Team Alessia

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One Injection Gave Alessia a Future

Team Alessia is raising money for the incredible work being done at Children’s Medical Research Institute. Every donation will help kids like Alessia live a long and healthy life. Read more about her story below.

When Alessia was born, she looked perfect — tiny fingers, a strong heartbeat, and a future full of hope. 

Her parents, Adriana and Adam, had no idea that just two weeks later, a phone call would change everything. Alessia had become the first baby in NSW to be diagnosed with Spinal Muscular Atrophy (SMA) through newborn screening, a rare and fatal genetic disease that, without treatment, usually claims a child’s life before their second birthday. 

“We were devastated,” said Mum Adriana. “Alessia hadn’t shown any symptoms yet, but we were told we had to act fast.” 

But there was a glimmer of hope. 

NSW had just joined an international clinical trial for a revolutionary new gene therapy. With just one infusion, scientists believed they could correct the genetic fault, offering Alessia not just more time, but a real chance at life. 

Alessia slept through the treatment. 

And then… she began to thrive. 

Her parents watched with cautious optimism as she smiled, sat up, took her first steps. And today, Alessia is a joyful seven-year-old, full of personality, laughter, and energy. The only sign of her early diagnosis is a slight weakness in her legs. 

Alessia's story is more than a medical miracle, it’s proof that research saves lives. Her life was changed because of science. Because of people like you. 

Donate now to support the research that gives kids like Alessia a future.

Raised so far

With your help, we have raised...

$19,237

You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!

Biggest Donor

Alessia's Fundraiser Event

$2,945

Thank you so much to our biggest supporter, Alessia's Fundraiser Event, for donating an incredible $2,945 to help fund vital research into curing children’s genetic diseases.

Our Impact

So far this year, we've helped fund...

385

Hours of research

Every $50 raised funds an hour of vital research.

Thank you to our donors

$12

Anonymous

2 weeks ago

$110

Courtney Morris

2 months ago

$2.95k

Alessia's Fundraiser Event

Event sales, raffles and donations

2 months ago

$294

Anonymous

2 months ago

$3

Spandan Shrestha

2 months ago

$45

Love Of Learning

2 months ago

$2

Anonymous

2 months ago

$12

Lincoln Kidwell

2 months ago

$7

Anonymous

2 months ago

$5

Anonymous

2 months ago

$3

Josephine Pham

2 months ago

$3

Kristy Anderson

2 months ago

$3

Anonymous

2 months ago

$3

Megan Rees

2 months ago

$4

Anonymous

2 months ago

$6

Rebecca Lee

2 months ago

$6

Annabelle Wright

2 months ago

$17

Chris Lentholm

2 months ago

$5

Yvette Sathiakumar

2 months ago

$3

Sharmi Majumdar

2 months ago

$3

Anonymous

2 months ago

$6

Anonymous

2 months ago

$6

Anonymous

2 months ago

$6

Aaron Harding

2 months ago

$4

Anonymous

2 months ago

$6

Guy Buczek Buczek

2 months ago

$12

Anonymous

2 months ago

$4

Anonymous

2 months ago

$2

Anonymous

2 months ago

$3

Belinda Gemmill

2 months ago

$4

Sarah Mitchell

2 months ago

$7

Marina Matic

2 months ago

$3

Vivian Lam

2 months ago

$4

Amy Morrison

2 months ago

$4

Mary Phan

2 months ago

$2

Anonymous

2 months ago

$12

Ellie Farlow

2 months ago

$12

Christine Black

2 months ago

$2

Khushbu Mehta

2 months ago

$12

Benjamin Taylor

2 months ago

$2

Anonymous

2 months ago

$2

Matthew Phillips

2 months ago

$12

Kate King

2 months ago

$14

Julianne Di Martino

2 months ago

$7

Anonymous

2 months ago

$11

Anna Last

2 months ago

$17

Rebecca Lee

2 months ago

$12

Andrew Evripidou

2 months ago

$3

Katy Chen

2 months ago

$17

Tegan Wagner

2 months ago

$12

Anonymous

Keep doing awesome things!

2 months ago

$4

Thy Chan

2 months ago

$3

Anonymous

2 months ago

$6

Mark

2 months ago

$17

Adam Sharpe

Back at swimming

2 months ago

$23

Shelby Truashiem

2 months ago

$12

Anita Raposo

2 months ago

$5

Naveed Billah

2 months ago

$3

Anonymous

2 months ago

$17

Natalie Consiglio

2 months ago

$12

Anonymous

2 months ago

$12

Anonymous

2 months ago

$6

Anonymous

2 months ago

$23

Anonymous

2 months ago

$13

Anne Saycon

2 months ago

$8

Dave Hunt

2 months ago

$3

Dejan Simonoski

2 months ago

$5

Tl

2 months ago

$23

Zouhour Al Hariri

I hope u feel better soon

2 months ago

$2

Mallika Shetty

2 months ago

$5

Anonymous

2 months ago

$6

Rini Jacob

2 months ago

$12

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2 months ago

$2

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2 months ago

$12

Kiran Varadarajan

2 months ago

$6

Dave Hunt

2 months ago

$5

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2 months ago

$2

Sarah Mitchell

2 months ago

$23

Aleksandar Vasiloski

Great cause, thank you

2 months ago

$12

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2 months ago

$7

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2 months ago

$2

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2 months ago

$12

Corrie Hudson

2 months ago

$6

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2 months ago

$3

Dejan Simonoski

2 months ago

$18

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2 months ago

$7

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2 months ago

$54

Anne Nuguid

2 months ago

$54

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Angus Hewitt

2 months ago

$211

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Hope you had a great day lovely. Xx

2 months ago

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good cause well done guys

2 months ago

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Thank you to the Love of Learning Community for their support.

