Transport for NSW

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Why we're doing Jeans for Genes’ Bake It Blue

Our team cares about the 1 in 20 Aussie kids who face a birth defect or genetic disease. That's one in every classroom, maybe someone you know or love. Every day, many of these kids wake up to pills, injections, hospital visits (or worse). They don't get the chance to run around and just be kids. If they can endure that, and keep smiling, then the least we can do is fight alongside them. That's why we're doing Jeans for Genes and raising money for Children's Medical Research Institute. We want to give these kids better treatments and maybe even a cure.

We’ve signed up to Bake It Blue, so we can raise awareness and start the conversation—we need to do all we can to help save more kids’ lives. Can you help by sharing this message with the people you know and asking them to donate too? We (and millions of Aussie kids) thank you for it!

Here's just one example of how, together, we can change things:

When Kalarny was born, he couldn’t hold his head up. He couldn’t move. He was fighting just to breathe. He was diagnosed with Spinal Muscular Atrophy (SMA), and his parents were told he wouldn’t survive to his first birthday. Thanks to research he survived, but he needs regular spinal injections and a wheelchair to get around. If he’d been born just a few years later, he could have received gene therapy. Infants treated with just one injection of gene therapy seem to be cured. It’s early days, but signs indicate that they will go on to lead normal, healthy lives. It’s so effective, SMA has been added to newborn screening and the gene therapy treatment is covered by PBS. An incurable disease just a few years ago, is now curable. Amazing. That’s what we want for more kids and more of the 6000 genetic diseases out there.

There’s lots of work to do, but there is also lots of hope.

Join us. Share this message. Donate. Thank You!

Our Impact

So far this year we helped provide...

32

Hours of research

For every $55 raised, one hour of research is funded

Thank you to our Sponsors

$56

Jeans For Genes

Your donation has been doubled

2 months ago

$56

Chris Daffin

2 months ago

$56

Jeans For Genes

Your donation has been doubled

2 months ago

$56

Eddie Wu

2 months ago

$32

Jeans For Genes

Your donation has been doubled

2 months ago

$32

Anonymous

2 months ago

$91

Jeans For Genes

Your donation has been doubled

2 months ago

$91

Zoe Rourke

Cash raised at Elizabeth St fundraiser on 3 August

2 months ago

$1

Jeans For Genes

Your donation has been doubled

2 months ago

$1

Anonymous

2 months ago

$11

Jeans For Genes

Your donation has been doubled

2 months ago

$11

Anonymous

2 months ago

$53

Jeans For Genes

Your donation has been doubled

2 months ago

$53

Patricia Roubis

2 months ago

$5

Jeans For Genes

Your donation has been doubled

2 months ago

$5

Anonymous

2 months ago

$21

Jeans For Genes

Your donation has been doubled

2 months ago

$21

Alicia Rijke

Great cause! Great job organising this Zoe!

2 months ago

$5

Jeans For Genes

Your donation has been doubled

2 months ago

$5

Anonymous

2 months ago

$5

Jeans For Genes

Your donation has been doubled

2 months ago

$5

Anonymous

2 months ago

$21

Jeans For Genes

Your donation has been doubled

2 months ago

$21

Kretschmar Mandy

2 months ago

$56

Jeans For Genes

Your donation has been doubled

2 months ago

$56

Fleur Johnson

Awesome job Zoe. Fantastic cause!

2 months ago

$56

Jeans For Genes

Your donation has been doubled

2 months ago

$56

Anonymous

2 months ago

$11

Jeans For Genes

Your donation has been doubled

2 months ago

$11

Anonymous

2 months ago

$11

Jeans For Genes

Your donation has been doubled

2 months ago

$11

Megan G

2 months ago

$53

Jeans For Genes

Your donation has been doubled

2 months ago

$53

Megs

Great work Zoe for bringing us together and raising money for a wonderful cause!

2 months ago

$32

Jeans For Genes

Your donation has been doubled

2 months ago

$32

Anonymous

2 months ago

$98

Zoe Rourke

Cash Donations from Macquarie Park Wednesday 2/8

2 months ago

$56

Guy Collishaw

2 months ago

$5

Chrissy Saunders

2 months ago

$11

Jason Chang

2 months ago

$21

Tonu Aisatullin

2 months ago

$21

Chris Richard

Great work Zoe for organising!

2 months ago

$5

Alec Scott

2 months ago

$32

Holly Finch

Go Zozo! Thanks for organising!

2 months ago

$21

Dean Lord

2 months ago

$56

Andrew Gay

2 months ago

$11

Michelle Quinn

2 months ago

$56

Sonja Vidic

Worthwhile cause!

2 months ago

$110

Beth Jenkinson

Such important research with such amazing outcomes!

2 months ago

$104

Zoe Rourke

3 months ago