Answers For Oli

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Why I’m doing Jeans for Genes’ Bake It Blue

I’m doing this for my little dude Oli 💙

The story so far…… 

A week before Christmas 2022 we managed to get a cancellation spot with a paed because we were a little concerned that Oli’s development had slowed and then further regressed after he caught para influenza. We thought he very well could be full of extra sparkle (ASD) Like his big sister! 

What we didn’t expect was the crazy whirlwind that has followed since… 

In the last 7 months Oli has endured more than most people do their entire lives… He has had… A trip to emergency, a code blue,  A head CT, full body CT, MRI of the brain, 2 ultrasounds, a lumbar puncture (so brutal) with another booked in a matter of weeks, IVIG infusions, steroids, countless blood tests, exome genetic testing, genomic testing to come, endless hospital stays, 5 hospital wards and so, so many tears most of which were not from him!  

After all he has endured we still have NO answers as to why our beautiful little boy is struggling all we have is hopes and wishing upon  absolutely everything that one day Oli will be able to walk and talk like any other “normal” kid 

It has been the hardest, scariest, most stressful 7 months (so far) of our lives. The unknown is a god awful place to be and if another family doesn’t have to suffer through this then I’d happily bake 1000’s of blue cupcakes to prevent it.

I am hosting a Bake it Blue, Jeans for Genes day afternoon tea at home on Sunday the 6th of August to raise much needed funds to find answers and potential cures for children with Genetic disorders.

1 in 20 Aussie kids face a birth defect or genetic disease. That’s one in every classroom, maybe someone you know or love. Every day, many of these kids wake up to pills, injections, hospital visits (or worse). They never get the chance to run around and just be kids. If they can endure that, and keep smiling, then the least I can do is fight alongside them. That’s why I’m doing Jeans for Genes and raising money for Children’s Medical Research Institute.

Even if you can’t make it or just don’t like me enough to come and have tea please donate anything you can ( I know times are tough) to help this very important cause! 

Your donation could literally be life changing for my little boy or someone else’s little one

Lydia xx 

🫖🧁💙🧁🩵 


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My Impact

So far this year I helped provide...

37

Hours of research

For every $55 raised, one hour of research is funded

Thank you to our Sponsors

$50

Facebook Donation

2 months ago

$55

Facebook Donation

2 months ago

$56

Am

2 months ago

$53

Jeans For Genes

Your donation has been doubled

2 months ago

$53

Bernadette Henneken

All the best to Oli, Lydia and family xx

2 months ago

$55

Jeans For Genes

Your donation has been doubled

2 months ago

$55

Anonymous

2 months ago

$56

Jeans For Genes

Your donation has been doubled

2 months ago

$56

Deana, Rod And Callum Gibbons

A little bit goes a long way xxx we love you Oli xxxx

2 months ago

$56

Jeans For Genes

Your donation has been doubled

2 months ago

$56

Alison Hall

2 months ago

$5

Jeans For Genes

Your donation has been doubled

2 months ago

$5

Emily Stewart-rowley

I hope my donation helps all the children that need to be cured and helps my baby brother oli

2 months ago

$56

Glenn And Jane Bridgford

Thinking of you, love you all❤️❤️❤️

2 months ago

$91

Sisko Pilgrim

Best luck with everything that lies ahead. Thinking of you always xox

2 months ago

$21

Allysha

Stay strong little man

2 months ago

$42

Mandy, Charlotte And Sienna Clark

2 months ago

$21

Danielle Ironside

You’re going to be okay little man.. Your Mum and Dad are pretty special. Our family are thinking of you . Sending you and the family lots of love and strength. Xxx

2 months ago

$56

Emma, Chris, Riley, Connor And Aurora

2 months ago

$55

Halcyon,simon,ethan&thomas Mitchell

With love from Halcyon,Sumon.Ethan&Thomas

2 months ago

$91

Kate Joel Elsy & Lily

2 months ago

$26

Tara Gleig

I’m so sorry for what oli has endured so far in life. You are such a strong family filled with love and hope. I pray for answers for you. Thank you for raising funds for a special cause xx much love Tara

2 months ago

$500

Anonymous

2 months ago

$21

Michelle Hagelburg

2 months ago

$56

Sue & Geoff Banfield

2 months ago

$31

Candice, David, Hudson And Mitchell Shire

Wish we could be there to help you through this hard time. Lots of love always ❤️

2 months ago

$56

Liz Smith

2 months ago

$53

Rod, Deana And Callum Xxx

Always happy to support this wonderful cause and help families find answers to their medical journals. We love you all xxxx

2 months ago

$11

Nicole Russo

Sending our prayers to you Oli and your fam 🙏

2 months ago

$21

Amy, Bella & Oliver

Sorry to hear about the tough times Oli and your family are going through. I hope you get some positive news very soon 🙏🏻

2 months ago

$110

Kim & John Rowley

Love you Nannie and Poppie

2 months ago

$110

Robert & Helen Stewart

With love from us xx

2 months ago