Why we’re doing Jeans for Genes
We’ve signed up to Jeans for Genes to raise money for Children’s Medical Research Institute and help save more kids’ lives.
Jonah was diagnosed with Congenital Myasthenic Syndrome caused by a defective Rapsyn gene, when he was 11 months old. This condition is extremely rare and affects 1 in 500,000 people. After spending alot of his first year in the ICU at RCH on ventilators due to not being able to fight, or breathe through, any illnesses, he was finally diagnosed after extensive testing. He currently takes 19 tablets per day to keep his muscles working and uses a wheelchair to get around to help save his battery.
We care about the 1 in 20 Aussie kids who face a birth defect or genetic disease, like Jonah. Thankfully the work the scientists do at CMRI has ensured that Jonah is still with us today. So, the research you and I support today may one day help someone we know.
There’s lots of work to do, but there is also lots of hope.
Join me. Share this message. Donate. Thank You!
Our Impact
So far this year we helped provide...
30
Hours of research
For every $55 raised, one hour of research is funded
Our Team Members
Thank you to our Sponsors
$11
Tash Graham
$11
Abi Lowman
$21
Anonymous
$10
Anonymous
$11
Emily Howlett
$11
Anonymous
$11
Piper & Jai Copley
$11
Sam Pilkington
$16
Anonymous
$21
Fraser
$16
Lauren Leicester
$5
Anonymous
$11
Alex Lupeiki
$21
Amethyst
$57
Podigachoski Family
$21
Leo D
$12
Gardenia Vaimoso
All our love xo
$53
Erin Anastasiou
$53
Anonymous
$21
Mitch
$11
Wren W
$11
Anonymous
$11
Luka Opacak
$26
Teags
$30
Renee Cootes
$26
Anonymous
$21
Anonymous
$11
Anonymous
$21
Larni Dolegowski
$56
Brianna Vale
$104
Craig Robbins
💝
$16
Jackie Barber
$21
Michelle Hunter
Xxx
$21
Ebony Papageorge
🩵🩵🩵
$11
Marina Henare
$26
Matched Gift
Your donation has been doubled by our sponsors!
$26
Renee Beecham
$16
Matched Gift
Your donation has been doubled by our sponsors!
$16
Kylie Stephens
$56
Matched Gift
Your donation has been doubled by our sponsors!
$56
The Freemans
All our love, The Freemans ❤️
$26
Laurelle Seamer
$26
Matched Gift
Your donation has been doubled by our sponsors!
$56
Matched Gift
Your donation has been doubled by our sponsors!
$56
Joanne Bottin
Love you Jonah, you champion xx
$21
Matched Gift
Your donation has been doubled by our sponsors!
$21
Annie Chidlow
$11
Jayne Taylor
xxx
$11
Matched Gift
Your donation has been doubled by our sponsors!
$32
Matched Gift
Your donation has been doubled by our sponsors!
$32
Jenny Dridan
$32
Matched Gift
Your donation has been doubled by our sponsors!
$32
Sue And John Dobson
Lots of love from Nan and Grandad Jonah xxxx
$32
Matched Gift
Your donation has been doubled by our sponsors!
$32
Jenna Millanta
Love you Jonah ❤️🐳
$56
Matched Gift
Your donation has been doubled by our sponsors!
$56
Kelly Hardy
❤️❤️❤️
$53
Matched Gift
Your donation has been doubled by our sponsors!
$53
Leigh Dobson
For our warrior Jonah xx
