

Cutrupi Family

Matched Gift

Pronprohm Thai Restaurant

Matched Gift

Alex & Jess

Matched Gift

Robinson Y Gabriela

Matched Gift

Carmelo, Sarah & Cristian Cisca

Matched Gift

Pauline, Silas & The Boys

Matched Gift

Luca

Matched Gift

Tegan Kanard

Matched Gift

Uncle Mickey

Carmelina

Matched Gift

Matched Gift

Anna & Vince Pip

Matched Gift

Gina & Angelo D’aquino

Matched Gift

Epi Electrical Team (pipio Family)

Matched Gift

Ivory Estate Agents

Matched Gift

Barista Vs Chef

Matched Gift

Magda Pizzolato

Matched Gift

Rebecca Newbury

Matched Gift

Amy D’angola

Matched Gift

Please Help Me
Reach My Goal