Jeans for Genes

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Why we're doing Jeans for Genes’ Sofa to 6k

Our team cares about the 1 in 20 Aussie kids who face a birth defect or genetic disease. That's one in every classroom, maybe someone you know or love. Every day, many of these kids wake up to pills, injections, hospital visits (or worse). They don't get the chance to run around and just be kids. If they can endure that, and keep smiling, then the least we can do is fight alongside them. That's why we're doing Jeans for Genes and raising money for Children's Medical Research Institute. We want to give these kids better treatments and maybe even a cure.

We’ve signed up to Sofa to 6K, so we can raise awareness and start the conversation—we need to do all we can to help save more kids’ lives. Can you help by sharing this message with the people you know and asking them to donate too? We (and millions of Aussie kids) thank you for it!

Here's just one example of how, together, we can change things:

When Kalarny was born, he couldn’t hold his head up. He couldn’t move. He was fighting just to breathe. He was diagnosed with Spinal Muscular Atrophy (SMA), and his parents were told he wouldn’t survive to his first birthday. Thanks to research he survived, but he needs regular spinal injections and a wheelchair to get around. If he’d been born just a few years later, he could have received gene therapy. Infants treated with just one injection of gene therapy seem to be cured. It’s early days, but signs indicate that they will go on to lead normal, healthy lives. It’s so effective, SMA has been added to newborn screening and the gene therapy treatment is covered by PBS. An incurable disease just a few years ago, is now curable. Amazing. That’s what we want for more kids and more of the 6000 genetic diseases out there.

There’s lots of work to do, but there is also lots of hope.

Join me. Share this message. Donate. Thank You!

Our Impact

So far this year we helped provide...

260

Hours of research

For every $55 raised, one hour of research is funded

WTW

Please Help UsReach Our Goal

Raised

$14,327

Our Goal

$15,000

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Why we're doing Jeans for Genes’ Sofa to 6k

Our Impact

Hours of research

Our Team Members

Jean-ius Club

Linke

Raised so far:

$3,978

Jean-ius Club

Patrice Taylor

Raised so far:

$56

Jean-ius Club

Emma Donghia

Raised so far:

$321

Jean-ius Club

Isabelle Tucker

Raised so far:

$89

Jean-ius Club

Tabi Cartlidge

Jean-ius Club

Gen Pitkeathly

Raised so far:

$106

Jean-ius Club

Michael Roberts

Raised so far:

$109

Jean-ius Club

Bruce Ballment

Jean-ius Club

Simon Weaver

Raised so far:

$91

Jean-ius Club

Sean Hollins

Jean-ius Club

Emily Hanrahan Smith

Raised so far:

$107

Jean-ius Club

Kirk Populin

Raised so far:

$56

Jean-ius Club

Clint Hitchcock

Raised so far:

$105

Jean-ius Club

Bec Steinert

Jean-ius Club

Katherine Lamont

Raised so far:

$159

Jean-ius Club

Nicole Robinson

Raised so far:

$448

Jean-ius Club

Kozzy

Raised so far:

$707

Jean-ius Club

Tim Unger

Raised so far:

$104

Jean-ius Club

Gwen McKay

Raised so far:

$56

Jean-ius Club

Please Help Us
Reach Our Goal