Why we're doing Jeans for Genes’ Sofa to 6k
Our team cares about the 1 in 20 Aussie kids who face a birth defect or genetic disease. That's one in every classroom, maybe someone you know or love. Every day, many of these kids wake up to pills, injections, hospital visits (or worse). They don't get the chance to run around and just be kids. If they can endure that, and keep smiling, then the least we can do is fight alongside them. That's why we're doing Jeans for Genes and raising money for Children's Medical Research Institute. We want to give these kids better treatments and maybe even a cure.
We’ve signed up to Sofa to 6K, so we can raise awareness and start the conversation—we need to do all we can to help save more kids’ lives. Can you help by sharing this message with the people you know and asking them to donate too? We (and millions of Aussie kids) thank you for it!
Here's just one example of how, together, we can change things:
When Kalarny was born, he couldn’t hold his head up. He couldn’t move. He was fighting just to breathe. He was diagnosed with Spinal Muscular Atrophy (SMA), and his parents were told he wouldn’t survive to his first birthday. Thanks to research he survived, but he needs regular spinal injections and a wheelchair to get around. If he’d been born just a few years later, he could have received gene therapy. Infants treated with just one injection of gene therapy seem to be cured. It’s early days, but signs indicate that they will go on to lead normal, healthy lives. It’s so effective, SMA has been added to newborn screening and the gene therapy treatment is covered by PBS. An incurable disease just a few years ago, is now curable. Amazing. That’s what we want for more kids and more of the 6000 genetic diseases out there.
There’s lots of work to do, but there is also lots of hope.
Join me. Share this message. Donate. Thank You!
Our Impact
So far this year we helped provide...
27
Hours of research
For every $55 raised, one hour of research is funded
Our Team Members
Jean-ius Club
Rebecca van Roevan
Jean-ius Club
Lauren Voss
Jean-ius Club
Kylie Hatfield
Jean-ius Club
Milijana Drenoski
Jean-ius Club
Catherine Hawkes
Jean-ius Club
Narmadha Anenthan
Raised so far:
$1,216
Jean-ius Club
AC
Raised so far:
$196
Jean-ius Club
Karen Bowers
Raised so far:
$56
Jean-ius Club
Stacey Warren
Jean-ius Club
Rhiannon James
Jean-ius Club
Alex Potter
Jean-ius Club
Jenny Ma
Jean-ius Club
Richard Arney
Thank you to our Sponsors
$90
Medibank Matching
$21
Medibank Matching
$56
Medibank Matching
$56
Sutharshan
$22
Poonam Jain
Great work, Nammu!
$25
Afshan
$25
Sri Prasanna
$56
Regina
Great Cause Narmi
$90
Anoop Mohan
Great cause Narmi!
$21
Bob Savic
$25
Medibank Matching
$26
Mark Willet
Great cause Narmi
$56
Peter Owens
$56
Sampath Rathnayake
Good job Nams. 👏 all the best.
$55
Jey
Do well.
$25
Matt Mu
Good luck with the challenge Narmi
$91
Paul Brazil
$25
Pradeep Tupili
$32
Medibank Matching
$53
Phil
Good luck Narmi!
$50
Facebook Donation
$26
Ketaki Desai
Great initiative, all the best Namu!!
$11
Pradeep G
Good on you Narmadha Best wishes!
$32
Michael C
$104
Saiful Nasir
Great cause and all the best for the challenge Narmadha!
$11
David Asher
$30
Tara Payne
Great cause and great effort Narmi.
$55
Tony Nguyen
$11
Sri Prasanna
$32
Narmadha Anenthan
$25
Facebook Donation
$100
Facebook Donation
$56
Karen Bowers
$21
