At age 5, Adeline has never had a seizure-free day.
She lives with CDKL5 Deficiency Disorder, a devastating genetic epilepsy that means she can’t sit, walk, talk, see properly, or use her hands, she needs full-time care.
The future holds promise: if not for Adeline, then for other children and families. Gene therapies for other devastating pediatric conditions have yield dramatic improvements for individuals.
I’m doing 100 skips a day to raise funds through Jeans for Genes Australia to fuel cutting edge gene therapy research that could transform lives like hers.
Your gift no matter how small, brings the world closer to a breakthrough. Let’s turn hope into reality for Adeline, along with every child who deserves a healthy, seizure-free future 💛
My Team Members
Renee Moles
Raised so far:
$152
Anna Pitman
Raised so far:
$2,108
Rhi Harby
james Reti
Raised so far:
$3,090
Nicole Heffernan
Raised so far:
$541
Chantel Heldt
Raised so far:
$1,077
Michael Leith
Raised so far:
$1,069
Lea Happes
Raised so far:
$28
Zoe Munce
Raised so far:
$374
Shaylee Munce
Raised so far:
$17
Mikaela Pitman
Zoe Alvey
Raised so far:
$190
Airlie Eastwood
Raised so far:
$266
Allyce Wright
Raised so far:
$651
Mya James
Raised so far:
$558
Megan Fenwick
Raised so far:
$745
Hamish Johnston
Raised so far:
$499
Helena Margarita Guarin Nuñez
Raised so far:
$123
Angela Joyce
Raised so far:
$435
Angela Leta Kaye
Raised so far:
$297
Taylor Hatch
Steve Gauci
Raised so far:
$106
Max Tamatoa
Raised so far:
$54
Jarrad Raddon
Raised so far:
$1,762
Kelly Skinner
Sonja Grovermann
Raised so far:
$63
Emma Bacon
Raised so far:
$480
Brittany Campo
Brittany Anderson
Raised so far:
$211
Alyssa Woodley
Raised so far:
$1,697
Talia Henshall
Holly Escott
Raised so far:
$266
Olivia Ashworth
Raised so far:
$1,285
Jenna Lippert
Raised so far:
$362
Candice Marsden
Raised so far:
$1,433
Catherine Anselmo
Raised so far:
$54
Brit Wood
Paige Leith
Raised so far:
$464
Kelly Skinner
Raised so far:
$1,037
Thank you to our Sponsors
$54
Gary
Keep on skipping
$23
Ben W
Great cause! Well done!
$12
Kate Sawyer
Skipping towards gene therapy, thanks for skipping!
$23
Matched Gift
Your donation has been doubled by our sponsors!
$23
Abbie Van Doorn
$33
Matched Gift
Your donation has been doubled by our sponsors!
$33
Michelle Van Doorn
$54
Matched Gift
Your donation has been doubled by our sponsors!
$54
Tatiana Gonzales
$33
Matched Gift
Your donation has been doubled by our sponsors!
$33
Nicholas Lilleyman
$28
Matched Gift
Your donation has been doubled by our sponsors!
$28
Heather Mitchell
$12
Rebecca Rossi
$12
Matched Gift
Your donation has been doubled by our sponsors!
$23
Matched Gift
Your donation has been doubled by our sponsors!
$23
Kim Campbell
Good luck
$54
Matched Gift
Your donation has been doubled by our sponsors!
$54
Anonymous
Proud to support you and such an important cause this Jeans for Genes Day. Thinking of Anna’s daughter and all the families impacted by genetic conditions.
$17
Matched Gift
Your donation has been doubled by our sponsors!
$17
Jody Noonan
$106
Gaby Raddon
$106
Matched Gift
Your donation has been doubled by our sponsors!
$106
Matched Gift
Your donation has been doubled by our sponsors!
$106
Anonymous
A worthy cause, nice effort!
$28
Matched Gift
Your donation has been doubled by our sponsors!
$28
Juan Meldrum
$54
Matched Gift
Your donation has been doubled by our sponsors!
$54
Amy & Sam Calabrese
I better get those Apple Watch updates proving you’re doing all this skipping!
$54
Matched Gift
Your donation has been doubled by our sponsors!
$54
Chris Van Dal
$23
Matched Gift
Your donation has been doubled by our sponsors!
$23
Stephie Hawdon
$54
Matched Gift
Your donation has been doubled by our sponsors!
$54
Vilma Palacios
$54
Matched Gift
Your donation has been doubled by our sponsors!
$54
Kara Hazlitt
$54
Anonymous
$54
Jane Raddon
$54
"Keep on skipping"