Wearing Jeans for Jonah

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Why we’re doing Jeans for Genes

We’ve signed up to Jeans for Genes to raise money for Children’s Medical Research Institute and help save more kids’ lives. 

Jonah was diagnosed with Congenital Myasthenic Syndrome caused by a defective Rapsyn gene, when he was 11 months old. This condition is extremely rare and affects 1 in 500,000 people. After spending alot of his first year in the ICU at RCH on ventilators due to not being able to fight, or breathe through, any illnesses, he was finally diagnosed after extensive testing. He currently takes 19 tablets per day to keep his muscles working and uses a wheelchair to get around to help save his battery. 

We care about the 1 in 20 Aussie kids who face a birth defect or genetic disease, like Jonah. Thankfully the work the scientists do at CMRI has ensured that Jonah is still with us today. So, the research you and I support today may one day help someone we know.

There’s lots of work to do, but there is also lots of hope.

Join me. Share this message. Donate. Thank You!

Our Impact

So far this year we helped provide...

30

Hours of research

For every $55 raised, one hour of research is funded

Thank you to our Sponsors

$11

Tash Graham

1 month ago

$11

Abi Lowman

2 months ago

$21

Anonymous

2 months ago

$10

Anonymous

2 months ago

$11

Emily Howlett

2 months ago

$11

Anonymous

2 months ago

$11

Piper & Jai Copley

2 months ago

$11

Sam Pilkington

2 months ago

$16

Anonymous

2 months ago

$21

Fraser

2 months ago

$16

Lauren Leicester

2 months ago

$5

Anonymous

2 months ago

$11

Alex Lupeiki

2 months ago

$21

Amethyst

2 months ago

$57

Podigachoski Family

2 months ago

$21

Leo D

2 months ago

$12

Gardenia Vaimoso

All our love xo

2 months ago

$53

Erin Anastasiou

2 months ago

$53

Anonymous

2 months ago

$21

Mitch

2 months ago

$11

Wren W

2 months ago

$11

Anonymous

2 months ago

$11

Luka Opacak

2 months ago

$26

Teags

2 months ago

$30

Renee Cootes

2 months ago

$26

Anonymous

2 months ago

$21

Anonymous

2 months ago

$11

Anonymous

2 months ago

$21

Larni Dolegowski

2 months ago

$56

Brianna Vale

2 months ago

$104

Craig Robbins

💝

2 months ago

$16

Jackie Barber

2 months ago

$21

Michelle Hunter

Xxx

2 months ago

$21

Ebony Papageorge

🩵🩵🩵

2 months ago

$11

Marina Henare

2 months ago

$26

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$26

Renee Beecham

2 months ago

$16

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$16

Kylie Stephens

2 months ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$56

The Freemans

All our love, The Freemans ❤️

2 months ago

$26

Laurelle Seamer

2 months ago

$26

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$56

Joanne Bottin

Love you Jonah, you champion xx

2 months ago

$21

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$21

Annie Chidlow

2 months ago

$11

Jayne Taylor

xxx

2 months ago

$11

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$32

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$32

Jenny Dridan

2 months ago

$32

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$32

Sue And John Dobson

Lots of love from Nan and Grandad Jonah xxxx

2 months ago

$32

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$32

Jenna Millanta

Love you Jonah ❤️🐳

2 months ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$56

Kelly Hardy

❤️❤️❤️

2 months ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$53

Leigh Dobson

For our warrior Jonah xx

2 months ago