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Why we're doing Jeans for Genes’ Sofa to 6k

Our team cares about the 1 in 20 Aussie kids who face a birth defect or genetic disease. That's one in every classroom, maybe someone you know or love. Every day, many of these kids wake up to pills, injections, hospital visits (or worse). They don't get the chance to run around and just be kids. If they can endure that, and keep smiling, then the least we can do is fight alongside them. That's why we're doing Jeans for Genes and raising money for Children's Medical Research Institute. We want to give these kids better treatments and maybe even a cure.

We’ve signed up to Sofa to 6K, so we can raise awareness and start the conversation—we need to do all we can to help save more kids’ lives. Can you help by sharing this message with the people you know and asking them to donate too? We (and millions of Aussie kids) thank you for it!

Here's just one example of how, together, we can change things:

When Kalarny was born, he couldn’t hold his head up. He couldn’t move. He was fighting just to breathe. He was diagnosed with Spinal Muscular Atrophy (SMA), and his parents were told he wouldn’t survive to his first birthday. Thanks to research he survived, but he needs regular spinal injections and a wheelchair to get around. If he’d been born just a few years later, he could have received gene therapy. Infants treated with just one injection of gene therapy seem to be cured. It’s early days, but signs indicate that they will go on to lead normal, healthy lives. It’s so effective, SMA has been added to newborn screening and the gene therapy treatment is covered by PBS. An incurable disease just a few years ago, is now curable. Amazing. That’s what we want for more kids and more of the 6000 genetic diseases out there.

There’s lots of work to do, but there is also lots of hope.

Join me. Share this message. Donate. Thank You!

Our Impact

So far this year we helped provide...

27

Hours of research

For every $55 raised, one hour of research is funded

Thank you to our Sponsors

$90

Medibank Matching

1 month ago

$21

Medibank Matching

1 month ago

$56

Medibank Matching

2 months ago

$56

Sutharshan

2 months ago

$22

Poonam Jain

Great work, Nammu!

2 months ago

$25

Afshan

2 months ago

$25

Sri Prasanna

2 months ago

$56

Regina

Great Cause Narmi

2 months ago

$90

Anoop Mohan

Great cause Narmi!

2 months ago

$21

Bob Savic

2 months ago

$25

Medibank Matching

2 months ago

$26

Mark Willet

Great cause Narmi

2 months ago

$56

Peter Owens

2 months ago

$56

Sampath Rathnayake

Good job Nams. 👏 all the best.

2 months ago

$55

Jey

Do well.

2 months ago

$25

Matt Mu

Good luck with the challenge Narmi

2 months ago

$91

Paul Brazil

2 months ago

$25

Pradeep Tupili

2 months ago

$32

Medibank Matching

2 months ago

$53

Phil

Good luck Narmi!

2 months ago

$50

Facebook Donation

3 months ago

$26

Ketaki Desai

Great initiative, all the best Namu!!

3 months ago

$11

Pradeep G

Good on you Narmadha Best wishes!

3 months ago

$32

Michael C

3 months ago

$104

Saiful Nasir

Great cause and all the best for the challenge Narmadha!

3 months ago

$11

David Asher

3 months ago

$30

Tara Payne

Great cause and great effort Narmi.

3 months ago

$55

Tony Nguyen

3 months ago

$11

Sri Prasanna

3 months ago

$32

Narmadha Anenthan

3 months ago

$25

Facebook Donation

3 months ago

$100

Facebook Donation

3 months ago

$56

Karen Bowers

3 months ago

$21

Andrew Carlson

3 months ago