We care about the 1 in 20 Aussie kids who face a birth defect or genetic disease. That’s one in every classroom, maybe someone you know or love. Every day, many of these kids wake up to pills, injections, hospital visits (or worse). They never get the chance to run around and just be kids. If they can endure that, and keep smiling, then the least I can do is fight alongside them. That’s why we're doing Jeans for Genes and raising money for Children’s Medical Research Institute. We want to give these kids better treatments and maybe even a cure.
We’ve signed up to Wear Jeans, so we can raise awareness and start the conversation—we need to do all we can to help save more kids’ lives. Can you help by sharing this message with the people you know and asking them to donate too? We (and millions of Aussie kids) thank you for it!
Here's just one example of how, together, we can change things:
When Kalarny was born, he couldn’t hold his head up. He couldn’t move. He was fighting just to breathe. He was diagnosed with Spinal Muscular Atrophy (SMA), and his parents were told he wouldn’t survive to his first birthday. Thanks to research, he survived, but he needs regular spinal injections and a wheelchair to get around. If he’d been born just a few years later, he could have received gene therapy. Infants treated with just one injection of gene therapy seem to be cured. It’s early days, but signs indicate that they will go on to lead normal, healthy lives. It’s so effective, SMA has been added to newborn screening and the gene therapy treatment is covered by PBS. A disease that was incurable, a death sentence, just a few years ago, is now curable. Amazing. That’s what I want for more kids and more of the 6000 genetic diseases out there.
You might think you won’t need this research, that it’s not personal, but genetic diseases are a ticking timebomb. Most families don’t know they carry the gene for a disease, and many genetic diseases are not even inherited—they happen randomly, out of the blue. Like Kalarny’s. Like cancer. Most people don’t know that cancer is caused by changes in genes—but almost everyone will be touched by it. So, the research we support today may one day help someone we know, someone in our family.
There’s lots of work to do, but there is also lots of hope.
Join me. Share this message. Donate. Thank You!
Our Impact
So far this year we helped provide...
32
Hours of research
For every $55 raised, one hour of research is funded
Thank you to our Sponsors
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Leonie Mattock
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Melinda Willcocks
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Codi Labuschaigne
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Elianna Montoya Lopez
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Anonymous
Donation for jeans for genes day!
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Anonymous
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Daniel Bale
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Abel Hatcher
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Bridget Maple
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Debbie Isaac
Fantastic work everyone, great cause!
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Savannah & Hunter Sheriff
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Anonymous
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Ginu Thomas
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Nate And Corbin Mitchell
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Donna Street
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Melissa Bonanno
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Bon, Jett & Lenae Smith
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Rachelle Seeley
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Nicole Ellisdon
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Sil Santana
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Nadean Duffy
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Paula O'brien
Caoimhe & Cian Byrne
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Sophie & Poppy Bell
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Talita Visser
$11
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Sharon Murray
$8
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Hillyer
$56
West Leederville Plumbing
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Jaxson Durham
🧬
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Spencer Nanavati
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Keith Lyons
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Josie Edie Gemma Bin Salleh
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Kristin
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Ioana Maghiar
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Zack & Evie Wiggins
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Anonymous
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Ellie Condren
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Laura Romano
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Veronica Bunculet
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Grainne Hamill
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Charlie & Daniel Carlone
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Joel Itzstein
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Ms Woodhouse
Go Landsdale PS! What a very important cause to raise awareness of and crucial funding for! I’m am so humbled by our generosity and compassion. What an amazing community we are!
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Sharon Pearl
My son is going to do the dishes for a week to cover the donation!
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Bray Family
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Melissa Silwanagh
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Kate Sullivan
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Anonymous
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Michelle Kenny
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Evan Ware
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Layla Ware
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Alison Ninyett
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Daniel Osment
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Harmony Berentson
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Haard Patel
Good job 👍
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Anonymous
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Yen Nguyen
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Reece And Sam
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Mitchell Hayley Richardson
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Anonymous
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Alliah And Alexi
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Zane And Riley Salta
Zane and Riley
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Simen Karlsen
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Kai Sappelli
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Skye & Lachie Fuller
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Stone Family
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Katie
$21
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Kayla&blake
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Hemali Badiyani
Keep it up.
$6
Kaia Ariki Arkie Anderson
$11
Sharpe Edge Painting And Decorating
$2
Anonymous
$5
Simone Covich
$5
Amanda Brough
$5
Chloe Nanavati
$11
Anonymous
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