Sora’s Fundraiser

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Why I’m doing Jeans for Genes

I've signed up to Jeans for Genes to raise money for the Children's Medical Research Institute and help save more kids' lives. Can you help by sharing this message with the people you know and asking them to donate too?


Here's just one story explaining why this cause is so important:


Sora is 7 years old and a Year 1 student. She has a genetic condition called Leber congenital amaurosis (LCA), which is a rare condition. LCA is the most common cause of inherited blindness in childhood, affecting two to three out of every 100,000 babies. It impacts both the peripheral rod cells, which allow night vision, and the central cone cells, responsible for fine detail and color vision.


Sora's eye condition is going to get worse as time goes by, and she may lose all her vision when she gets older. To stop that, she really needs to get the right treatment, but currently, there is no cure for LCA.


She is the only Braille user in her classroom. Sora loves school and enjoys her days, but she has always wished to see what unicorns look like and the colors of rainbows. Despite her limited vision, she loves drawing, and her favorite drawings are of rainbows and unicorns. She is also a great singer.


Medical research is crucial for helping children like Sora to see the world like other children do. Even now, children are being diagnosed with the same condition and struggling to see the world. Continuing to support medical research and finding a cure is vital for the future of children with genetic conditions. There’s a lot of work to do, but there is also a lot of hope. Please support researchers to continue their work for children with genetic conditions.








My Impact

So far this year I helped provide...

14

Hours of research

For every $50 raised, one hour of research is funded

Funds raised over the years

Biggest
Donor

Jean-ius Donor

$110

Thank you so much to my biggest supporter, Edwina Duncan, for donating an incredible $110 to help fund vital research into curing children’s genetic diseases.

Thank you to our Sponsors

$110

Cecilia Kerr (kz)

I hope you smash your goals, Sora! Love Ceci (KZ) xxx

7 hours ago

$56

Stawell Family

7 hours ago

$21

Anonymous

8 hours ago

$106

Shrngyin Li

Stay hopeful! Miracle will happen.

16 hours ago

$56

Anonymous

16 hours ago

$22

Steel Family

1 day ago

$53

Martina Saldi

I hope research can find a cure

1 day ago

$26

Ceri David

1 day ago

$50

Tanya Haber

Great cause.

1 day ago

$110

Edwina Duncan

1 day ago

$56

Natalie Sequeira

1 day ago

$56

Kanae Yamamoto

2 days ago