We are raising money for Jeans for Genes in honour of our daughter Polly who was diagnosed with a rare genetic condition at the age of 2.
Polly has a condition called Congenital Myasthenia, it means her muscles fire at a slower rate than usual. Polly fatigues rapidly requiring daily medication and input from a range of allied health disciplines.
Our family have been on the daunting road to finding a diagnosis and we are lucky to have one. Diagnosis had led to treatment and access to support to best help Polly along the way.
It is thanks to the incredible work of exceptionally hard working humans that these conditions are now able to be named and treated.
We know times are tough out there but our family would be so grateful to anyone who is able pitch in and support Jeans for Genes. 1 in 20 kids are diagnosed with a genetic disease meaning a majority of us know someone who is impacted.
Please support kids like Polly to have access to treatment for often complicated and uncommon conditions.
Lots of Love,
Simon, Katherine, Hazel and Polly <3>
My Impact
So far this year I helped provide...
94
Hours of research
For every $55 raised, one hour of research is funded
Thank you to our Sponsors
$95
Platypus Junction
$45
Cef Social Club
😊
$26
Amelia Chrystie
Yay go team! X
$39
Gareth
$108
Platypus Junction
$76
Jeans For Genes
Your donation has been doubled
$76
Platypus Junction
$21
Jeans For Genes
Your donation has been doubled
$21
Lauren Brabin
Sweet Polly 🩷 You are going to do amazing things!!
$26
Jeans For Genes
Your donation has been doubled
$26
Erin & Alexandra
❤️❤️❤️
$55
Jeans For Genes
Your donation has been doubled
$55
Jacqui, Edward And Lily
Love you Polly!
$72
Jeans For Genes
Your donation has been doubled
$72
Platypus Junction
$51
Jeans For Genes
Your donation has been doubled
$51
Darth Vader
🚀
$446
Jeans For Genes
Your donation has been doubled
$446
Platypus Junction
$110
Jeans For Genes
Your donation has been doubled
$110
Amanda Lam + Uncle Ben
$106
Carole Clough
For Polly Clough love from Great grandma and papa
$106
Megan & Gary Walters
$56
Samantha German
❤️
$26
Hazel Clough
I love you Polly. You are the best little thing about my family. Love your big sister, Hazel xxx
$86
Mum, Dad And Hazel
We love you more than you know and are so proud of you!
$420
Simon Clough
$56
Bess And Rocky Ciancia
Princess Polly - You’re our little superstar!
$42
Kurt
Well done Polly
$110
Caroline Clough
Our beautiful Polly shows the world there are no obstacles!!! Love you
$12
Anonymous
$56
Jacob Ibrahim
Go Polly! ❤️
$20
Anna Pidgeon
$56
Jason Kop
$21
Heidi Shaw
Polly is delicious - let’s hope the research can help all kids like your Polly..
$100
Bec & Jesse Taylor
$56
Brad Eames
$21
Melissa Duran
$110
Sophie Miteva
$56
Susanne Moore
$1,000
Anonymous
$91
Alison, Clinton, Charlotte & Oliver Xx
Polly <3
$32
Katrina Vernuccio
$53
Mehmet
Great stuff Polly! Keep up the good work!
$56
The Langdons
$110
Sonia M
$56
Jon & Jenny
Polly ❤️
$31
Emma J
❤️❤️❤️
$5
Anonymous
$11
Kylie Collier
Katherine, I'm sorry I couldnt donate more at this time (student life), but I hope you reach your goal! Polly sounds super brave <3 sending lots of love xx
$21
Wilma Skipper
You rock miss Polly. 💖🐻
$56
Karen Anne Ablett
Keep doing what you're doing. ❤️
$106
Kirstin Fulton
Love you Polly Pocket
