Denim Disco in Manilla

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Why I’m doing Jeans for Genes

This year we are having a Denim Disco to celebrate Jeans for Genes day 2022! This will be a great night for the kids of Manilla to come together and dance the night away! 

We are raising awareness about genetic conditions in children as our beautiful boy Max has Shwachman Diamond Syndrome (SDS). For Max this means different medications twice a day, being connected to a feeding pump overnight and frequent blood tests. Kids with SDS can develop leukemia so Max has bone marrow aspirates to check for early changes in his marrow. Liver, neurological and skeletal abnormalities are also common in SDS patients. There is currently no cure for this syndrome.

We believe fundraising for the Children's Medical Research Institute is so important. They work hard every day to find better treatments and cures for our Aussie kids who live with medical conditions. 

Thank you for your support

Latest donations

$ 53

Anonymous donated at 4 days ago

$ 55.92

Peter Leonard donated at 4 days ago

"Hope you get lots of donations."

$ 1.13k

Disco Proceeds donated at 4 days ago

$ 109.72

Matched Giver donated at 4 days ago

"Your donation has been doubled"

$ 109.72

Pop And Nanny Jules donated at 4 days ago

"Have a fun night xxx"

$ 31.65

Matched Giver donated at 4 days ago

"Your donation has been doubled"

$ 31.65

Susie donated at 4 days ago

"Have the best night, groovey baby!"

$ 21.10

Matched Giver donated at 4 days ago

"Your donation has been doubled"

$ 21.10

Sonia Lumber donated at 4 days ago

$ 21.10

Matched Giver donated at 4 days ago

"Your donation has been doubled"

$ 21.10

Lyn Bagster donated at 4 days ago

"Have fun"

$ 21.10

Matched Giver donated at 5 days ago

"Your donation has been doubled"

$ 21.10

Gai Faulkner donated at 5 days ago

$ 60

Matched Giver donated at 5 days ago

"Your donation has been doubled"

$ 60

Morgan Mchugh donated at 5 days ago

"Have a great disco ❤️"

$ 55.92

Matched Giver donated at 5 days ago

"Your donation has been doubled"

$ 55.92

Namoi Valley Plant Hire donated at 5 days ago

$ 52.75

Matched Giver donated at 5 days ago

"Your donation has been doubled"

$ 52.75

Jo Knights donated at 5 days ago

"Can't wait to hit the dance floor at the disco!!!"

$ 55.92

Matched Giver donated at 5 days ago

"Your donation has been doubled"

$ 55.92

Joanna Horn donated at 5 days ago

"<3 have the best night <3"

$ 55.92

Matched Giver donated at 5 days ago

"Your donation has been doubled"

$ 55.92

Cath W ? donated at 5 days ago

"Enjoy your Denim Disco, pleased to be able to contribute to Jeans for Genes for Max and others xx"

$ 52.75

Matched Giver donated at 5 days ago

"Your donation has been doubled"

$ 52.75

Angus Fenwicke donated at 5 days ago

$ 90.73

Matched Giver donated at 5 days ago

"Your donation has been doubled"

$ 90.73

Fiona Kelly donated at 5 days ago

$ 55.92

Matched Giver donated at 5 days ago

"Your donation has been doubled"

$ 55.92

Fiona Smith donated at 5 days ago

"Enjoy the disco Max lots of love Nanny and Poppa xxxx"

$ 315.50

Matched Giver donated at 5 days ago

"Your donation has been doubled"

$ 315.50

Leah Hyles donated at 5 days ago

$ 60

Matched Giver donated at 5 days ago

"Your donation has been doubled"

$ 60

Rachel Amos donated at 5 days ago

"Have a great night!"

$ 5

Matched Giver donated at 5 days ago

"Your donation has been doubled"

$ 5

Samantha Mcdonald donated at 5 days ago

$ 50

Matched Giver donated at 5 days ago

"Your donation has been doubled"

$ 50

Emily Delarue donated at 5 days ago

$ 55.92

Matched Giver donated at 5 days ago

"Your donation has been doubled"

$ 55.92

Tracy donated at 5 days ago

$ 53

Matched Giver donated at 5 days ago

"Your donation has been doubled"

$ 53

Josie Goman donated at 5 days ago

$ 104

Matched Giver donated at 5 days ago

"Your donation has been doubled"

$ 104

Jodi Goman donated at 5 days ago

$ 26.38

Rochelle Cashen donated at 7 days ago

$ 26.38

Deb Hamilton donated at 1 week ago

"Not sure I can disco anymore but love the idea Leah & Jack . Such a worthy cause. Have fun 💙"

$ 109.72

Shannon donated at 1 week ago

"Well done for arranging this! Hope it’s an awesome night. Love you xoxo"

$ 26.38

Imogen Goman donated at 1 week ago

$ 211

Lindsay Hyles donated at 2 weeks ago

$ 52.75

Tanya Marshman donated at 2 weeks ago

$ 211

Carla Angove donated at 2 weeks ago

"Rock on kids! I wish I could be there for a boogie, but I think I’m a little too old for Discos now unfortunately. Thanks Leah and Jack for your hard work and dedication ♥️"

$ 109.72

Mel Larcombe donated at 2 weeks ago

"Can’t wait for the disco!"

$ 55.92

Dusty Rafferty donated at 2 weeks ago

"Dusty RAFFERTY would love a ticket please"

$ 50

Natalie Brazel donated at 2 weeks ago

$ 20

Nat Lorking donated at 2 weeks ago

$ 53

Casey Horn donated at 2 weeks ago

"Wish I could come along! I hope you guys have a fun time! Lots of love to you all xx"

$ 63.30

Amanda & Josh Wrack donated at 3 weeks ago

"For a great cause. You do an amazing job Leah & Jack. Max you are a super star. Lots of love Amanda, Josh & Elijah"

$ 53

Lucy Ravenwood donated at 3 weeks ago

"The Denim Disco sounds like a blast! Have the best time guys x"

$ 50

Jo Thorne donated at 3 weeks ago

$ 211

Country Rubber & Foam, Pools & Spas donated at 1 month ago

"Stay strong Max"

$ 105.50

Leah Hyles donated at 1 month ago

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