2 months ago

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2 months ago

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2 months ago

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2 months ago

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2 months ago

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Yolanda Hasrouny

2 months ago

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2 months ago

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2 months ago

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2 months ago

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2 months ago

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2 months ago

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2 months ago

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2 months ago

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2 months ago

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2 months ago

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2 months ago

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2 months ago

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2 months ago

$6

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2 months ago

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2 months ago

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2 months ago

$3

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2 months ago

$4

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2 months ago

$12

Kylie Mitchell

2 months ago

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2 months ago

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2 months ago

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2 months ago

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2 months ago

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2 months ago

$3

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2 months ago

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2 months ago

$20

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2 months ago

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Brittany

2 months ago

$2

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2 months ago

$173

With Love From Hac Customers

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2 months ago

$2

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2 months ago

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2 months ago

$5

Monaj Bari

2 months ago

$11

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2 months ago

$6

Anonymous

2 months ago

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2 months ago

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Paul Barclay

2 months ago

$4

Aditi Godbole

2 months ago

$3

Leigh Coffill

2 months ago

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Hac Customer

2 months ago

$23

Marjorie Zamora

2 months ago

$5

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2 months ago

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2 months ago

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2 months ago

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2 months ago

$6

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2 months ago

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2 months ago

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2 months ago

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Michael Dizon

2 months ago

$6

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2 months ago

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2 months ago

$23

Natalie El Khafaji

2 months ago

$6

Emilia Ambatt

2 months ago

$5

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2 months ago

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2 months ago

$7

Nithila & Rodela

2 months ago

$5

Trina Andersson

2 months ago

$6

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2 months ago

$23

Vanessa Tolhurst

2 months ago

$8

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2 months ago

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Sarah Bulfin

2 months ago

$20

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2 months ago

$7

Ky Goh

2 months ago

$7

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2 months ago

$4

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2 months ago

$3

Vicku Lai

2 months ago

$7

Renee Mudie

2 months ago

$4

Sarah E

2 months ago

$5

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2 months ago

$6

Yashas Narayan

2 months ago

$4

Sarah M

2 months ago

$2

Sarah Eyears

2 months ago

$6

Anonymous

2 months ago

$12

Penny Parker

2 months ago

$3

Anonymous

2 months ago

$3

Anonymous

2 months ago

$6

Rebecca Maher

2 months ago

$2

Anonymous

2 months ago

$5

Anonymous

2 months ago

$6

Anonymous

2 months ago

$23

Ian Burrows

Good job

2 months ago

$3

Kate Ayoub

2 months ago

$5

Emma Moukhallaletti

2 months ago

$5

Anonymous

2 months ago

$2

Josh Hodges

2 months ago

$12

Stacey Barnes

2 months ago

$6

Anonymous

2 months ago

$2

Anonymous

2 months ago

$12

Rebecca Kinnane

2 months ago

$6

Anonymous

2 months ago

$6

Jacqueline Jalwan

2 months ago

$6

Anonymous

2 months ago

$12

Lauren Connor

2 months ago

$31

Lisa Accar

2 months ago

$3

Josephine Pham

2 months ago

$9

Kristy Anderson

2 months ago

$4

Stacey Day

2 months ago

$12

Charbel Azzi

2 months ago

$6

Anonymous

2 months ago

$57

Lauren Reilly

2 months ago

$23

Kali Sekhas

2 months ago

$104

The Rockwell's

You are an inspiration, beautiful girl.

2 months ago

$12

Anonymous

2 months ago

$56

Trish Tomarchio

For a beautiful little girl

2 months ago

$23

Giuseppe Tomarchio

2 months ago

$54

Anonymous

Many thanks for the great work you do.

2 months ago

$106

Maria & Vince Ruggiero

2 months ago

$57

Carlton Family

2 months ago

$49

Marisa Wilkins

2 months ago

$106

Anonymous

2 months ago

$211

Chianese And Touma Family

God bless you in your endeavors

2 months ago

$200

Dom, Nicole, Nicholas And Sienna Ortado

3 months ago

$65

Zina Bastide

3 months ago

$1.02k

Previte Family

3 months ago

$110

Anonymous

3 months ago

$104

Natalie & Anthony

3 months ago

$264

The Russo Family

3 months ago

$2.02k

Michael Calabro

4 months ago

$104

Natasha Napoli

4 months ago

$57

Sue Savetta

Wishing you all the best in reaching your target. It’s good to hear Alessia is doing so well.

4 months ago

$211

R & Lm Russo

Grateful.

4 months ago

$12

Melanie James

4 months ago

$110

Hayley Noble

You have a contagious bright energy Alessia, and little Hayley looks forward to growing up with you xx

5 months ago

$10

A S

5 months ago

$1,000

Craig Mclaughlin

Celebrating Alessia’s bright future Adam and Adriana, when I read this story tonight it brought tears. What a miraculous and heartfelt experience. Aside from having the greatest parents ever, the research and specialists that made this happen for your daughter is inspiring. I’m making this donation as a small contribution to this important work, ensuring that hope ensues for parents just like you in the future.

5 months ago

$110

Adriano Luongo

5 months ago

$200

Jennifer Philps

Alessia you are a star and we just love your spirit and you will always reach your goals so here is a start

5 months ago