Bake it Blue and wear Blue Jeans

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Why I'm doing Jeans for Genes

This year I am supporting Jeans for Genes because I want to help discover treatments and cures for the 1 in 20 kids facing a birth defect or genetic disease. I’ve decided to fundraise for this important cause and I cannot wait! Please support my event or sign-up to run your own.

My eldest boy has been diagnosed with a genetic condition called Multiple Heriditary Exotosis. The diagnosis was when he was 5 years old, 6 years ago, just after his little sister was born. 

It is related to his bones.  Extra cartridge turned bones called tumors grow on his long bones. 

His Humerous, Femur, Fibula and Tibia, Ulna and Radius are all affected as well as pelvis, and collar bones. They need to be constantly monitored as they turn cancerous at any time. 

They affect movement and bone growth of his regular bones.  Which in time can cause pain, deformity, numbness, tingling among other things. They fortunately can be removed at any stage but don't need to be removed unless they cause severe pain. 

We are constantly figuring out new things with MHE via facebook groups from around the world. 

Research will assist in finding why this gene is affected (with a deficit in heperan sulfate) and trying to prevent this in the future.  He has a 50% chance of passing it on to his own children.

Please donate a little or a lot.

There are lots of genetic diseases out there that need our help.

Thank you


Latest updates

23 Jul 2021 by Leisa Burrows

Bake it Blue

We had a wonderful and successful bake it blue afternoon tea at work this week. 
Very happy with the result of $115 in donations plus some more donations since. 
Thank you. Thank you for your kind donations! 

14 Jul 2021 by Leisa Burrows

More Donations

I am loving all of this support for a cause that's super close to my heart. 
Thank you thank you thank you!
Please share if you can! 

07 Jul 2021 by Leisa Burrows

Lumpy bones

Seeing different genetic conditions can be confronting. We all need help in finding more information these conditions. Thank you for reading Leisa
04 Jul 2021 by Leisa Burrows

You guys rock

Massive shout out to you all who have donated and those who habe shared!!
It's very much appreciated!
Thank you!!

Latest donations

$ 20.88

Naomi Bruggmann donated at 1 days ago

$ 20

Karen Lindsey donated at 1 days ago

$ 20.88

Melita Semler donated at 3 days ago

$ 20.88

Tawana donated at 4 days ago

"I didn't get to donate the other day."

$ 20

Tanya Garniss donated at 4 days ago

$ 5

Leona Bauer donated at 6 days ago

$ 10

Jodie Edwards donated at 6 days ago

$ 20

Deb Burke donated at 6 days ago

$ 116

Hss Staff donated at 7 days ago

$ 20

Bettin Herden donated at 1 week ago

$ 31.32

Naomi B donated at 1 week ago

$ 20.88

Steph Dover donated at 1 week ago

$ 10.44

Anonymous donated at 1 week ago

$ 50

Melville’s From The Nt donated at 1 week ago

"I hope the money raised goes to developing a treatment or cure for this condition… xxx"

$ 50

Leisa Burrows donated at 2 weeks ago

$ 30

Joanne Cochrane donated at 2 weeks ago

$ 55.33

Katie Wells donated at 2 weeks ago

$ 20.88

Emma Inglis donated at 3 weeks ago

"Anything I can do to help a little, I will. Love you and your family, and I hope they find something to help!"

$ 20.88

Jamey Jennings donated at 3 weeks ago

$ 55.33

Lauren Burrows donated at 3 weeks ago

$ 50

Nanny Sitbbard donated at 3 weeks ago

$ 100

Nan Judy donated at 3 weeks ago

$ 55.33

Julie Burrows donated at 1 month ago

"Good luck"

$ 10.44

Anonymous donated at 1 month ago

$ 24.01

Debbie Carter donated at 1 month ago

$ 55.33

Jeanette Burrows donated at 1 month ago

"I'll wear Blue Jean"

$ 50

Leisa Burrows donated at 1 month ago

My Achievements

Created a Team

Reached 25% of fundraising target

Reached 50% of fundraising target

Reached 75% of fundraising target

Reached 90% of fundraising target

Reached 100% of fundraising target

Set a higher target for myself

Made a self-donation

Shared on social media

Uploaded Profile Picture

Received 5 donations

Updated Blog