'Gee your boys look like you. Thanks, it's a syndrome'
For years, before we were diagnosed, Patrick & I would be told about how alike we look.We thought nothing of it, of course we look alike, we're Mother & Son!
After receiving our diagnosis, we had a 'why' a reason for looking soooooo similar.
When people remark about how similar Patrick & Angus and I look now, I reply with 'thanks, it's a syndrome' which usually gets a chuckle.
Latest updates
13 May 2024 by Monique-Jane Brown
Facial recognition is no match for TRPS!
One of the most significant things about TRPS is the striking facial similarities we all share. I often wonder whether our tiny little bit of wonky DNA would be enough to confuse the latest & greatest facial recognition technology if enough of us were to be scanned.I've tried using my face to unlock my teenagers phone, it doesn't work! Was worth a shot!!
18 Apr 2024 by Monique-Jane Brown
Giving TRPS a voice
Since Angus was born, even since I was pregnant & we knew he had inherited TRPS from me, I've been advocating for him and educating everyone we encounter about TRPS.I didn't have this knowledge when Patrick was a baby, so I couldn't be his voice.
What Jeans for Genes allows me to do is to raise funds & awareness about TRPS for both my boys, and for myself. And for any Grandchildren I may have in the future that might be affected.
Please help me to give TRPS a voice, and spread the word about why we look so alike.
My Impact
So far this year I helped provide...
3
Hours of research
For every $50 raised, one hour of research is funded
Funds raised over the years
Biggest Donor
Jean-ius Donor
$56
Thank you so much to my biggest supporter, Anonymous, for donating an incredible $56 to help fund vital research into curing children’s genetic diseases.
My Team Members
Thank you to our Sponsors
$56
Joan Walker
WHAT A GREAT GIFT TO GIVE YOUR BOYS XX
3 months ago
$56
Anonymous
6 months ago
$32
Monique-jane Brown
7 months ago
"WHAT A GREAT GIFT TO GIVE YOUR BOYS XX"