Team Amelia

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Amelia’s Story: One in a million

Team Amelia is raising money for the incredible work being done at Children’s Medical Research Institute. Every donation will help kids like Alessia live a long and healthy life. Read more about her story below.

When Amelia was born, her parents knew something wasn’t right. 

She struggled to breathe. There was a hole in her heart. Her blood sugar levels and platelet count were dangerously low. 

Doctors knew something was wrong — but no one knew what. 

After months of uncertainty, genetic testing finally gave them an answer: Amelia had Kabuki Syndrome, a rare genetic condition that affects development, mobility, and life expectancy. 

Since then, Amelia has shown remarkable strength. She’s had intensive physio and occupational therapy, wears leg braces, and battles painful symptoms like brittle bones and frequent knee dislocations. 

But there is hope. 

Thanks to research by scientists like Dr Mark Graham at Children’s Medical Research Institute, new discoveries are being made that could transform the future for children with Kabuki Syndrome. 

Medical research is giving families answers, and children like Amelia a chance at a brighter future.

Donate now to help fund the research giving kids like Amelia the chance to live longer, healthier lives.

Raised so far

With your help, we have raised...

$1,379

You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!

Biggest Donor

Anonymous

$530

Thank you so much to our biggest supporter, Anonymous, for donating an incredible $530 to help fund vital research into curing children’s genetic diseases.

Our Impact

So far this year, we've helped fund...

28

Hours of research

Every $50 raised funds an hour of vital research.

Thank you to our donors

$23

Tayla Davis

3 days ago

$33

Neil Singh

4 days ago

$92

Erin Anderson

Go Amelia! We’re so proud of you 💪🏼

6 days ago

$110

Jonathan Jonas

1 week ago

$54

Joshua Gresham

2 weeks ago

$23

Sheridan Workman

4 weeks ago

$54

Carly Craig

You are so brave Amelia, with love from your friend Cohen

4 weeks ago

$54

Katie And Grace Willott

Amelia, you are amazing 💕✨⭐️

4 weeks ago

$106

Erica Helyer

1 month ago

$530

Anonymous

1 month ago

$57

Lee-anne Mccabe

1 month ago

$23

Mattingly Pamela

1 month ago

$110

Donna Robertson

Super proud of what you have achieved Amelia. You are one STRONG young lady 💜

1 month ago

$110

Scott Whelan

1 month ago