I care about the 1 in 20 Aussie kids who face a birth defect or genetic disease. That’s one in every classroom, maybe someone you know or love. Every day, many of these kids wake up to pills, injections, hospital visits (or worse). They never get the chance to run around and just be kids. If they can endure that, and keep smiling, then the least I can do is fight alongside them. That’s why I’m doing Jeans for Genes and raising money for Children’s Medical Research Institute. I want to give these kids better treatments and maybe even a cure.
I’ve signed up to do my own thing, so I can raise awareness and start the conversation—we need to do all we can to help save more kids’ lives. Can you help by sharing this message with the people you know and asking them to donate too? I (and millions of Aussie kids) thank you for it!
Here's just one example of how, together, we can change things:
When Kalarny was born, he couldn’t hold his head up. He couldn’t move. He was fighting just to breathe. He was diagnosed with Spinal Muscular Atrophy (SMA), and his parents were told he wouldn’t survive to his first birthday. Thanks to research, he survived, but he needs regular spinal injections and a wheelchair to get around. If he’d been born just a few years later, he could have received gene therapy. Infants treated with just one injection of gene therapy seem to be cured. It’s early days, but signs indicate that they will go on to lead normal, healthy lives. It’s so effective, SMA has been added to newborn screening and the gene therapy treatment is covered by PBS. A disease that was incurable, a death sentence, just a few years ago, is now curable. Amazing. That’s what I want for more kids and more of the 6000 genetic diseases out there.
You might think you won’t need this research, that it’s not personal, but genetic diseases are a ticking timebomb. Most families don’t know they carry the gene for a disease, and many genetic diseases are not even inherited—they happen randomly, out of the blue. Like Kalarny’s. Like cancer. Most people don’t know that cancer is caused by changes in genes—but almost everyone will be touched by it. So, the research you and I support today may one day help someone we know, someone in our family.
There’s lots of work to do, but there is also lots of hope.
Join me. Share this message. Donate. Thank You!
My Impact
So far this year I helped provide...
55
Hours of research
For every $55 raised, one hour of research is funded
Thank you to our Sponsors
$21
Paul K
$520
Al & Mary
$91
Jeans For Genes
Your donation has been doubled
$91
Dimity & Simon Kemp
Go PK, skip your heart out for your Abigail! We miss you guys & can't wait to see you all again soon!
$21
Jeans For Genes
Your donation has been doubled
$21
Neisha Drysdale
$56
Jeans For Genes
Your donation has been doubled
$56
Melissa Argent
Lots of love for a special little lady!
$56
Jeans For Genes
Your donation has been doubled
$56
Ashley And Kate Kirk
A very worthy cause! Well done PK.
$56
Jeans For Genes
Your donation has been doubled
$56
The Darbyshire’s
$110
Jeans For Genes
Your donation has been doubled
$110
Dan Gibson
$110
Jeans For Genes
Your donation has been doubled
$110
Brian Mcdonald
Champion
$110
Jeans For Genes
Your donation has been doubled
$110
Dan Barnard
Great stuff PK, happy skipping mate 🤙🏼🏋🏻♀️
$110
Jeans For Genes
Your donation has been doubled
$110
Simon Kemp
$110
Jeans For Genes
Your donation has been doubled
$110
Shane Griffiths
$110
Jeans For Genes
Your donation has been doubled
$110
Matt Mcandrew
$21
Jeans For Genes
Your donation has been doubled
$21
Katherine And Braden
Big love xxx
$110
Jeans For Genes
Your donation has been doubled
$110
Mamma Kelly
For our Abigail and many others
$91
Chris And Sally Kirk
You are fit enough to do it Paul. A cause close to our hearts x
$56
Nugateer
$106
Aunty Courtney
For Abigail X
$89
